jmsmyth replied to the topic Good News Good News in the forum Treatment 13 years, 10 months ago
Hi Gill
Your wonderful news made me cry – with happiness. Stephen and you have both been throug so much and it was brilliant to read. I echo Jo = hope things get even better. You know yourself what posts like this do for us all.
My love and best wishes to you both.
Lov Jean xx
jmsmyth replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 13 years, 10 months ago
Hi Jo
Good to hear from you and have fingers crossed that you get the all clear in April. I am recovering from the dreaded tummy bug and staying away from Frank – don't want him to get it. Frank has his good and bad days. Still not on treatment. Mind you – on the Myeloma Beacon, their is reseach going on in Spain that suggests that patients…[Read more]
eve replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 13 years, 10 months ago
Hi Jo
Good to see you have got over your food poisoning,and back to your old self.
I get up to London occasionally ,last time to see Mama Mia with my daughters,unfortunately Slims has no interest in the theatre .
One of my Christmas presents are tickets to see Calender Girls locally in Canterbury in February,So a nice evening out for…[Read more]
eve replied to the topic REMISSION. in the forum General 13 years, 10 months ago
Thanks Dai
The penny has dropped.
Slims tried to come off his pain tablets a few times plus since not being on chemo he has forgotten to take his tablets going to bed a few times,specially when he was on ant-biotics ,because he had to take them on an empty stomach and his other tablets with food,he is the one that controls his tablets,as he…[Read more]
eve replied to the topic REMISSION. in the forum General 13 years, 10 months ago
Hi Phil
Thanks for the good wishers,cannot book a cruise yet,even though we were hoping for a last minute short cruise from Dover.Slim has not heard from Kings and we have a number of hospital appointments in line,if I could get some dates,we might be able to get away.we do need this break.
I am finding this remission is Like a new ball…[Read more]
eve replied to the topic Barry White Vs Lee Marvin in the forum Off topic 13 years, 10 months ago
Hi Dai
From the sounds of it i would agree with Janet,except Lee Marvin was tone deaf.
Think your self lucky you can sing,at family events after a few drinks,if I made any attempt to head for the stage to sing,it use to be a race to stop me getting to the mike,even singing in the bath is banned:-(
I think singing is an expression of happiness.…[Read more]
tom replied to the topic Grief in the forum End of Life and Grief 13 years, 10 months ago
Hi Dai
Yep I and manymore know how you feel, but I intend to live long enough to see my youngest Grandchild get married 😀 and am sure My Sons will be having Kids for years to come Lol 😎 so I will never say never and long may My sons be fertile he he.
Good Luck with it all Dai and keep strong.
Tom "Onwards and Upwards" and waiting…[Read more]
tom replied to the topic My mum was diagnosed with MM in December 2011 in the forum Newcomers 13 years, 10 months ago
Hi Mandy
A Warm welcome to the site and hope your Mum's Journy along the road is a good one and your Mum takes it one day at a time, dont expect great things as it takes time to find out what works.
Hope your Mum gets on the site as am sure it will be of a great help to her like it has and is to myself and all the others on here.
Love…[Read more]
tom replied to the topic REMISSION. in the forum General 13 years, 10 months ago
Hi Eve and Slim
I know all about the one forward and two back 🙁 but hey take it from me its worth it 😀
And I am sure you will both be very welcome into the "Onwards and upwards" Gang as we have an Open House 😎
After My SCT I was not too well and thought it would never get better as it Seemed ages before I felt half normal, as I…[Read more]
jmsmyth replied to the topic A LITTLE LIGHT RELIEF in the forum Off topic 13 years, 10 months ago
Hi Jo
Sounds brilliant. Always wanted to see Phantom of Opera but don't think it will ever come to Belfast. Enjoy your brekkie and hope the rest o the weekend is great. Keep well.
Love Jean xx
eve started the topic The Philosophy that underpins your life. in the forum Off topic 13 years, 10 months ago
Hi Everyone
I have just been reading The Definite Article a piece in the Mail on Simon Weston.
The question was- The philosophy that underpins your life??
The answer was- Never let anyone write you off-and never write yourself off.
I thought it a very good answer.Eve
eve replied to the topic My mum was diagnosed with MM in December 2011 in the forum Newcomers 13 years, 10 months ago
Hi Mandy
Welcome to the site,it must be worrying for you being so far away.One of my own daughters is in NZ,so have some knowledge of how helpless she felt although my husband,has me and our other 2 daughters.
I do not think anyone going through Chemo treatment has a good quality of life and many of the side effects,can bring you down to a…[Read more]
eve replied to the topic REMISSION. in the forum General 13 years, 10 months ago
Hi Chris
Thank you so much for posting,it does give us some in sight,knowing we have to make this big decision ,it is early days for us concerning SCT,just trying to get any information concerning SCT,its almost like having to take a couple of steps backward to advance, with not knowing if it will be worth the effort
(if that makes…[Read more]
tom replied to the topic 1st Anniversary in the forum General 13 years, 10 months ago
Hi Phil
And may I join our Jo in saying congratulations and a well done 😀
The doing Fair to Middling is a great saying but not as Good as "Onwards and Upwards" and that my friend is what you are Keep on going strong My SCT was in Dec 09 and I still get tired and fati gue'd lol so stick with it Phil we aint gonna be as fit as we…[Read more]
eve replied to the topic Grief in the forum End of Life and Grief 13 years, 10 months ago
Dai
You are not going to like me for saying this,but in the big picture of things,it does not matter what you would like,because at the end of the day ,Janet will continue to live,how she chooses to do it, it will be a measure of her self being!!!!!,Sorry DAi.
Find your fighting spirit , if you cannot get on trials,ask to have the drug any…[Read more]
eve replied to the topic The Trials Of Trials in the forum Treatment 13 years, 10 months ago
Dai I wish I could give you some sound advice,but the only thing I can think of,is if you reduce your water intake it must have an effect on your kidneys.
It is so wrong that you have to comply to a criteria ,were does that leave people like Slim,nothing shows in bloods or urine,I just know when things are not right,luckly I now have a GP who…[Read more]
tom replied to the topic Another New Carer in the forum Newcomers 13 years, 10 months ago
Hi Jo and Partner
Welcome to the site 😀 and I know you made the correct decision to join 😎
Good Luck for the SCT I had mine in December 2009 and am doing great.
Love
Tom "Onwards and Upwards" xxx
tom replied to the topic Am following on from Clarabell.. 1 year on….. in the forum General 13 years, 10 months ago
Hi Only me
Its great to read about your Mum and am pleased your Mum and you all are getting the smile back.
I know how it feels that first year (like we all do) and Like your Mum I know its positive thinking that helps a great deal (oh and sleep, vodka and red win)
Keep up the great work
Love
Tom "Onwards and Upwards" xxx
eve replied to the topic Am following on from Clarabell.. 1 year on….. in the forum General 13 years, 10 months ago
Hi Only Me
good to hear the good news about your mum,it is amazing the way things turn round from someone being so ill,and then responding to treatment,its just finding the right treatment.:-)
I think it,s very important to be positive,and to try to lead a normal life as possible,every one has there down days,and as you say there is only one…[Read more]
tom replied to the topic NIGHT CRAMPS in the forum General 13 years, 10 months ago
Hi Val
Well Done on keeping the MM monster at bay 😎 its not good news its bloody great news and I thank you for reminding me that the Dr's are wrong its not the 5 its well over the 5 😀
As for iccle ole me I dont have probs wi me legs?? BUT my Young Bride Elaine says I do on a friday Nite :-0 am sure I dont know what she means Lol…[Read more]