Hi Cathy
My names Eve and I am a carer,6 months ago i was standing were you are now!!
I can only tell you this site is full of nice people,who will try to help and keep you positive as much as they can,they will be there for you in good times and bad.
Some people sail through this treatment go in to remission,and we all cheer
Some people do…[Read more]

Min
You are right,Slim made me Laugh the other day,he now worries something will happen to me,he said to me "you do realise if you get ill i will not be able to look after you" I found that very sweet. I promised him I would not get run over by a bus. LOL
Eve

Hi Bridget and Min
Just what i need,informed fact with a bit of humour,thought i might be upsetting Dai before his holiday and i would hate to do that,have been sitting thinking consultants just do not have the time to explain,we should all get these results without having to ask for them,and as you say Min an idiots guide to help us.
I do get a…[Read more]

Hello Cathy

I am sorry that you are in the position to join our gang. You are very welcome. I am also a carer. My hubby has SMM and not yet in treatment so I don't know much about it but rest assured that these lovely people here are a mine of information. Someone here will be able to help or advise where to go. They will support you – as they…[Read more]

Hi Dai
I am not being stupid am I???
If Kappa light chains results are correct!!! bloods are correct!!! why is there 80% Myeloma in marrow!!!
If I new the answer!!!

After the last results in may we had a telephone call to say bence jones kappa light chains were down,but Slim did not ask how far,since then I have been waiting on results,when…[Read more]

Hi Dai
This is getting interesting!!!! I know that the results come from birmingham university.I have some results.i was told that Kappa/lambda was the important one and they read as followed

22/2/11— 258.458
15/3/11— 239.611
05/4/11—- 121.425
31/5/11— 14.672
I have not yet been given June /July/August results I have asked…[Read more]

Hi Dai and Min
Slims on Meloma X1 trials,he has Kappa Light chain MM.After the first Stage of treatment,24 hr urine bottle and bloods every cycle,they did another bone marrow biopsy and to there surprise found his mm had increased in bone marrow.
I think what they normally assume is urine kappa light chains down,then you are in remission,not so…[Read more]

Hi Dai
if you can,i would like to ask you a few questions or if anybody looking at this post who could answer them,
Its about the Velcade,Slims on 2.3 at the moment 2 shots one Tuesday and one Friday, 9 oclock bloods then although told to come back at 1 oclock did not get jab till 3.30 .left home at 8 got back at 4.30. (screaminggggg) poor dog…[Read more]

Min
Why an earth are you running yourself down,i know how tired and shattered you must feel and how worried you are,but to think you are not a good carer against the professionals!!!!!!,
You are for getting you are married to an ex service man who,s form of defence is to attack ,and the sad thing about this in a few months he will not remember a…[Read more]

Good for your Dai
Life is for the living and its your duty to live it to the best of your ability,,even with one leg bigger than the other.:-P
Janet must be a very brave lady letting you drive,Slims on the Dex and once more has been band!!:-)I love driving LOL don,t tell Slim any excuse to get behind the wheel.
Tomorrow is another day.Eve

Hi Dai
At least you have explained to me why I am always laughing,Never looked up the Wilki for meaning of Gallows Humour just thought it was me,always have a weird sense humour,some times i find myself laughing at the weirdest things, I just thought it was the scouser in me,plus the pills [magic].As long as I am laughing and not crying,that,s…[Read more]

Hi Min
Just here to send you good wishers,Eve

Hi Bridget
Instincts are a wonderful thing,and we all need to listen to them,as you say you know your body best,better to deal with it,!!!.
Min i thought you have been too quiet,I know what you mean about so much bad news,but that,s what people are here for to help to laugh and cry with you,you yourself made me realise,there is someone out there…[Read more]

Hi Ted,
No you are not the only man on here,if you look at the average person to have this diseases its,men of black race age 70 years,???? I know but thats what facts and figures say.:-P
I think,we see more younger people on this site,because the average age on people who use computers are younger.
We have 2 Davids and a smiley Tom,plus are…[Read more]

Hi Liz
sorry you have had to join this site,but you should find help here.
I think the section that might be more help would be related conditions,
I have no knowledge of anybody with this condition,but i do know mm attacks the soft tissue sometimes.
You could also try the myeloma nurse on this site,phone or send e mail,she helped me with some…[Read more]

Hi Sally
I am a carer for my husband,If I am honest as much as my husband use to be a very capable man,this mm has taken an awful lot from him,and he would be the first to admit ,he does not know what he would have done without me,saying that my husband had septic pneumonia and ended up 22 days in hospital,he has always been a fit man,ex royal…[Read more]

Hi Everybody
Min the problem with dex is we do not have it to take,in the morning,trial day one take vcd,will not give us dex until blood results come back .so 9 for bloods 1 oclock for injection then,rest of meds sent for got out at 3-30 in afternoon.Stupid i know,were did commen sence go!!!!!!
Bridget I asked about picc line after reading…[Read more]

Hi Ted
Never forget you are 80 years YOUNG,happy birthday,A life is a Life and you make sure you enjoy every minute of it.:-)

As Bridget say Gp come across Myeloma may be once in there life time,I changed my gp to another one in the practice who had a little bit more knowledge and was willing to learn more about it!!.
Please,do not feel,a…[Read more]

Thanks Everyone for your replies
We got there at 12.30 for a one oclock appointment.As the bloods were taken previous day ,Saline drip first injection into it then more Saline sounds easy.left hospital at 3.30.Slim had to take tablets on same day so dex taken on the way home,he has been up most of the night and this morning more dex.so full of…[Read more]