Hi Bridget and Min

Thanks for confirming it,s not me going mad ,just tired.At the stage Slim ,s going hot and cold both awake all night then hospital for consultant.He had not been given zometa into 6 week of treatment,told tuesday when taking blood,no zometa,told thursday phoned lunch time to make sure not forgotten phoned back come in 1 hour…[Read more]

Jet

having hyercalcaemia is bad and with the akf,Once you were put on drip with in 24 hours you would have seen a good improvement,drinking lots of water to flush kidneys out helps skin.Water seems the key to having good effect on skin and hair flushing excess drugs out of kidneys is important.The bone infusion helps with the pain relief.there…[Read more]

Hi Mike

sorry you are joining this club,but you will find it an experience in it self. lots to look at and lots of info here takes sometime to take it in.
My partner is coming up to 3cycle of chemo 21days of ctd myeloma x1 trial.

This site has helped me a lot,some great people on here,have a good journey

Hi Jet and Bridget

I do not think gender is the key,My partner on ctd takes 20 tablets 2mg dose 4 days running then repeats dose after 7 days.his chemo cycle is 21 days!!!!

has a good quality of life when on dex although a bit short tempered,takes a few days off dex and is very very tired,hot and cold,not wanting to eat.

The strange thing…[Read more]

Hi bluebird

my sympathy to all your family,My partner has mm,and it is hard to deal with,IT is rare only 3000 cases a year in Britain most doctors will only come across it once or twice in there working lives.the symptoms can be many illnesses,only bone marrow test will confirm 100% that it is mm.

Most people put it down to back…[Read more]

Hi Gill – very good!

Jean xx

Hi Bridget

Missed that one alltogether. Will try Iplayer when I get back. Sitting in sun with a large G & T and it is only3.05 here. Bad aren't?

There is anothe programe on Sky called "MEntal" He is a psychitrist ( don#t know how to spell it.) But in one episode she was explainiong to him that she had Multiple Myeloma and was in…[Read more]

Hi Gill

LOL needed that,eve

Hi Keith

Pleased it is going good for you 🙂 as formeav got to grips with it on Good days:-D and am not having any treatment Cept Zometa infusion:-S

and Debs as for the feet mine also but thankfully no pain some time they just feel fatter:-/ or that I have something under my toes like wool:-0

And Gill ur comment ::::::::Stephen…[Read more]

Dear Susan

I am so sorry you lost a brother to this dreaded MM, and also give you my condolances on the loss of your elder brother, Life is so cruel.

I see you have just joined us, please stay with us am sure we can all rally round and help you in your hour of need.

Love Hugs and aslo Prayers sent to you and your Family.

Tom x

Hi Tracey

I have just arrived in Spain and on the aircraft I also read the story and could not wait to get to a computer to tell it. I was feeling so down and it is such a "good feel" story.
Best wishes Jean x

Hi Perkymite

At least you have a good chance of not being infertile LOL,Perkymite what a lovely nam on wards and upwards 😛

hello Mark

My partner has tumour on spine plus damage to spine.Stared straight away after test on Myeloma X1 Trials.He was given ctd side for test.Intensive pathway decided now on 36 day,has good days and bad just go with the flow.

Mark you will be having a big learning curve with this illness.We asked short medium or long term and was told…[Read more]

Thanks Min, you made me laugh! I hope its not too long before you and Peter get away. I have checked the weather forecast and temp is round about 21 with only 1 day of rain. Any weather is better than N Ireland.Where we live we had terrible stormy wind today. Temp not too bad but at least we will actually see the sun.

Best wishes to you and…[Read more]

Hi Mari

Thanks for the good wishes. We are packed and ready to go. Pain is still there Frank says the only ease he gets is when he takes Diazapan. I intend to try and enjoy but poor Frank I will be watching him like a hawk. Hope Steve is ok, how's the training going?? Well done him.

Thanks, best ishes
Jean xxx

Hi Ozzy

I was told I had MM in Jan 2009 had 5 sets of CTD, went on sick at the start of 3rd cycle, (manual job) had SCT 3rd December 2009 out by the 16th December, still not feeling too good for the Xmas, but felt 100% better 2nd week in Feb :-D, I still went out for walks and the pub when feeling Ok,went back to work may 2010 had about a year…[Read more]

Hi Mark

So sorry to hear about your dad. I am sorry that I cannot give any information or tips but the fantastic people on this site will give you all the support and advice. They have brought me back to sanity on many of ocassions.

Although I can't provide any help, I posted to bring your post to the front (if that makes sense?0

Best…[Read more]

Hi Gill

Tell Georgia a BIG thank you from me. I echo what Eve and Bridgit say – you must be so very proud of her and you have every right to be.

Love Jean xx