Hi Jim
Just to say welcome.

Myeloma X1
Husband started trials February this year,allocated CTD side,did 6 cycles with a small blip in between had septic pneumonia 22 days in hospital not very nice,with hindsight,should have been on Clexany,from day one,this is not automatic,but would have saved a lot of problems with blood clots.
ON trails…[Read more]

Whaf about DERRIÈRE or is French words not allowed? If ok ERE is on offer if not …. ???
Jean x

David that was great. I was singing it at the top of my voice – Frank thought that I had finally lost the Plot!! Thank you – I know exactly where Julie Andrews is coming from.

Love Jean xx

Hi Gilly
Nothing surprises me these days,they have got in touch with there legal side before they approached you,I take it this stemmed from a written warning and a consultation,Well to put it bluntly they want you out,
I do not know your circumstances,or how much you need to live,but you can either fight them,but do you need all the hassle,they…[Read more]

Hi Christine
Cannot help you much on this one,except to say,Velcade did create a feeling of anxiety and general accident prone moments,not sure if it was Velcade,but put it down to doing to much and not drinking enough fluids.

Your dad must be feeling pretty bored not being able to do much,and being so young and active,surprised you cannot get…[Read more]

Hi Mal & Bruce
When I first read your posting,I thought,sct with kidney failure,that takes a very brave man,and you are just showing us it can be done.
I am so glad it,s going so well for you and wish you a speedy recovery and long remission:-)
Hope you are both home soon drinking a glass of bubbly to celebrate life.
Best wishes Eve&Slim
PS…[Read more]

Hi Gilly

I also swear by Manuka honey. My hubby has MM and I give it to him and I also take it. I did a bit of research on it and from what I gathered it is supposed to be a natural anti biotic. It is expensive – there are different strengths – the higher the strength, the higher the price!!

Jean x

Hi Peggy
just noticed your unfinished post,not that i can help you with side effect as Slim has very little,but can offer you some sympathy as its not very nice when these things are happening,
hope thing are a little bit better Eve

Hi Dai
It all ways seem to start at the weekend,horrible,feel you cannot trouble people,and know you are going to end up in A&E fighting your corner,Slim had bloods taken as par usual,but from getting up knows he is not himself,hospital says he is ok,but cancelled any plans for weekend.doubling fluid intake,ankles BIG,and just not himself.cannot…[Read more]

Hi Everyone
David how about Nosology,meaning the branch of medicine that deals with
classification of diseases

How about for OIL

OLIGARCH

love Eve

Hi Dai and Everyone else
I was not sure were to put this post ,and as this topic is included I thought you might like some % of are problems with meds.

As you know Slim did CDt 6 cycles now Velcade on 4 Cycle.=10 Cycles altogether to date.
Out of 10 cycles we have only had the tablets ON TIME twice making that 20% of the time,on the bad days…[Read more]

Hi Debs
We will not be making it tomorrow,left it till last minute,because it means a stay up there or 160 mile around trip,from the coast in Kent and Slim on first week of 4 cycle Velcade.
Been to the hospital this morning,for bloods,and he is just not himself,so tomorrow is out,was looking forward to meeting everybody,but either way with a dog…[Read more]

Hi Mal and Bruce

Pleased his temp has dropped, I used to hate it when I got them 🙁
and sleep is good cant wait til I get into my bed tonight 😀

Love to you Both

Tom "Onwards and Upwards" xx

Hi Dai

Sorry for the delay :-S not sure how I missed this post?? But a Well Done 😀

Am sure the Amoxicillin will throw that dreaded infection out 😉 so it will be an "Onwards and Upwards"

Tom "Onwards and Upwards"

Hi Elaine
Just popped in to say welcome,I am a carer and do not know how i would have managed without this site and all my cyber friends they have helped me so much through some bad times,so its all been worth while.and you also gain so much knowledge,and helps you to know what is going on in other hospitals.
Also what treatments are…[Read more]

Hi Deedee
Its all a bit mind blowing at the moment for you,but things will settle down,Its hard when they have been so fit,and now they seem so ill.
Thing will get better,and you will find that inner strength that you need.

I find it helps to find out all I can about MM it works for me,when things seem to be heading in the wrong direction,I…[Read more]

Hi Caz
Just to say welcome,envy your trip to nz,we should have being going this year have a daughter in Mapua.We will get there again was my husband gets remission.8-)

Once you know how much damage to bones there is,you will soon learn to adjust your strength will come back just takes a long time,some people sail through treatment other people…[Read more]

Hi Only me
Think Susan has covered most of it (if not all) its amazing how much you forget about what and when after a few months down the line? or is that just me:-S

Good Luck with the transplant.

Love and Hugs

Tom "Onwards and Upwards" xxx

Hi Gina

Pleased your Mom is getting on better:-D and dont go doing stunts with that wheelchair, but if your Mom wants to get it on you tube he he.

Love to you all and (((Hugs)))

Tom "Onwards and Upwards" with one or two wheelie's xxxx

Hi Mal and Bruce

Happy Anniversary to you both 😎 the wine will save 😀

Good luck with the treatment and its dreaded side effects:-S

Love

Tom "Onwards and Upwards" xx