tom replied to the topic Another life lost in the forum End of Life and Grief 13 years, 8 months ago
Hi Eve
Please give my condolances to Jenny and tell her Prayers have been said.
And may The lord help Mike Davis rest in peace.
Regards Tom xxx
eve started the topic Another life lost. in the forum End of Life and Grief 13 years, 8 months ago
It is not my place to put another farewell on this bored but I felt it should be recognised as one of the silent myeloma victims .
Name Mike Davis,wife to Jenny,who loved and cared for him with his struggle with myeloma,who,s funeral took place today.Loved and cared for by Jenny.I am proud to know her and hope I have her courage,as any carer is…[Read more]
tom replied to the topic Moving at last in the forum General 13 years, 8 months ago
Hi Dai
Those hours asleep post Dex is pretty good, going back to when I was on treatment I got sleepy Pills (just after SCT as i could not sleep only took about four and Elaine pushed me into it 🙁
Yes we have had a lot of Bad news on the site but looking at our nearest and dearest how they have and are beating all odds and now are "Onwards…[Read more]
eve replied to the topic Advice Please in the forum Carers 13 years, 8 months ago
Hi Viv
I was hoping you would get some reply,s from people in your dad,s position,so I am boosting this to see if some people can help you.
People do get very tired,but you have to make the most of the times you have some energy,and make plans to go out even if its a walk round the block,all doctors will tell your dad to excise ,they chemo…[Read more]
tom replied to the topic Moving at last in the forum General 13 years, 8 months ago
Hi Eve and Slim
Wel am chuffed for you both as dai says "We all, every one of us, deserve to have the same" (and Dai I notice you are up early 🙂 )
Good Luck with the Harvest and hope Slims ccompletes all in one day 🙂
Lov Tom "Onwards and Upwards" xx
eve replied to the topic 3;15am… 'I'll Be Gone' in the forum Off topic 13 years, 8 months ago
Hi Dai
You are doing what you do best!!
I have a time it,s 4am don.t ask what I associate it with,but sure enough when it strikes 4am,I look at the clock and know the time without looking!!!
I do think about a lot of things and often wish I took a pen and paper to bed,my daughter does this every night,so you keep on with your writing time…[Read more]
eve replied to the topic Moving at last in the forum General 13 years, 8 months ago
Thank You Everyone
For your good wishers,very very impressed with Kings Chemo unit,it took us be surprise,after local hospital,the staff were very impressive,not one walked by looking down at the floor,and everyone kept checking all monitors.
Gives us more confidence in SCT.
Slim sleeping after busy time,next stage is harvest,so date…[Read more]
tom replied to the topic another newcomer! in the forum Newcomers 13 years, 8 months ago
Hi Carol
Thats great news 😀 evrything is moving along nicely 😎
Good Luck with the pre test.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Relapse after 5 years in the forum Newcomers 13 years, 8 months ago
Hi janet and all other "yellow Liners"8-)
I hope the cough is soon sorted 😀 nothing worse than a bloody nite cough :-S I remember when i stopped smoking (nov 2009) I suffered (and still do) a cough and more chest infections that you can shake a stick at.
I got flu and ended up with a chest infection at the end of it :-/ so off to Dr's…[Read more]
andyg replied to the topic Dexalicious… in the forum Side-effects 13 years, 8 months ago
Hi Dai
I also get tingling round my mouth and lips. I wasn't sure if it was dex or thalidomide that caused it. However dex got the blame for my fat face!
Andy
andyg replied to the topic CDT then PADS now DT PACE! in the forum Treatment 13 years, 8 months ago
Hi all
It is great to be home though as Tom says its a bit scary not having the safety net of nurses and doctors around. But as Tom also says there's less risk of picking an infection up at home than in hospital. I'll do my best to report any changes Dai – it has been drilled into me how important it is – but I am a bloke :-/ I've just had…[Read more]
tom replied to the topic 10 March 2012 in the forum End of Life and Grief 13 years, 8 months ago
Dear Michelle
I am so so sorry you have lost your beloved Husband Phil.
Loads of Love and Hugs sent to you and Phil's Family and Friends
Take Care Michelle and please keep in touch
Love Tom xxx
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 13 years, 8 months ago
A warm welcome home Andy, its great to be home and I know scary as you dont have the Dr and Nurses to hand (thats how i felt?) but if you have the same as i had it will pass.
Enjoy your bed enjoy your own cups and plates and most of all enjoy looking our your own window 😀
Realistically Andy you are in the safest place at home 😎 as we…[Read more]
andyg replied to the topic CDT then PADS now DT PACE! in the forum Treatment 13 years, 8 months ago
Hi everyone.
I woke up in my own bed this morning 🙂 No nurse waking me at 4am for obs. I was let home yesterday evening with a carrier bag full of drugs. I'm still feeling ok – thankfully. I know I need to be vigilant for the next few days but I'm glad to be home.
Andy
jmsmyth replied to the topic Moving at last in the forum General 13 years, 8 months ago
Hi Eve
I hope the SCT works for Slim. It's so hard to believe that a year has passed. Congratulations!! Hope you have a great day
Love Jean xx
eve replied to the topic So far? So good… in the forum Treatment 13 years, 8 months ago
Hi Dai
Sorry i have missed your post.Rearly good to hear new treatment is working,and you have some releave from the pain.
Finding i cannot keep up with the post,think its because as things improved with Slim,my middle of the night,being wide awake has faded and now sleeping well myself,
It is lovely to hear the old Dai back again,Love Eve
tom replied to the topic Relapse after 5 years in the forum Newcomers 13 years, 8 months ago
Hi Janet
How are you doing? hope the cough is better?
Hi Eliz
We ought to start up a "Yellow Liner" group ha ha. but to be honest they (the hospital) should have places where folk with the blue badge can have free parking.
Tom "Onwards and upwards" xx
tom replied to the topic Dexalicious… in the forum Side-effects 13 years, 8 months ago
Hi Dai
Well you know am sorry to read about your problem 🙁
Now for me ? When I was on CDT I was having Dex 10 in morning and another 10 tabs about 11 am i think on days 1 to 4 and 15 to 18 on a 28 day cycle. side effects ? I got a very bloated and fat face it was near the shape of a football when I looked in mirror :-0 and I felt like my…[Read more]
tom replied to the topic Moving at last in the forum General 13 years, 8 months ago
Hi Eve
Am pleased you had a few days away in your moter home,shame about not ringing mobile's my Dr and Nurse phones mine here in Sunny Scunny, am sure the SCT will be good for Slim it worked a good un for me 🙂 yes Elaine and I went to cleethorpes for the day with one of our Grandsons it was a brill day not too cold.
Like Slim (evn though i…[Read more]
eve replied to the topic Moving at last in the forum General 13 years, 8 months ago
Hi Tom
Well managed a few days away in motor home,but came home early Slim not to well,have been waiting on a phone call from Kings to tell us results,only to find they,did not ring mobile as requested,but left message on answer machine…[Read more]