Hi Susie.

I was on RCD for 22 cycles the main problem I had was three days of nausea post Cyclophosomide day. The nausea wasn’t too bad or maybe I just got used to it. I too got cramps mainly at the end of each cycle I didn’t take anything for them I just used to stretch them out as I still have to do now with Pomalidomide.

As for Zometa I…[Read more]

Hi All.

Well we survived the trip to the lake district. Got home last Friday picked the dogs up had a cup of tea and something to eat then got in the car and set off to Nottingham for the beer festival. Had a few beers Saturday and came home again Sunday. It was a hectic few days and I think I’m just about recovered. Going to put my feet up for a…[Read more]

Thanks all.

Peter we used to think we were very lucky with our haematology department it’s excellently ran with 24/7 access. The staff are brilliant nothing is too much trouble. We have an active support group raising funds for the unit as do other haematological  disease groups. The ward had all single rooms most with toilet and showers, free…[Read more]

Hi Chris, sorry that you are here, but it’s the best place to be for encouragement and info, was 67 + when diagnosed, had no bone or kidney problems, went onto the myeloma XI trial, followed by a stem cell transplant. That was 22 moths ago, I am now completely drug free, have no treatment other than a three monthly infusion.
We live life to the…[Read more]

Hi Chris,

With all these kind words and encouragement how can I not stay positive,i have a feeling i’ll be ok and hubbie wants to take me away next summer for our wedding anniversary so I have to get through it and stay well :).

Take care
Mandy x

Hi Tony ,

It’s been a good start,first part of the sct process out of the way yesterday,like yourself not looking forward to long stay in isolation but I plan to take things in to occupy myself.Family and friends have threatened to visit me if they can while i’m there!:)

Regards
Mandy x

Hi Rebecca

The cyclo infusion went ahead as planned,thank god.All Seems to be going ok at moment and harvest is due to go ahead about a week from now.I am so glad I joined the forum,such nice and people and very encouraging words.My family have been brilliant but its just so nice to speak to people the have gone/ or aregoing through this…[Read more]

Hi Karen,

In the end throat seemed sort itself out and the iv cxclophosmide went ahead as planned,next step harvest in just over weeks time,have the joys of the gcsf injections to look forward after today,touch wood all going to plan so far. Glad to hear your well,long may it continue. Hope to speak to you again soon.

Take care
Mandy x

Hi there,

I did and still do suffer breathing difficulties but mainly when climbing stairs. I can ride my bike or carry out moderate exercise without too much trouble but the momenmt I need to physically use my legs, I am out of breath. With me initially it was because I had pneumonia and I still have some lung damage but if I remember rightly,…[Read more]

Best of luck cupcake, you can do it? It’s all very scary, really right from the moment you are told that you have myeloma, you just don’t know what to expect.
Parts of the SCT process are unpleasant, for me the worst part was living in isolation for three weeks, but you know it soon passes. I followed Karen into the transplant ward, now I am 21…[Read more]

Hi Mavis,

Thanks for the kind words,its nice to know there are others that understand the journey we all take with this. Feeling more positive this morning,crossing my fingers that everything can go ahead as planned .Thanks again

Mandy x

Hi Mike

Thanks for the reply,have to report to day unit tomorrow as staying in their hostel next to hospital as live a fair distance from it and have to be there early morning.I haven’t spoken to anyone about the throat,i am drinking plenty of fluids and taking throat lozengers and hoping it will do the trick but I am going to mention it…[Read more]

Hi all.

Many thanks for all the replies.

Today marks another anniversary – Three years ago today Steph and I were married.

It’s been a roller coaster these past 3 years and I don’t know how I would coped without Steph. We’ve managed to get by and fit a few trips in, we’re at the lakes now, sometimes for pleasure and sometimes for health ie the…[Read more]

I thought that vitamin d levels were checked at each blood test.
I take a daily Adcal that includes vitamin D, and every three months have a calcium infusion.
Regards
Tony F

Or rather, being cynical, the big chemical companies will lobby hard to prevent anything that may question the safety of their products. For example, how many years after the Manchester Woolworths fire was legislation brought in to control the type of foam used in furniture. Or how many years was it after smoking and cancer was linked before…[Read more]

Hi Newbies

As a very oldie on here may I suggest instead of joining on some ones post,you start your own post,telling people who you are,what hospital you go to and what treatment you are having,plus of course any problems. This will help people to help you in person!!!!

When I first came on here,some one posted. WHO THE HELL ARE YOU!!!!,I…[Read more]

Jan

That’s the way to go!!! No regrets enjoy what you have and never give up hope.

The fact is no one knows what lies in the future,just enjoy and never give up hope,it will take people a long way,and every day is a bonus. Love to you all.

Hi Kaye

It was my husband who died,and it was a long slow death,so when you are not expecting it,it’s harder,grieve hits you very quickly and brings out all sought of emotions.

It is very hard for anyone to speculate what went wrong concerning your mum,if you write or ask to see her consultant I am sure he would explain why it was not picked up…[Read more]

Hi there,

For most people I would say diagnosis happens pretty quickly after a bone breakage. I believe the X rays will show that the damage is caused by bone weakening such as osteoporosis rather than stress or shock such as falling or something heavy impacting against the bone. Another key form of diagnosis is through illness and the body’s…[Read more]