Hi Amelie

Sorry to read that his SCT only lasted for a short time, and hope that his 2nd one gives him far far longer, please give him my regards

Tom "Onwards and Upwards" xx

And a warm welcome from Me Terry.

I just wanted to wish you a good journey with your MM and am sure you can keep us all up to date with new treatment .

Keep strong

Tom "Onwards and Upwards"

Aww Bridget

I have read and re-read your last post I have sat her thinking what I can say, and the only thing that keeps popping into my head is (and forgive me ladies and gents) "Bastard MM", sorry bout the cuss word on your post Bridget :-S

But I am with the rest that have already posted and those that will follow my post is to say You…[Read more]

Hi Bridget

Just reading you news,and wondering what to say,sorry does not seem fitting, it is strange the way,over time with this MM it becomes another hurdle to get over,and now you are being told there are no more hurdles,well Bridget if you are prepared to jump the hurdles,they should at least be prepared to find some.
I like most people on…[Read more]

Hi Bridget
Just read your post – dex is keeping me awake – I'm very sorry to hear your news. As I'm new to the MM battle I haven't much knowledge of treatments or advice. I can only hope that you receive something that works for you.

Best Wishes
Andyg XX

Hi Roz

Did I Post a photo of my breakie? I cant find it on Facebook??
Am doing great Roz and I hope your doing Ok also

Love Tom xxx

Hi Gem

First My condolances for the sad loss of your Dad and next Many thanks for your offer and support for all of us who have or care for those MM sufferers.

Love Tom "Onwards and Upwards" xx

Hi Jacqueline

So Sorry you had to join the site but a warm welcome to you and your Dad.

Ellen is correct well about me anyway I dont know anything nor have I read anything about MM in the brain I just wanted to welcome you to the site and wish your dad a Good Journy with his MM.

Tom "Onwards and upwards"

Hi James

Good to see you have got through SCT and now,working on you general health,Slim my husband has not yet had SCT but after a few hiccups with treatment,found himself unable to walk with out sticks then only a short distance.
He started walking short distances often with me pushing a wheelchair just in case, went to one stick,then…[Read more]

Hi Dai

When I read you had missed out on trials,I put off replying as it just did not seem enough to say how sorry I felt for you,it just seemed so unfair,but hey! some times life is not fair,and by the sound of it you have picked yourself up and hey ho! on to the next treatment.
You cannot keep a good man down:-)

At least with the night…[Read more]

Hi Dai

Well its so good so far 😀 and as for the general fatigue.. well I get that and as you know am on Nowt, so am putting it down to "Old Age" well for me that is Lol.

Keep it all going we are all with you 😎

Tom "Onwards and Upwards"

Hi Kay and Eve
Thanks for the welcome. It good to know that there's people who care enough to support and share with others their experiences whilst in the middle of the MM journey. I'm on the first rung of the SCT ladder as I'm being referred to the transplant centre at the Newcastle freeman. I'm not sure how long the process will take from here…[Read more]

Hi Andy
Again welcome to the site
My name is Eve and I am a carer to my husband,I use to be a 3am person,but things have got a lot better,and my husband took my advice about seeing the doctor and taking an extra pill,to try and get some normality in are life.
He now takes a light ant depression tablet which makes his body relax so sleeps all…[Read more]

Hiya Keith my wife and I will be there Saturday.
We were at the support group meeting last week – sat round the same table.

See you there
Andy – oh and Steph

Thanks for the welcomes Jo, Helen and Tom.
I'm sure my road to remission will be bumpy at times but I will be sure to fasten my seat belt.

I'm looking forward to sharing the good times and helping at the bad times.

Best wishes to everyone
Andy x

Thanks Kay and yes I do hope it helps to hear good news also I am sure more and More folks will be soon Joining me on the "Treatment Free" Regime.

Love Tom "Onwards and Upwards" xxxxx

Hi Andy
A warm welcome to this warm Site and am sure as you have read a bit you will already know that we have some great folk on here.

Enjoy and ask and tell away, good luck with your road to remission

Tom "Onwards and Upwards"

Hi Dai
What a devil that is am sorry to hear that, wonder how Ill you need to be before ur "P" starts to show MM :-/ anyway Dai whatever they throw at you am sure you will cope with it and the bloody side effects.

Tom "Onwards and Upwards"

Hi Eve

Posted on my face book? cant find it dont know where you posteandnd av tried to find you and cant 🙁 wot name are you under ?
And I cant wait to be your Friend xxx
ps wot name do you go under and do you have a photo ?? xxx

Thanks for the welcome David.
My journey so far has been a bit bumpy – spent 10 days in hospital till Xmas eve after a fall caused my already damaged back severe pain. At this moment I'm feeling ok and up to the challenge of battling my MM.

Andy