Hi David and all these lovely people replying
To David and everyone else I am sorry for your loss,when it comes so close to home it hits harder,It seems cancer becomes so much more to the front when it enters your world,you notice how many people have it.

I have lost close relatives and good friends ,some very young,these people fought hard to…[Read more]

Hi Stuart

Any luck with Safari browser? Phone has nearly gone out the window a couple of times today – scared it will hit someone on the head. >:-(

Jean

Hi Gill

So glad you are off to France. I hope you have a brilliant time. Just take it easy getting there. Never been to France but hear it has beautiful countryside, so enjoy.

Love Jean x

Thanks Jo – here goes. 😀

Love Jean

ps Hey it works – Thanks again8-) You have created a monster!!

INSTANTANEOUS (think thats how it's spelled)
OUS for next

Jean xx

Hi Sarah
Good to hear from you,no sign of the Ram!!!!!!
what you say is so true,Gordon loved his land and was privileged to die on it,and you have the comfort of your family around you.I consider grand kids your greatest asset,the future generation for the land you love so well,so his memory will always be there,you just have to decide were your…[Read more]

Roz sorry that you are having such a terrible time. When I went for counselling I didn't go near my doctor. Our hospital Belfast City Hospital had a MacMillian centre and a counselling centre. I went in there filled in a form and saw a counsellor within a week or so. When I felt a couple of years layer that I needed it again I phoned and went the…[Read more]

Oh Jo, you were doing so well. I'm so sorry that This horrible thing has reared it's ugly head again. I pray that you next treatment works. Good vibes going to you.

Live Jea xx

Hi Jo
I was thinking about you today,so sorry Jo you have been doing so well,Velcade has worked well for Slim,and they have caught you early,Let hope the BMB shows low results,I can only say its knocked Slims from 80% to 10% in bone marrow,that,s after 4 cycles twice a week,with no heavy side effects.
Ask away Jo,if we can help you we…[Read more]

Hey Eve
Dont let the B U G G E R S Grind you down you both have gone through to Much to even worry about those that give you the shall we say " The Silent Treatment" its a sad indication to how our Dr's and Nurses (not all i hasten to add, if you are reading this Dr Jalihal or Nurses Helen (x2) Annie and Shaz and not forgetting my Little Tea Girl…[Read more]

Hi Dave
Tom said it you have been through the wars,and with the determination to walk again,I would say you are doing great,its a big thing,my hubby was lucky he had no compression of the spine,but a fair amount of bone damage.
if you have a look at under fifties there is someone on there who has eye problems ,I think that,s how Myeloma was…[Read more]

Hi Helen,
I felt the same way as you when Slim was in hospital and thought wait until he came home,but I was so busy,bathing and looking after him day and night,the complaint never got done,and my verbal complaint never was dealt with,he will never go on that particular ward again,and now I stand my ground I take the view I know when he is…[Read more]

Hi Dave

Well a warm welcome to this site am sure you will get a warmer welcome on here than you seem to be getting from the professionals 🙁

My you have been through the wars and done Bloomin well with it 😀 I can see this MM thing has got its hands full with you giving it a great fight8-)

As for the SCT after reading your past…[Read more]

Hi Benede, Passed I think? not sure what you were testing??

Tom x

Hi Gill
Well at least you are getting there,I know you said there was a good local doctor,who new about Myeloma,so that must be helpful if any thing goes wrong!!
How will travelling affect being on RCD????

We did have a week in Canterbury site as we had so many hospital appointments between us,it was cheaper and easier than travelling for…[Read more]

Thanks again for all your wishers,yes I did over do it a teeny bit!!!,i had Slims share as he does not enjoy a drink!!!.
He over did it by not resting enough,found all this energy,and paid the price on Sunday after the walk,has been sleeping most of the day and night,making up for not sleeping well on Velcade.
2 week of 5 cycle this week.
On…[Read more]

Hi Gill
RCD is the other side of myeloma X1 trials,Slim got CDT side,but we wanted the RCD,if that makes sense !!!
This is the one JET had and had such good results.As you know people are affected in different ways,but they can alter the dose,It looks if it will become one of the front line drugs for MYeloma but at the moment still a trial…[Read more]

Hows about YELLOW

LOW next

Jean x

Hi Min

A Warm Welcome Home 😀

I am very pleased you slept well both at nite and by the pool in the sunshine, its Good to chat to Peter and am sure we dont know of any Man that dare to answer back ha ha.

I know your guardian Angels as well as Peter are still looking down on you.

Love and Hugs (()))

Tom xxx