Hi Eve

So glad to hear that Slim is heading in the right direction. He's had a real rough time. Also good to hear that you had a positive hospital experience. My best to you both. As Tom says "onwards and upwards".
Love Jean. xx

Hi Jo
Thanks for asking after Slim.
Bloods,kappa light chains all going in right direction,on 6 cycle of ctd.
So why am I not running round in circles cheering!!!!do not understand it myself,considering the position we were in a few months back.Slims slowly getting stronger.
Appointment end of July with consultant,bone marrow test will be…[Read more]

Hi Everybody
I agree ,go with the flow,but what do you do when,you are a carer???
Slims lost so much weight with being so ill,it is very hard to feed him up,I buy all this lovely food,the fridge is so full with tasty morsels and he eats a bit and says (I have gone off this),I think to myself I cannot waste this and eat it,tried giving it to the…[Read more]

Hi Dai
There,s me thinking you had gone off on holiday and not told us,in case we were jealous 😉
Glad your back,you have been missed(a little bit).:-)
These things do not go unnoticed when are lyric and musician man goes missing without a telling us:-( as they have chucked you out,bruised and batted, but fit for duty,we hope to be hearing…[Read more]

Glad to hear from you Bridget. I hope they get pain under control soon. I do miss your posts.

Love Jean xx

Hi all

Good on you Gill. I would love to do that. Frank would have a heart attack if I did. He would be the "bolshi" one. He has never suffered fools gladly. Sometimes it can be embarrassing but one thing all our friends know is that he will never talk about you behind your back, if he has anything to say he will tell you. Before Frank…[Read more]

Hi Bridget
Nice to hear from you,sorry they have not got the pain under control,funny the way some drugs work for one person,but not another,go back to what works,Try to enjoy the day,it is lovely and sunny down here on the coast.
Best Wishers Eve

Hi Gill20
May i just say everyone seems to suffer with bowel problems.You have to make sure you take a laxative on a daily bases otherwise you have a build up,even then you will find yourself needing a toilet very very quickly,after awhile it becomes the norm.part of the course with the medication.
Gill the one in hospital,my husband has been in…[Read more]

Hi Jo and Jean
I have been thinking the same,Min Angelina Bridget Dai even Tom .May be they have taken a holiday,May be no news is good news!!!!!.Enjoying the summer weather while it is still here.
Nice to hear from you Jean,and you Jo.best Wishes Eve

Jo I was wondering the same thing. Hope all is well with you Bridget.

Jean xx

Hi Gillian aka Gill C 😀

Good Luck with it all and you seem to be doing ok with it as for the sickness I was on antisickness tabs for months after my SCT, and the bowels am pleased its a distant memory 😎 yep Control never in your life I dare not go far from a loo after anything to eat or drink as it didn't stop long, Lord knows how I got…[Read more]

Hi Gill
I have to say as a carer I have mellowed,may be it is my age rather than Slims condition,to me this mm just puts things into perspective,life to short.So i have learnt to count to 10 before I speak.
Slims a different kettle of fish,has never suffered fools,when he comes off dex,it is highlighted a lot more ,not nice i find myself…[Read more]

Hi Everybody

Sarah you seem to be going through the mill at the moment,were will you be going from here,is dex to build Gordon up for next round of drugs?.
Keith you sound if the whole lot is getting you down,but as you say there is always someone worse off than you,its just trying to put everything in perspective,Do we build are hopes up,to…[Read more]

HI Jeapal 23
Thanks for info on insurance,cheapest that I have seen,have been looking for awhile.
Hope to book something when we know results end of July also thinking of trying to make nz to see daughter so insurance is very welcome
it gives you so much to look forward too.
Hope you have a wonderful holiday. eve

Hi Helen

Pleased you are finding the info Good for you all:-D and its great to hear about others that are raising money for the dreaded MM:-(

As for the Stem Cell transplant:: oh what can I say?? well to be honest I feel that is has been well worth the off days that I had during my "Recovery" and to be fair it was (cept the growth…[Read more]

Hi Claire

Min has explained it spot on. My hubby was diagnosed 5 years ago with smouldering myeloma and the only treatment he has received is Zometa. That was right at beginning of Diagnoses. He sees his consultant every 2 months and is monitored very closely. He gets what he calls "power failures" and just goes to sleep. I think we are very…[Read more]

Hi All

Just to let you know I only eat Cucumbers in our Cyber greenhouse, I cant stand the things ha ha.

But the Red wine now thats another story oh and the Vodka I was given a bottle of Vodka with lime, just tasting it tonight and its very nice and refreshing (and i aint in my Cyber greenhouse)

Hope you all have a great Week End :-D…[Read more]

Hi christin

Looks like your Dad's team are doing a great Job for your Dad 🙂 as for your Dad not being able to concentrate I was same after some of my first lot of treatment and when i told my Nurse that "The Brain's Gone" she laughed and told me I had Chemo Brain see this Link…[Read more]

Hi Sarah and Mum

Sorry you had to join but am pleased you found us, we have great people on here that can and will help you and your Mum through all this MM stuff, sorry am not in sam area, am in Scunthorpe North Lincs.

Good Luck with your Mum's treatment and I hope all goes well.

Tom "Onwards and Upwards" xx