HI Gill
Your posting has just burst the dam that has been cracking for a long time.eve

Brilliant news Shirley (Cheshire cat). So happy for you and your sister.

Love Jean xx

Dear Dai

I also am sorry to hear your news. Although I followed your posts, I id not know anything about your treatment. What I do know is that you are inspiration to me and am sure a lot of people on the forum.

i hope the new treatment goes well for you andd as GAye says your fighting spirit comes back.

My very best wishes

Jean xx

Hi Pamela

So glad to hear from you and am glad that you are feeling more like your old self. You have had a rough time. No Frank is not off his food – he has never been a big eater. No sign of sickness, but I will look out for it. He is all go – although he doesn't sleep much. We are ging to Spain on Friday, hew wants to to go Grand…[Read more]

Eve

I am so sorry to hear that Slim is having such bad time. Frank was diagnosed by accident (??) Went for something minor and dr did tests and and consulant after bone marrow sid Multiple Myleoma. I never heard of it. Our Dr did reseearch on MM but then retired last year and new dr hasn't got a clue!! A Good thing the other doctor took…[Read more]

Hi Jean

Yes Slim had been ill for more than 6 months,In a lot of pain,wanting to be sick,not eating,doctor put it down to tablets.Slims problem is he has a high pain threshold and an attitude a little bit of pain never hurt anybody.
I came across as a screaming banshie with attitude,not good when you know something is seriously wrong and…[Read more]

H Eve

Thanks for the info, I will look out for that. Dear help him I watch him like a hawk. I have been trying for years to do it his way but I will have to try harder. He is not going to like it, but I have a list of questions to ask consultant and I will tell her about the pain. We are going to Spain but I would much rather be at home but…[Read more]

Hi Jean

I know its hard,but if Frank will not make his feelings known to doctor,you have to accept it is his life his choice.He wants to go on holiday!!If bone damage is there 14 days will not make any difference,If he starts wanting to be sick,then calcium is getting into blood stream its called hypercalciumer ,spelling might not be right but…[Read more]

Nigel I know you are right but this is causing so much friction. I know if I keep going on at him he will not tell me anything about how he is feeling. He is so adamant that he knows his own body so I am having to put things on hold for 2 weeks and then have a long talk with consultant. He will hate that.

Min you are right about putting…[Read more]

Hi Min

Frank went to doctor and guess what – muscular. I asked him to ask dr for an xray but was told again (by Fran) that they only xray bones and not muscles. He is so looking forward to Spain. His appointment with consultant is 14 April so I will phone and ask for him to see consultant rather than registrar.

Min I bought that pack…[Read more]

Hi Jo

Thank you so much for your kind thoughts. He is going to see GP tomorrow but our GP knows nothing about Myeloma. I admit that I am so scared, I wish he would see consultant, or at least go for and xray, but it is in Gods hands now.

Glad you enjoyed Grand Canary. Frank was saying today that he would like to go to Maspolamas in…[Read more]

I also needed that John. Thanks
Jean x

Hi meeuu

i needed that joke at five this morning still lol,have you any more ?

You are so right Eve. Slim and Frank sounds like clones!!! Frank was a late baby ~(although has brother and sister) but his family doted on him and he always got his own way, and still expects to get his way. He really does not understand what is going on my head. I also think that his "on mindedness" (is there such a word) will help him with…[Read more]

Hi Jean

Frank is so like Slim!!!!!,If Slim new about me talking on this web site he would,go off on one.He was a commando marine for 22 years,use to being obeyed the only good thing about him being so stubborn is it just might be the one thing that helps him on this journey.He is a fighter with the believe he can do it and in my own way admire…[Read more]

Hi all
Thank you all for your responses. I can relate to points on all of your posts. Last week when Frank was in so much pain, I could not take any more and I told him that I was going to phone the Myeloma nurse or the doctor. He went ballistic. Kept on about it not being in his ribs and as you say Min ?I know my own body, and this is…[Read more]

Hi Jean

Is a holiday going to make any difference to treatment?

I have one of those men,who would not listen to me,So he has stage three MM. he has all ways been like this,you are not going to change him End of the day his body his choice.
You must make your choice,do you go to Spain,and have a holiday may be the last for sometime or phone…[Read more]

Oh Gaye
You have just made an old (ish) man very happy, you put a smile on my face that before reading your post didn't know I could smile that wide Ha ha.

As for My Dr well he is normal and I have met him while out shopping and he pats my shoulder and asks if its all going Ok, he once put both his hands on my fat belly and shook it saying…[Read more]

Pain is no easier today. I have convinced myself that this sh**ty disease has kicked in. He is going to see doctor again on Tuesday but I want to phone consultant and he wont. We are supposed to be going to Spain on Friday and I dont want to go. Frank says that he is going. Why dont blo**dy men ever listen. Sorry to all you men out there -…[Read more]

Thank you all for your replies. I managed to persuade Frank to go and see doctor. The doctor said that it was a pulled muscle but I am not happy about it. I want him to contact the Myeloma nurse but he wont. He gets quite angry when I talk about it. It does not hurt when he is still but when he moves it is really painful. I askd if it was…[Read more]