Hi Etta's Hubby

Sounds like the symptoms I had flu like but i got used to that.

Tell Etta from me that she needs to let people fuss over her the more the better:-D

Just a reminder keep your eye on Etta's temperture and dont let it get too high.

Tom "Onwards and Upwards"

Hi Mike

Sorry to read about another one that has run out of optians on the drug front.

Tom

Hubby here….

We rang the helpline the hospital gave us this morning and they told us it sounds like she has mild flu symptoms from the Zometa and they will check back with us tomorrow morning to see how she's doing.

Thanks everyone for the advice, I think she's just a bit reluctant to let others fuss over her, but I keep telling her she's…[Read more]

Hi Etta

A warm welcome to the site, and you will soon settle in (its like a old pair of slippers to me warm and cosy)

Now what to say? well I was on CDT as a first response to My MM in Feb 2009, yep loads and loads of pills:-( as for the reaction I was very very tired during the CDT that I had to go on the sick:-/ I was on the sick for…[Read more]

Hi All
I love all this glorious weather we are having,it is a real bonus,it makes so much difference to our days,people walking round with a smile on there faces , i just wish it would not end.8-)
I love that Slim has decided he wants to go out as a family for his birthday,one daughter will be missing in NZ.to me it means he is feeling…[Read more]

Hi All
Nice simply one
STICK

ICK next love Eve

Hi Min
I can just see Daisy telling everyone about you wetting yourself,LOL,You made my day,
The dogs will get you out of the bed in the mornings,just take it a day at a time.Love Eve

Hi Clare
You must be worried after 6 courses of CTD then a rise in light chains,best to ring hospital tell them your worries,you will be able to see your dads consultant early.

Slim had 6 cycles of CTD seems to be on path for remission,when they took bone marrow found MM had gone up,but light chains were down:-S,left us shocked,spoke to nurse…[Read more]

Hi Jo
Well come on tell us,did he wine and dine you!!:-)
As much as i love Slim he cannot even remember my birthday with out my daughters telling him,so not holding much hope for first wedding aniversery.

Saying that he did buy me a bunch of flowers twice in thirty years not bad,and not from a garage forecourt,sainsbury,s more up market…[Read more]

Well said Mavis I agree,Eve

Hi Roz
Sorry if i got it wrong,I know how hard it can be to live alone,specially at weekends,the door shuts on friday and thats it till Monday .
I am not very good at explaining myself,I myself have my own isolation,because I am deaf,I am suppose to were hearing aids,but I hate them,so it,s not so much physical as mental isolation that I was…[Read more]

HI Etta
Mind blowing,but do not worry you are not alone,Slim my husband did 6 cycles of ctd and there are lots more people on this site just like you.
Love Eve

Thanks for the replies!

Eve: I'm on the CDT (tablet form). Got a whole heap of tablets to take some days, but only 8 on the none chemo and steroid days, plus the daily injection (which I was really nervous about doing but I'm getting there slowly).

Didn't get any of the anti-sickness ones (they're in my little red book) but she just said…[Read more]

Hi Gill
No not that good looking LOL:-P
Tried reducing pictures but not having much luck,eldest daughter tried,she could not do it.
But at least i have managed to get a photo up,no way am I going to put one up of me that close up LOL,its bad enough looking in the mirror.:-D
Love Eve

Hi Dai
here,s to today a new day,and Velcade 7,good luck.
Love Eve

Hi Mike
In full agreement with you,think its very important for MM people with no siblings,but were do you start,even I do not know the basic and I try to keep myself well informed.
So the people without MM it must not even cross there minds.
Would take Myeloma UK to start information on this one.Regard Eve

Hi David
Wonderful news,I hope you have a couple of holidays planned,and enjoy this new found freedom,no visit to hospital until end of year that in it,s self would have me dancing . love Eve

Hi all

ANTIPASTI (would love some)

STI next

Jean x

Hi Etta
Welcome to the site,and to your journey,one that no one wants to be on,but we are,Yes it is all a bit mind blowing,so much to take in and learn it will get easier as time goes on,treat it like a big learn ing curve, any questions ask away,

You do not say what chemo you are on,and it can effect you!!
You should have some sickness pills…[Read more]

Hi Terry
All the chemo differ in how you take it right across the country except if you are a part of a trial,Slim is on Myeloma M1 trials.So it is closely monited and you basically cannot divert treatment.so now on CVD.

Peter had a course of Velcade and then 3 years remission and still going strong.
Slim is doing full 8cycles as light chain…[Read more]