Done

Hi Helen.

Good to hear from you. I hope everything is as well as it can be.

We had a great time doing nothing much. We got invited to a Greek Orthodox wedding in October by the family who run the hotel where we stay. So will be searching around for flights to Athens this weekend.

Really glad you were able to get insured at a reasonable price by…[Read more]

Oh ok that’s 3 not a couple! but it seems to of  worked 😉

That’s good news David. As Tom would say “onwards and upwards” which funnily enough is what we were saying whilst stuck on the Tarmac at Kefalonia’s airport. 😉

Every new pub sounds good to me Tony.

Going try and add a couple of photos one is us enjoying a drink whilst a storm rages outside hmm or was it just after the storm? I think it was the…[Read more]

Sorry David, I knew we shouldn’t have hijacked the forum to talk about holidays.
Glad the the mm is still in remission and that the skin cancer is not bad, hope they sort out the prostate ASAP

Andy
There’s a new pub opening in Keswick, in the Old Court House, sounds good!

Regards
Tony F

Hi David.

Sorry your in hospital having your water works seen to. I hope it does the trick for you.

Good news that your still in full remission and that your skin cancer is very mild? Didn’t know you could have mild skin cancer just shows your never too old to learn. Now if only they could get your prostate sorted.

Hi Tony.

Fiscardo is a…[Read more]

Fiscardo, then on Saturday over to Ithaka for a week. Then it’s the blood test!
I read that you do the Lakes as well, we go up to Keswick a lot, having lived and worked there for 10 years or so.
Sorry to hijack the forum.
But heck you’ve got to live life, maybe sometimes with your fingers crossed.
Regards
Tony F

Hi Tom.

There seems to be a lot of people reporting bone pain post SCT at the moment on Facebook. From what I’ve read in replies on Facebook people are more sensitive to their bodies post SCT and obviously every little set back the thought of relapse springs to mind. It seems it could be the old site is just being a bit tender at the moment and…[Read more]

Hi Tony.

Funnily enough we were in Kefalonia too. Love the island we go there twice a year if my health permits. Where about on the island are you staying? We stay right near the airport at Svoronata.

Enjoy the rest of your holiday Tony.

Every day is a gift.

Andy

Haha, doing the same as you Andy. On a balcony overlooking the sea in kefalonia, another week of too much wine and good food, oh and sunshine. Then I’m back for a blood test! and probably a ticking off from the specialist.
Good luck
Tony F

Hi James

I know how you feel. Unfortunately the myeloma drugs, including Revlimind, can cause constipation (see Myeloma UK factsheet on constipation). I suffered with severe constipation during my myeloma treatment with CDT, especially during the third and fourth cycles. My regular use of pain killers for a collapsed vertebrae also contributed…[Read more]

Hi Jeff

I would certainly like to reduce my painkillers, although I realise that I cannot manage without some type of pain relief due to the pain around my vertebrae especially when I am tired or have carried out too many tasks during the day. I still have to regularly sit down to relieve back pain. I would love to be able to sleep on my front,…[Read more]

Hi Jan.

Sking wow! I agree we all gotta live. When I see people sky diving for MyelomaUK it crosses my mind that would of been something I would of given ago unfortunately I’ve no chance now. My wife and I go on holidays as often as possible whilst we still can.

Myeloma certainly concentrates the mind.

Every day is a gift.

Andy x

Hi Robert and Jan.

I would be very wary of excluding Myeloma from any travel insurance. Due it’s nature Myeloma COULD be linked to lots of illnesses and ANY broken bones. If you get an infection, maybe not so serious for smoulders, and need hospital treatment the insurance company could and probably say the Myeloma compromised you immune system…[Read more]

Hi so sorry to hear your dad has passed.
Hope you have friends and family to see you through this sad time.
Regards Etta.

Hi Jeff,
I’ve been using fentanyl patches since my vertebra collapsed some four years ago. Overall, the medication has worked well to reduce my back and rib pain, but initially had to be supplemented by tramadol tablets every day. Like you, I’ve had similar discussions with my consultant and GP about trying to reduce the dose of my painkillers.…[Read more]

Hi Robert.

We’ve just returned from a week in Greece and paid £67 to cover my wife and I, she has diabetes, and that was with nowicantravel too. We’ve used them successfully for our last  four or five trips.

Every day is a gift

Andy

Hi there, just read your post and I think you can still be optimistic about your future. Like you I had my SCT, prior to it my IgG had fallen from 52 to 36. I fortunately live in Germany and unlike the UK, they still did the SCT despite my proteins being way above acceptable levels in the UK. Post SCT my IgG had fallen to 24. Since February, they…[Read more]