eve replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years ago
Hi
I play scrabble with my daughters,the one in nz is whipping me some thing awful at the moment,we do it over a period of days,
how about ARRANGEMENT
I leave you with ENT
Love Eve:-)
jmsmyth replied to the topic About as ff Topic as you Can Get -2 in the forum Off topic 14 years ago
I'm like you Gill -a night bird. Have been playng scrabble with son in Kent for most of night ( he whopped me, brain in freeze mode) best I can do is NATION – ION next.
Love Jean x
jmsmyth replied to the topic Not New to the Forum in the forum General 14 years ago
Hi Ted
Frank is like you. He was diagnosd in Sept 2006. Only teatment was about 6 weeks on Zometa. We were at consultant today and I have to say it was the quickest appointment ever. We got there at 8.30am. bloods taken about 9.00am. Called into the consultant, she asked Frank how he was, he said "fine". She said his protein had come down…[Read more]
tom replied to the topic New to the forum in the forum Newcomers 14 years ago
And one that needs to be kept going He he
How are you doing Ted? hope all is well with you and your Grandkids 😎
Tom "Onwards and Upwards" 😀
tom replied to the topic Not New to the Forum in the forum General 14 years ago
Ye Ted I would ask Why I should stop the Longest thread On Myeloma Uk, am sure we should keep that one going strong?
Well am off to add to it now Lol
Tom "Onwards and Upwards" and wanting to keep the longest thread going 😀
jmsmyth started the topic Calling Elizabeth. in the forum General 14 years, 1 month ago
Hi Elizabeth hope you are well. You posted a few months ago (I think it was you)about the little recorder. I bought one and have been using it ever since to record the comments of consultant . It has been great to go over what she said as I never remembered all of it. Anyway we were at consultant today and I got into conversation with two…[Read more]
eve started the topic VELCADE SIDE EFFECTS. in the forum Side-effects 14 years, 1 month ago
Hi Everyone
There,s me saying Slim has not had any side effects!!!!:-P
Told you last week was not right,even stopped me going to London,didn,t want to leave him,just in case it was the start of something.
Well here is a new side effect,way down the list,so all you men out there on Velcade ,take notice.Slim complained of not feeling…[Read more]
eve replied to the topic Mum update in the forum Treatment 14 years, 1 month ago
Hi Gina.
So sorry to hear about your mum,you and your sister must be very worried,I can understand you not telling your mum until you know if its new cancer.
It does not sound good if its hit main organs,try to keep positive there is so much they can do these days,have they tested for this before,because she has been having lung problems for…[Read more]
eve replied to the topic "Subcute" in the forum General 14 years, 1 month ago
Hi John
Good news for you both,Our hospital is still talking about it,do not know if Slim will have it as on MYeloma trials,have to wait and see.:-P
We asked about it sometime ago,its going to be a tummy job,we asked could it be done like clexane,so we could self administer no such luck.
Glad to know you are both fine,look forward to…[Read more]
eve replied to the topic Hi I am new in the forum Newcomers 14 years, 1 month ago
Hi Sarah and Jenny
Just popped in to say welcome to the club.As you can see there are lots of people and carers who are ahead of you on this journey.
My advice to you is take it a day at a time,it,s a long journey both of you are on as patient and carer,so my advice to you both,is it,s a journey were some people do well and get of the bus…[Read more]
tom replied to the topic Hi I am new in the forum Newcomers 14 years, 1 month ago
Hi Jenny
Am sure you will sail through the SCT, wont lie to you though its not a walk in the park (but pretty close) we are all different in our response to the different treatments for the MM, But as I had a SCT in Dec 2009 and am now still in remission I would go through it all again if need be:-)
Am Pleased you have good family support…[Read more]
tom replied to the topic New to the forum in the forum Newcomers 14 years, 1 month ago
Good thoughts on your next visit Ted 😀
I know how you feel am same everytime I give bloods and am in remission 😎
As for the thread Ted have never counted the posts but am sure it could be a winner He he
Tom "Onwards and Upwards" 😀
91 posts Ted am sure its the winner He he
tom replied to the topic Holidays in the forum End of Life and Grief 14 years, 1 month ago
Hi Min
And you enjoy yourself on your Holls have a good time with Tony, and am sure your computer thing :-S work well when you are on your Holls.
Have a good Time
Love and Hugs ((()))
Tom "Onwards and Upwards" xxx
tom replied to the topic Hi I am new in the forum Newcomers 14 years, 1 month ago
Hi Jenny
Welcome to our (now your) site and social club?
Good Luck on your treatment and forthcomming Transplant:-D I had mine December 2009 😀 and doing great8-)
Its a challenge each day trying to fight what you used to do? to now what you can do, listen to your body and when it tells you to rest (and it will) then rest.
Love…[Read more]
jmsmyth replied to the topic Holidays in the forum End of Life and Grief 14 years, 1 month ago
Hi Min
I hope you have a fantastic time. Try and enjoy every minute.
Love jean xx
tom replied to the topic Gimme just a lil more time…. in the forum General 14 years, 1 month ago
Hi Mari am pleased you are both calmer and hope you are still same as its been a few days since I have been on here:-S
Love
Tom "Onwards and Upwards" xx
tom replied to the topic Birmingham Info Day Important info Cheap Hotel in the forum General 14 years, 1 month ago
Well done Peter, I have never been to a Info day either ? will I get to one?? Lord knows too much on My agenda but I will try to get to one, you never know I might enjoy it he he.
Tom "Onwards and Upwards"
tom replied to the topic Spots. in the forum Newcomers 14 years, 1 month ago
Hi Sandy
Am pleased you are avin the spots sorted 😎 I had a Rash after my SCT but no one seemed to worried about it and it went away on its own :-D.
After My SCT I never stayed away from people just made sre they had no Illness and I sailed through the Post sc bit.
Love to you all
Tom "Onwards and Upwards" xx
tom replied to the topic New and Help needed in the forum Newcomers 14 years, 1 month ago
Hi Deedee
How are things going these days? I have not been on for a bit so am just doing a "Catch Up"
Love
Tom "Onwards and upwards" xx
tom replied to the topic New and need advice on Myeloma XI in the forum Newcomers 14 years, 1 month ago
Na then Jim
A warm Welcome to this great site, it has some great folk on here8-)
All I can add is Good Luck M8 as I have not been on any trail, just ctd then stem cell transplant:-D all in 2009 and am a young (ish) 56 😎 Keep fit.
Hi Michelle
Am using one post instead of two (saving Ink 😛 )
I also wish your Dad well with his…[Read more]