Hi Bridget

It will be worth it in the end,I had mine done just as Slim was diagnosed,had been arranged earlier and felt,I had to go ahead with it.
Believe it or not it kept me sane,I was so busy with kitchen and bathroom ,and Slim being admitted I did not have time to feel sorry for myself,saved a lot of money not buying gin lol.
After Slims…[Read more]

Hi David

Yes I am told that the Zometa messes with your teeth :-/ but am pleased to say (touching wood and fingers crossed) I dont have a problem with mine:-D
pleased yours is now on the mend 😎

Tom 🙂

Hi David

Yep still up and runn:::::::::::walking ha ha, and yes your red wine and cumbers did me the world of good 🙂

One "Upwards and Onwards" Tom 😀

Hi Jo

No not possible round trip of at least 160 miles,journey alone with bone pain would be bad for him.

It,s not so much the myeloma trials,It is the conditions which seem to go hand in hand with it,Slim complained of pain in side for a long time,we thought bone pain, when the cat scan was done turns out lots of wedge shape holes plus…[Read more]

Hey Roberta

Trust me girl you dont sound Crazy (well not as crazy as I) and if you need to vent what better place than here amongst friends and nearly Family 😎

Its a great thought if we all moved into an Estate (near a hospital ha ha) and then we would have neighbors that knew we get grouchy and tired after a hard days work. it could be…[Read more]

Hi Bridget

Its good to know they are with you and very knowledgeable in the drugs regime that needs to be used, I dont have a Mac Nurse, but hope if I need one she/he is as good as yours 😀

Like David I am pleased to say I am pain free (ish) unless I push myself too hard:-S

All the best on this wet Bank Holiday

Tom "Onwards and…[Read more]

Hi Min and peter

Sorry to hear about treatment causing a Bloomin big blip in both your lives, I cant add nothing to the good points above as I am still in remission so can just send my Love and Hugs to you Both.

Tom xxx

Hi Carol

Sorry to hear about your Pain:-( no one should have to suffer the pain.

I see you do Horse riding (they scare me) I hope it isn't that that causes the pain? I know after I do things at home/garden I normally suffer a bit of pain.

I am about 16 Months post stem cell transplant and am in remission.

Good luck on your pain…[Read more]

Hi Angelina

Yes I can relate to your post,not as bad but very frighting,Slim has had a few bad times,being an ex marine he has seen and been in many bad situations,but these nightmares he tells me are so frighting,had about 4 in itu,panic attacks they said ,but when we talked about them,they were nightmares.Must admit at time my thoughts were…[Read more]

Good Luck Min

Wish I could help you more ,no knowledge of treatment as you are ahead of us on this journey,Peter is a fighter and I think this goes a long way,I wish I could say more in words to comfort you,but we all know,these are desperate times,
Too stop my self from loosing the plot,I now resort to popping a pill,tried g&t,not a good…[Read more]

Hi Alastair
Well I can tell you its not in South East Kent,Read my previous post it will give the general idea.
If we could manage London I think we would go for that,health wise not advisable for my husband.
Its not so much about the treatment,I think its roughly the same.Myeloma X1 trials are you best hope,if you have not started…[Read more]

Hi min
You know how I have been feeling these last few weeks,and you gave me so much hope,it will all seem so different in the morning,it is the night that does this to us,to much time to think,to much to ponder,The morning will bring fresh hope, please be strong,
You told me not to give up on Slim,he is getting stronger,when things look bad…[Read more]

Hi Roberta

I could echo all the things said here,But I think it all depends on the type of person you are.I feel the need to put everything right,it is sometimes impossible.

When there is a tragedy in your life,this is when you find who your friends are,and who needs fair weather friends. As to relatives its a different game,may be they do…[Read more]

Hi Dai

Well a whispered "Onwards and Upwards" and do you know I pressed the key pad real slow and quiet lol when I typed that he he.

Am Pleased you are feeling better albeit with a lack of sleep 🙁
Good Luck with it all.

Regards

Tom "Onwards and Upwards" 😎

Hi Angelina and John

Hey dont we soon get better 😀 I recall after my SCT I asked when I might be going home on my 13th day and was told it will be about 7/10 days all being well 🙁 but 3 days later I was packing my case and heading home 😎

Took me some time to get into my eating habit dint ever think it would come back but hey ho its…[Read more]

Hi Dai

So sorry to hear about your "Bad Stint" Hope it gets better soon 😀

Not one for the written word Dai, but strength has always been my thing (in me head lol) so I am sending some of mine 😎 So if its "Only" (love the way you say it) a matter of pain well you and I plus others can beat it. all the best with it

Regards

Tom…[Read more]

Hi Liz

Am pleased it all got sorted, as I said I never have to suffer pain at all (hope he is correct ha ha)

Good Luck and hope the upt painkillers help 😀

Tom "Onwards and Upwards" xx

Liz so glad to hear that it was sorted.

Love Jean. xx

Dai you have done it again. Typing this with tears on my face. You have a fantastic gift. Janet is a very lucky woman. Long long may you be with us.

Love and best wishes
Jean xx

ps Min no matter who wrote it was beautiful and you shared it with us. Thank you. xx