Hi That Brave Bridget 😀

First of all I thought I had replied to this thread a couple of days ago :-S Lord knows where its gone?? so if you find a strange reply from me on ANOTHER thread Just Tut he he 😀 .

Bridget you are so Brave 😎 when i was having to have My GCSV inj I said I could not do it:-( so this big Hairy A S S Docker took…[Read more]

Hi Sue and Tina
I have also been wondering how you have been getting on with these trials,and wondering about a few other people on here who are not posting at present.I think it is sad,that you feel you do not like to post with news that is not so good,this to me is what this site is about,be it good or bad,people are on here for help and to…[Read more]

Hi Jo
Sorry for not replying before,been a bit busy ,with trying to get soft furnishings as decorating finished,only trouble is shows up rest of it:-P

I would like a copy,thought they might put something on here about it,Debs went but she sounds very busy.It would be a GOOD idea if Myeloma UK did videos of INFO days,for people like us who…[Read more]

Hi Sarah and Henry

Hope all is going well ? for you Both, as for the urine infection I used to get that when I was on my CDT 🙁 but it was soon cleared up and I think it was because I didn't drink enough Water we need at least 3 Ltr a day :-0 and i found that hard work to start with :-S especially on my Off days :-/

Good Luck

Love…[Read more]

Hi Min

You paint a brilliant picture! Sounds like you are having a good time – nice to be with your son. I tried to find an alcholic drink for your letters – but no luck. But what about ANISEED – isn't that what pernoid is made from? Anyway EED.

Enjoy Min

Love Jean xx

Hi Dai
IT looks if Craig is the man that gets bits of my husbands body:-/more than I get at the moment LOL.

On a serious note I got the impression,that bone marrow bloods and urine go to Birmingham,which does the testing on Mm samples could be wrong!!!
If you want to speak to him look at third posting down on old correspondence will give…[Read more]

Hey Ted

Am sure like me you knew that was gonna be the outcome 😀 but a well done from me, roll on old age hehe and he aint realy 14 ha ha 😎
Keep up the good work Ted

From another "Onwards and Upwards" Guy 😎

Na then David

Great to have you on Board and a warm welcome from iccle ole me 😀

You are a little in front of me I was diagnosed Jan 2009 transplant dec 09 and as they say the rest is History, well as I am hanging on to your tail coat just you keep on that running "Onwards and Upwards" and dont let me catch you cos I can Run (well used to…[Read more]

Hi Gina

I hope all goes well with getting the stuff for your Mum so she can be at home.
And great advice Eve thats worth a thought hope all runs smooth for your forthcoming wedding Gina am sure your new hubby to be knows he has a good un in you:-D

Love and Many Hugs sent to you all (((((((((((())))))))))

Tom xxxxx

Gina
just to say good luck with the wedding,hope you have your wish come true.
If it is any help,A friend of mine,who,s husband had been told no more treatment,wanted to go on a cruise all though very ill,just wanted last holiday,doctor,s gave him steroids and he managed to have that holiday .just a thought? Eve

Thank you Ellen
For taking the time to give me a general explanation,I do realise you can not comment on an individual case,what you said I found very helpful,but brought a few more questions to mind.

The hospital my husband attends does have a PET scan also MRI,if some one had MRI scan on his spinal column only.How would it compare to having…[Read more]

I will settle for RED just remember it was a LIVERPUDLIAN who lives in the south and loves red wine and the colour red

IAN

LOL EVE

Hi
I have the same problem with expensive wine, I tend to drink the bottle instead of savouring it any wine snob would say I DESECRATED It
leaving TED

Hi Everyone
Slim does have a few marks on his tummy with needles,,he has to pinch the flesh as not much there to put needle into,I do not think I could do it day after day.Over six months now have been told that,s the least he would be on them,specially now he is on Velcade and the damage to his lungs although cat scan showed his lungs have…[Read more]

Hi Sharon
Its now November when do you have PET scan and results.
Slim had bmb expect results in next 10 days 1/2 way mark for Slim.
Eve

Hi Gina
how is it going have you managed to get your mum home.
just wondering how you are getting on. love Eve

Min

Glad you are having a good time. Weather here is terrible. Rain and a hurricane blowing where I am! It is ESSENTIAL that wind down. Mine's a G & T!!

IAL next

Enjoy Min
Jean X

Hi David
its just so nice to hear from a person who has gone through the mm journey,and come out the other side and has got his life back.

A big welcome to the site and I do hope you continue to post.

As you say everyone is different and some people have a longer and harder journey,which in its self creates more problems.
I have found this…[Read more]

hi Sue
You want to waffle go ahead,it does you good sometimes and helps when things go wrong,this site makes you realise how so many hospitals are different concerning treatment.
Slim is on Myeloma X1 trials ,so we do have to stick to a certain treatment,but who every devised how it was to be taken never considered the patient.
EG:VELCADE DAY…[Read more]

Hi Bridget and Helen
Defo late birds,was like that myself afew months ago, working hard to try to make sure I am not still buzzing in the early hours.:-/

Slim has been injecting himself for over 6 months now,no bruising but area less pliable,chose to do it himself as scared I would use him like a dart board:-P
To be honest I would be able to…[Read more]