eve started the topic Myeloma X1 stage 2. in the forum Treatment 14 years, 3 months ago
Hi Everyone
Apprehension was right,Slim after starting trials in February and having a few ups and downs on the way finished 6 cycle two weeks ago,and we were left in limbo not knowing what the next path he was going to take.!!:-(
Had meeting 2 weeks ago,not going to recommend SCT as holes and blood clots on lungs!!!,awaiting on…[Read more]
eve replied to the topic Home At Last in the forum Treatment 14 years, 3 months ago
Hi Keith
glad to hear the good news,so nice to hear someone is doing well,The sea air is wonderful,I do not think I could live far from the sea its in the blood,i actually need to be near the sea.
best Wishers eve
jmsmyth replied to the topic Hello All, Michael's garden is done in the forum Off topic 14 years, 3 months ago
Hi Roz
Good to hear from you. Michael's garden is lovely. Did you do the design yourself? I just loved the garden seat – as my grand daughter would say – cool. Enjoy it – you deserve to.
Love Jean x
jmsmyth replied to the topic Treatment in the forum General 14 years, 3 months ago
Dear Gaye
I too have been thinking about you these past few days, so it was great to hear from you. You are a very courageous lady. You have fought this horrible disease with bravery and have given strength to many on the forum. Thank you for all your wisdom, knowledge and empathy that you have given to us all. You will be in my thoughts and…[Read more]
eve replied to the topic Treatment in the forum General 14 years, 3 months ago
Hi Gaye
I came on this site the end of February just as you went off,I saw your posting on trying new drugs ,about getting approval ,and your problems with pain control,I went back over your old posting to try to learn from your experience and I did,thank you for helping new people on this site.I like many others wondered what had happened to…[Read more]
eve replied to the topic Baloon Kyphoplasty in the forum Carers 14 years, 3 months ago
Hi Min
Glad to see you have posted at last was worrying,as all your posting was about other people and not how Peter and you were.:-)I hope it all works out for you on Monday,and Peter starts to feel better,now his back has been fixed
We need some good news on this site,so keeping fingers crossed that Peter is the turning point!!!,will be…[Read more]
eve replied to the topic Patient view/opinion for a Royal College of Pathologists / Association for Clinical Biochemistry in the forum General 14 years, 3 months ago
Hi Craig
The Problem is Craig,you need someone who has been through the whole system of varies drugs,with all the problems that go with it,these people do not plan that far a head.As you may understand they do not know what will be happening by November so no one can offer you a guarantee!!!!.Even carers like Min who are very well informed,have…[Read more]
jmsmyth replied to the topic New to the forum in the forum Newcomers 14 years, 3 months ago
Hi Ted
My husband Frank was diagnosed sept 2006 and is not on any treatment. When first diagnosed he had Zometa every month for about 6 months. He sees consultant every two months. He has had a few set backs. At moment has severe pain in side. He had something similar before but turned out it was muscular. This time he reckons it's his ribs.…[Read more]
eve replied to the topic Bendamustine Clinical Trial in the forum Treatment 14 years, 3 months ago
Hi Susannah
I have been following you post,but as you are head of my husband ,have not posted,posting now just to say even though you don,t know me,I am wishing you all the best and hope you have Michael home soon.Eve
eve replied to the topic mums in hospital again. in the forum General 14 years, 3 months ago
Hi Gina
Sorry about your mum,Its not knowing when to make that call,thats the hardest thing,don,t we get conflicting info,telling you to see your doctor!!!! I have been told that if Slim is ill i have to take him to hospital as they can tell within half an hour if he has an infection,and the first couple of hours are crucial !!!
Anyway I hope…[Read more]
eve replied to the topic Tube Free at last in the forum Off topic 14 years, 3 months ago
Hi Gill and Stephen
Keeping my fingers crossed for you,it must be a horribly waiting game for you both,plans on hold until you find out,but France beckons.:-)
it is lovely to have some good news,and i hope by the end of this month,you will be over the moon,and making plans.
Slim is in limbo at the moment,with ctd stopped and conflicting…[Read more]
eve replied to the topic Velcade Cycle 5 – Update: in the forum Treatment 14 years, 3 months ago
Hi Dai
I hope you had word with the tech who did the scan!!!
Janet this is a message for you if they only give you to pairs of stockings go out and buy more,if you have something the size of a bottles when washed put them on bottles to dry,trick i learn,t,if you want to save money have a swear box handy,because you will be .>:-(.
On a serious…[Read more]
jmsmyth replied to the topic Hi Folks (old and new) in the forum General 14 years, 3 months ago
Hi Mary
Well done you are very brave. The more money that can be raised for this blo**y disease the better. My pound also winging its way. Don't be petrified when you do it. You will be fine. Where in Ireland. I live in the North. Good luck
Love Jean xx
tom replied to the topic Elderly dad in the process of being diagnosed in the forum Newcomers 14 years, 3 months ago
Hi Pam
So sorry to read your Dad Passed away,Hugs sent (((()))))))) Condolences sent to you and your Family
Love
Tom xxxx
eve replied to the topic Patient view/opinion for a Royal College of Pathologists / Association for Clinical Biochemistry in the forum General 14 years, 3 months ago
Hi Craig
Do you see what i mean about Dai,i hope you have signed him up.sorry no pressure Dai!!!!:-P .I think he would be ideal!!!
To Dai,boffins are no different to me and you,i have a good friend who use to be a boffin,and on a social level you would not have known it,
no pressure Dai.Eve
eve replied to the topic dad just diagnosed at 48 in the forum Newcomers 14 years, 3 months ago
Hi Pam
So sorry about your dad,I know what you mean,when you look at other postings and this mm has no age limits i think the youngest is 29 on this site,also young mums with very young children.:-(
To me a life is a life and does not have age barriers,you still loved your dad and cared for your dad and did not want to see him with any more to…[Read more]
eve replied to the topic Patient view/opinion for a Royal College of Pathologists / Association for Clinical Biochemistry in the forum General 14 years, 3 months ago
Hi Craig
It is nice to think someone actually wants to know what we think!!!:-P
There are some wonderful people on here ,Like Dai who moved from Wales to Nottingham for better treatment,he is not posting at this moment,which is unusual.Could not get in to your RCP Path email address to check you,thought I would let you know!!!.
I cannot help…[Read more]
eve replied to the topic The Joys of Revlimid!! in the forum Side-effects 14 years, 3 months ago
Hi Helen
It is Tom,On wards and upwards,he has not been on for awhile,so it is either his cucumbers or he is on holiday:-)
i know what you mean though ,he just makes you smile.Eve
eve replied to the topic Latest ideas on Myeloma treatment fro Dr Jim Berenson in the forum Treatment 14 years, 3 months ago
Hi everybody
i went through all his work,the arsenic and vitamin C one,impressed me,the patient concerned was given 2 weeks,and he was still alive 6 years later,he summed it up,he was keeping him on top of the grass LOL.
he seems to trying lots of different combinations with different drugs,
Anyway Jo Off to hospital today for bloods,and made…[Read more]
eve replied to the topic Gordon in the forum General 14 years, 3 months ago
Sarah
What can i say,my heart goes out to you,it does seem so unfair ,you must be heart broken.I thought you might have had a little bit more time together,to adjust to the situation and reflect together on all you have shared,but time ran out.I am so sorry Sarah.
Take comfort,in your grandchildren, life goes on,you will look at them and see the…[Read more]