Hi Teresa
It never ceases to amaze me how many carers cope for years,on there own,not just people who are away from their family,people who just seem to manage on there own.

I am not one of them,I found this forum last year and must admit if I have any doubt or do not feel things are going the way they should,I tend to come on here and gets…[Read more]

Hi Everyone
Well Tom it,s good to know I am not a deaf grey haired old lady and Slims not got a Complete chemo ,brain.my daughter came for the first meeting for a SCT and she confirmed to me its not panning out as explained.
Explained to us as 2 consecutive day of test,then decisions ,then cyclo and injections then harvest then SCT.

After the…[Read more]

Hiya everyone.
Been for my latest blood tests today – The result of which is I am no longer neutropenic 🙂 I won't get the results about my paraproteins till later in the week.
I have been booked in for my second round DT PACE treatment next Monday. So that's another 5 nights at the hotel NHS.
I'm a bit nervous waiting to find out what my…[Read more]

Dear Jean

I am so sorry to read about your Brother has been taken.

May I send you and His Family and Friends My Condolences and Prayers.

Love and Hugs to you all at this Sad Time.

Tom xxx

Hi Terry

Well they wanted rid of you or your counts shot up 13 days thats great going (I was 16) now then as for feeling crap, I still feel like that some days.
As for the feeling cold? since my SCT I have felt the cold more than ever before and I had mine done in 2009 :-/ I was always one to be out and about in a T Shirt but now av got a big…[Read more]

Hi Gill and Stephen

Like the ones afore me and the ones behind me I also cross fingers and anything els that can be.

Am sure you are correct it will be "Bugger" all (check spelling?)

Now here we are on the "Man" Thing he he Honest I dont know what to say apart from yep Ladie's you are correct we are Buffoons, Neanderthals the lot why??…[Read more]

Hi Bridget

Thanks for that tip,It has always been the case they are not obliged to tell you about all the help you can get,some things are very wrong with our society.

All this media attention,has increased attacks on disabled people,a couple of months ago,Slim was verbally attacked at the bank,he was on sticks and sat down,a man next to…[Read more]

Hi Gill
My fingers are crossed for you:-)
Why do men never tell you what,s going on ? Slim says it because I make a fuss and would cart him off to hospital!!!!,I call it caring !!

Lets hope its just a blip Gill,and you will get that holiday. I envy you,being able to get away,it is now 17 months since we came back from…[Read more]

Hi Jean

So sorry to hear your news,even if it is expected,you still feel the blow.
Do people take comfort that people they love are no longer suffering,or feel there is no justice that some ones life has been cut short,and they will miss so much of loved ones future lives.
You have your faith Jean,this must give you some comfort,I hope the…[Read more]

Morning Bridget

I have a grandson that stayed over last nite as he said Grandma's at work on sunday and you will need me to stop and look after you till Grandma comes home 🙂 Well as for looking after me He went to bed before me and the little devil is still asleep lol.

Dont know what to say when its the Grandkids looking after us Lol we…[Read more]

Hi Andy

Its great to read you are on the up and doing well.

As for me Yep am a bloke also I had SCT and used to go to 2Castle Hill" every week for bloods and a check up, well the used to put me in a room on my own and a Nurse would come in and take bloods then I would go see the Dr, I asked why I was kept away from the other people and she…[Read more]

Hi Tom and a warm welcome to the site, I also was diagnosed in 2009 (Jan).

Good Luck on your Fundraising.

From One Tom To Another Tom "Onwards and Upwards"

Hi Eve

Yep I think its Eve just being Eve 🙂 but if you wasn't Eve Just think where Slim would be now

You carry on being you it will do Slim good and when you ask questions you will feel better when you get the answers.

As for me prior to SCT I had a heart and Lung fitness test :-S but i had all the other scans in early days of…[Read more]

Morning Bridget

How are you today, I hope you feel much better now the weather is picking up and nearly on to the warmer climate time 🙂

I know am up a bit early but if I cant sleep best thing to is get up and on, I can always nod off in the afternoon lol.

Hope to catch you soon.

Love
Tom "Onwards and Upwards" xxx

Hi
Well I have to say Dai I feared the worst,Slim has no memory ,so he has no fear,he goes into this hoping for the best,his decision ,up to now I have felt positive,started procedure only to receive a letter,with appointment for cat scan,how can they start this and then decide he has to have a scan!!!,they want us to travel 86 miles to sign a…[Read more]

hi Dai

Out of interest,have you ever seen or heard of the Zulu warrior,the reason I ask,is you mentioning the local barracks requesting rebel songs,they were banned in barracks ,Once heard and seen never forgotten.

I think the words ring true,kill or be killed.different world.time and place, keep writing,you have something to say ,love Eve

Hi Dai

And a well done now enjoy your rest and make sure you take your mate "Dex" out for a few drinks 😎

Am pleased your shoulder is getting better and i love the way you have thrown the Guantlet down the rev fix my shoulder or get out He he8-)

Have a good rest Dai you deserve it 😀

Tom "As Normal" (well ish) "Onwards and…[Read more]

Hi Janet
Hope its soon kicked into touch, I was on them for three days before i felt Better and when i say better i mean better, must have been poorly for a long time and the Ant's sorted that out?? but hey ho it worked, so looks like some time sunday you will be better 🙂

Have a good week end (well as best you can wi chest) and sunday you…[Read more]

Dai

I hope you are going to put music to those lyrics ?

It reminds me a bit of the Irish rebel songs of the sixties, believe it or not the forces use to listen to them too.
Hope to hear it to music soon Love Eve