Hi Nicola

Am pleased your Dad (am sure he has a name lol) is feeling Perky as Perky is Good 🙂

Tell your Dad from me Work aint all that you know 🙂 But I know how he feels I needed to get back to work to prove to Myself that am fit and healthy (now i should be so lucky he he) and now I feel as if I am near ready for packing it all in…[Read more]

Well done those Tabs thats great news Nicola am sure in a few days your Dad will feel much better:-D

What your Dad said during his extreme discomfort and pain am sure when all has settled he will want to fight it all the way, your dad sounds like a fighter that was just a little punch drunk, now soon he will be putting on his gloves to fight…[Read more]

Hi May

And a warm welcome to the group. Sorry to hear about your Mum.

Its a worry when the treatment fails But there is a lot out their that will work its trying to find out what and when it will work. I tell Elaine (my young bride) when its time to sort things out the Dr will tell us just let them sort out all hiccups as we travel the road…[Read more]

Thanks Everyone
For all your support,It is such good news,which has taken a long time to get to this point,but it is lovely to be here,sound a bit stupid,but at times just could not see the light at the end of the tunnel,so its good,good and even better.;-) 😎 🙂

I cannot help thinking about some people who are not posting like Sharon who…[Read more]

Hi Glenn
I originally am a scoucer,so I know that Clatterbridge from the start has all ways been a designated Cancer hospital,so you are in good hands.

Slims on the Velcade with Dex and Cyclophosphanide. VDC for short,as you progress with Zometa you will find you can do more things,iam all ways nagging Slim about doing to much,his answer is I…[Read more]

Hi Bridget

I too have my fingers crossed for you. I pray that the treatment works and the beast is well and truely hammered!!
My very best
Love Jean xx

Hi Glenn

As for pain? well I have a bit of pain but am sure it isn't down to the myeloma :-S might be just old age as all my bloods (well thats what the tell me) are Ok, only effects I had with the Zometa was a flu like symptom for a few days after getting it infused :-/

I also have a very supportive Family three grown up sons and soon to…[Read more]

Hi Nicola

I do hope your Dad is soon sorted I for one could not poo for some time when having treatment and its one of the worse things that hit me while under treatment, I hope its soon sorted.

Love and Hugs

Tom xxx

Hi Glen

I wish you well in this journey I was told in jan 09 I had MM went on 5 courses of CDT (done ok ish with it) and had to pack in work due to being tired and weak had SCT in December 09 went back to work on light dutie's and all the treatment i am having now is Zometa infusions every four weeks 😀 and when that stops (soon I hope) then…[Read more]

Hi Heather

For me staying employed and being on Sick was for me a Goal I had, to get better and back to work to show myself I can and will do it (am a stuborn cuss lol) it warked and I went back after a year off on Light dutie's still doing those "Light Dutie's" and to be honest am getting ready for giving work up 🙁 dont get me wrong the…[Read more]

Way To Go, way to go, wayyy to Goooo, that Slim and Eve, wayy to Goooo And a great BIG WELL DONE from me and the Young Bride (Elaine)

I know for you both its been an Uphill Strugle 🙁 but as I always say "Onwards and Upwards" and you two have proved it can be done 😀 well done to you and your Team 😎

As for the SCT Eve I had mine in…[Read more]

Hi Everyone
Thanks for your wishers,I know it,s just the start,but to us its a light at the end of a very long tunnel.
We will go to kings,and see what they offer on SCT but we know how the consultant feels,but as he said Kings do hundreds and they are the experts.

We are still piled up with appointments so no travelling yet,hope to be able…[Read more]

Hi Bridget

I think you would be good as our resident expert on financial matters on this site,at our hospital there is no information except a notice board note telling you to get in touch with macmillan office.I tried this when Slim was in hospital,never received a reply,made me so angry it put me off trying.
later applied for,some…[Read more]

Hi Eve

Hope all your news is good. Well done you both. Frank and I l ove cruising we go when we can. Our favourite is Royal caribbean. Whatever you do – enjoy – I am delighted and so happy for you both. It has been a long road – but you and Slim show that there is a definate light at the end of the tunnel.
My love and best wishes to you…[Read more]

Hi Heather,
I have to ask where have you been,no insult,but people like you can be such a help on a site like this,we know from other people the NHS are not the best when it comes to there own staff.

If you want a honest answer from me,both of you retire as soon as possible,
I know what you are thinking,it,s not about money it,s your quality…[Read more]

Hi Pilgrim
I would agree completly about banks,many many years ago,I was desperate,saw my female bank manager who had so much faith in me,these days its computers or the legal department full of kids out of uni who decide you fate.God Help US.

Its just having the energy to fight the battle,when you have enough to worry about without banks…[Read more]

Hi Glen
My name is Eve I know Clatterbridge ,good hospital for Cancer,going back years live in the south now.

It is a bit of a shock to the system,CTD is the first chemo ,never heard of PAD but there again my husband is on Myeloma X1 trials so next chemo was Velcade,but it is a bit of a post code lottery.My hubby is still trying to get…[Read more]

Hi Kay
Sorry to hear you think its,back again,just wishing you good luck for tomorrow,Slims in the same boat except he has never had remission,tomorrow we find out if the second lot of chemo Velcade has worked,I try not to think to far ahead,as we have been here before.
Hope all goes well Kay,best wishers Eve

Hi Nicola
I know its hard but may be your dad is better off at home,you do need that home visit to asses how much help is needed,you do not say if he has a carer who can provide a good level of care.

I know what hospitals are like,the nurses just do not have the time,My husband spent 22 days in hospital 9 in itu,I spent 12 hours a day there…[Read more]