Hello Pilgrim

I think you have done the right thing finding out as much as you can,Myeloma is sometimes very hard to diagnose,and often gets over looked as a cause for some ones illness,at least you have a good GP who has taken note of what you have said and acted on it.Many people get over looked until there bones start breaking then the…[Read more]

Hi Nicola
Sorry you had to join this site,as for help no one would be able to help with so little information,may i suggest you ring Ellen first thing tomorrow.

Why have they sent you father out with out.with out some form of back up,How an earth are you coping ,what medication is your dad on,lots of questions,please ring Ellen, Eve

Hi Heather

A warm welcome to the site:-D I had my Transplant in Dec 2009 so I make that just over 2 years Post Transplant?

Diagnosed Jan 2009 went on 5 cycles of CDT then stem Transplant dec 09 but went on sick may 09 for a year back at work (Lidutiesie's) may 2010, just started doing a little bit of my old job (forklift driver/Pendant…[Read more]

Hi Ed

Hope you had a nice new year and that 2012 wil lbe better for your wife, you and your family. If you are interested in seeing a counsellor ask at the clinic or the Macmillan nurses. As I said may not be for everyone but with the help of people on the forum and the counsellor -I was pulled out of a dark place, and it is reassuring to know…[Read more]

Hi Chris

Well am pleased you are getting the posts 🙂

After reading your nutro pp and stuff am none the wiser Lol shamed to say I have left all that stuff to My Dr's so far and it works for me 🙂

Keep on keeping strong and its grewat that the Family Nag you when you do too much.

Catcha Lata

Tom "Onwards and Upwards"

Hi Chris
Just thought I would pop on and see how you are doing? Hope these are not going into your "Trash Can" Oh ? if they are you wont be able to read this one then will (am a silly billy)

Tom 🙂

Dear Mari
Glad to hear your Christmas was good,Slim slept through most of Christmas,but it was still better than last year,wish I could get back into reading,to be able to stop thinking about this myeloma.

No Slim did not have sub cut,when I asked about it,was told it was effecting some people,also has not come to our hospital yet!!!!!
Its…[Read more]

Dear Ed

I am so sorry that you have had to join our exclusive club but you are very welcome. You will meet terrific people here who are a mind of information. My hubby has MM he was diagnosed Sept 2006 and like your wife they are monitoring him. the only treatment that he has had is Someta. he has good days and bad days – and I will be honest…[Read more]

Dear Michelle

So So Sorry that the Bloody MM has fought off everything and left you and your Husband in Limbo.

Its a Bugger that you are both waiting for a trial to start? lord knows why they dont start one for you NOW ? am sure it wont harm but it may help.

Keep strong the team will be having talks about the what next treatment at the…[Read more]

Al Match you with that Dai you and I and also many others have great Partners (dont like the word carer)

So al say Happy New Year to Elaine and all the other Partners out there helping and coping Bloomin well.

Love and Hugs to you all xxxx

Hi Linda and Pete

Like the others A warm welcome to our little group.

Yes its a daunting thing being told you have MM then told it is a Cancer:-( but take notice of the new treatments that are on the way every month we seem to hear about this and that new treatment

May I just say never ever feel guilty about your tears or feeling down…[Read more]

Hi you all

I forgot to answer this one he he.

As for me I used to (and am sure it will come back) have a great memory and after noticing that I would forget things I asked My Cancer Nurse (Helen) and she said it is "Chemo Brain" it says it all realy :-S make me better:-D by giving me stuff that makes me forget I was poorly:-0 Cant beat it…[Read more]

Hi Helen

Yes we had a great time Thanks, and you done a great job cooking for 14 :-0 me if I have to feed myself can I get it all to be ready at the same time? not on your nelly thank the lord for Microwaves to reheat the stuff that was ready 10/20 mins before the rest lol BUT I have a great Cook in my young Bride Elaine so dont have to worry…[Read more]

Hi Chris

A warm welcome to this great site am sure Like i you did not want to join? but here you/I and many more are here.

I was told in Jan 2009 that I was part of the MM mob, started on CDT then a Stem Cell Transplant in December 2009, doing good so far and still in remission and only having Zometa Infusions evry four weeks.

For me…[Read more]

Hi Roz

And your welcome and a good sob is good for you am sure.

Are you on F Book then Roz? If so you can find me lurking on their fairly often Lol.

Have a great week and catch you soon

Love and Hugs ((()))

Tom "Onwards and Upwards" xxx

Hi Jean and Frank

Great Photo's of the Lovely Coupls and the one of the Grandkids, I know that a wedding will do anyone in and make them tired and want to sleep all next day so a Well Done Frank 🙂

enjoy the rest when they have all gone 🙂

Love
Tom xxxx

Hi Min

You are so right about the grand kids. I love them to bits but they are hard work. We have only Robert wife and wee Maddy here. They have gone out and it is soooo quiet – lovely!!

I hope the new year brings you nothing but good things
Love Jean xx

Hi Dai
Well you seem to be doing well getting out and about,happy belated birthday wishers,are you one of these people who only get one present instead of two because your birthday is close to christmas?????

Slims sleep patten was all over the place awake in the early hours and tired and cat napping in the day,doctor gave him a very mild…[Read more]

Thanks Bridget and Jo. The first of the boys are leaving in about 30 minutes. Robert and family go home tomorrow and then back to peace and silence. Will miss them

Hope you both and your families have the best of new years

Love Jean xx