tom replied to the topic RIP DAD 14/03/12 in the forum End of Life and Grief 14 years, 1 month ago
Dear Nicola
I am so sorry to read that your Dad has sadly passed away.
I am sending prayers and ((Hugs)) to you and your Family at this sad time and hope you have some comfort in the knowing that Dad is up with the Angels and now learning to be one to look not just after you and his Family but people like us and I thank your dad for being…[Read more]
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 1 month ago
Morning Andy.
And a well done you, I hope thes 10 Hours fly past great to hear your obs are good keep it up M8 and may your obs be well
We ar all behind you all the way 😎
Tom "Onwards and upwards"
andyg replied to the topic So far? So good… in the forum Treatment 14 years, 1 month ago
Hi Dai
It's good to hear your pain is easing. Hopefully it'll soon be gone completely. There's nothing worse than constant nagging pain. We've all got our personal battles going on but if we stay strong and positive we will improve.
Wishing you pain free
Andy
andyg replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 1 month ago
Hi all
Well I'm only 10 hours away from the end of the first round of DT PACE and I'm feeling ok. I'm not counting my chickens though after all the warnings about the days after being bad.
Thanks for the link to the blog Lorna it was interesting.
I've just had my obs and everything is fine. Hopefully the pesky PP's are having a hard time and…[Read more]
tom replied to the topic So far? So good… in the forum Treatment 14 years, 1 month ago
Now thats the way to go dai 😀
I know and you know that we are all behind each other 😎 we have (unfortunately) got a great gang all rallying for each other, and that for me Dai is a great thing 😀 .
Am Pleased you are 70% better. I know what you say you can have too much pain and if its only now and then we learn to live with it but the…[Read more]
jmsmyth replied to the topic New and so, so scared in the forum Carers 14 years, 1 month ago
Hi Mavis, I'm sorry that you have jhad to join us, but welcome. You will find support, advice and comfort from cyber friends here. This is the best place to rant and rave, and no one will say anything My hubby was diagnosed 2006. He is still "smouldering" , no treatment. The hardest thing we have ever had to do was to tell our 4 grown up sons.…[Read more]
tom replied to the topic Relapse after 5 years in the forum Newcomers 14 years, 1 month ago
Hi Janet
Yes I park outside the hospital on double yellow lines 😀 and i can do that for three hours.
Hope your Cough is soon better I have just got over Flu and that turned into a chest infection so had to have some anti biotics, cleared me up a good un, never felt better for years so lord nknows how long av bin poorly lol.
Ps My Young…[Read more]
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 1 month ago
Hi Andy
And a well done you 😎
Hey you aint gonna have "Bad Times" its Onwards and Upwards for you M8 😎 saying that all us MM'ers need to keep an eye on our temp 🙁
Keep strong and fit
Tom "Onwards and Upwards"
andyg replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 1 month ago
Hi all
Well I'm nearly at the halfway mark and I'm feeling ok. Like Bridget said and all the nurses keep telling me my bad time could come after discharge and I have to be very vigilant and monitor my temp regularly. Hopefully it'll be ok because I'm having at least 2 cycles.
Hoping everyone is ok
Andy xx
tom replied to the topic Relapse after 5 years in the forum Newcomers 14 years, 1 month ago
Hi Janet
Yes they did that at my hospital Scunthorpe General 🙁 but when I had my SCT I had that in Castle Hill in Hull and that had free parking at the Onc/Hem dept but you had to be on and early app as it soon got full.
As for me I park outside the hospital in a bay that says "30 mins parking no return for two hours" I asked a traffic…[Read more]
tom replied to the topic So far? So good… in the forum Treatment 14 years, 1 month ago
Now Dai
Am I the one that said "If anyone can do it you can" Good Lord am I pleased I am correct way to go Dai you are nearly up and running 😀 .
As you say the list has grown a lot that hang on to your Tail and follow you. I know you will keep strong and have the mental being to go as far as it needs.
From One "Onwards and Upwards" To…[Read more]
tom replied to the topic Delay in Chemo in the forum Treatment 14 years, 1 month ago
Hi Tina
Another Delay :-S well I hope they dont move it again and you soon get the pain relief you deserve 😎
And you know you can moan as often as you want 😀 it lets off a little bit of steam and makes us feel better .
Love Tom "Onwards and Upwards" xxx
andyg replied to the topic So far? So good… in the forum Treatment 14 years, 1 month ago
Hi Dai
Good to hear your test results are good. Long may they stay that way and your painful shoulder disappears. Well the pain disappears not your shoulder 😉 there's nothing worse than a constant nagging pain.
Here's to a pain free future
All the best
Andy
eve replied to the topic Advice Please in the forum Carers 14 years, 1 month ago
Hi Viv
Welcome,this is going to be a big learning curve in your life ,and many times you are going to wish you are not here.There is no cure for Myeloma but it is treatable,how long a person lives depends on how they view there world,there hopes and dreams.
You have had Cancer yourself so you know the problems,We live in this world of…[Read more]
tom replied to the topic HERE WE GO AGAIN !! in the forum Treatment 14 years, 1 month ago
Hi all
And I third that, I used to like the cold and hate the warmth but since my SCT I find I am the otherway round, Cant get warm in winter and cant get enough heat in summer, I was always the one that said Gosh its Hot today Lol.
I have taken your Wine Bridget (hope it was red?) and also drinking your Vodka Lol.
I raise my glass for…[Read more]
tom replied to the topic Moving at last in the forum General 14 years, 1 month ago
Hi Eve and Slim
Gosh all that traveling you tell us about makes me bloomin tired (bless you both)
And you are correct all that could be done local its all on computer so your other Dr's can see it anywhere.
Hope you have a good nights sleep.
Love Tom "Onwards and Upwards" xxx
ps I was told no flying away prior to SCT and none for 6…[Read more]
tom replied to the topic Relapse after 5 years in the forum Newcomers 14 years, 1 month ago
Hi Janet
Sorry you have got a relapse am sure it was a shock but their is many a new thing out on the market today to put you back into remission 😀
As for parking fee's dont you have a Blue Badge ? if not thats one thing I would be getting into it helps a great deal having one of those.
Good Luck and stay strong
Tom "Onwards and…[Read more]
tom replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 1 month ago
Hey Andy
Good luck on this journey and I see by your post you aint counting Lol.
Hope you have a good un
Tom "Onwards and upwards"
andyg replied to the topic CDT then PADS now DT PACE! in the forum Treatment 14 years, 1 month ago
Thanks for all the good wishes.
I'm now in hospital and have just been connected up to all my infusions. So the battle has started. Only 3 days 23 hours and 50 mins to go – not that I'm counting 🙂
Thanks once again for all your messages of support.
Andy xx
eve replied to the topic Moving at last in the forum General 14 years, 2 months ago
Thank you everyone for your good wishes,
Slims shattered gone to bed and I am going to follow him,left home at 9am got back just before 8pm.It leaves us a bit dumb foundered, spent a long time for test that could have been done in Canterbury,Ex ray and Heart Monitor.The rest could have been explained in a booklet.!!
Next appointment next…[Read more]