Oh my that’s awful!!!

I agree my daughter in NZ sold here house 10 percent deposit,done and dusted !!

My youngest daughter has had the chain broken 4 times,moving anyway! Does need up heavily .

Sorry for taking over post Judy,you will find in time you will make cyber friends,!!!?,Eve

Hi Debi

No problem if you are going to Sutton!!!! We travelled every week by car,massive car park pay anyway even disabled!!!! If you use a wheelchair all the time tiger is a little bit of parking before barrier,after barrier there are four lanes of disabled parking,but as I said you pay,most it has cost me is £14 !!!??

I use to find it easier…[Read more]

Ho Carol

You make me laugh!!! Thought that plane to ozz was this month????
Phi Judy2 sorry cannot help you,out of touch with new trials,try going into new trials on here,might be some help!!!!!

I can say this journey is like a roller coaster so many highs and lows,you learn to ride with the flow,you will get lots of help on here and also from…[Read more]

Hi Sarah, I had my SCT when I was 68, now 18 months later I feel great. Do tend to get a bit tired and need to nap, but that could be age and the desire to keep doing things. I walk my dog across fields and woods for a couple of hours every day. Bits of gardening and DIY. As John and Rebbecca have said each individual is different but the SCT is…[Read more]

Hi Susie

Glad to hear all went OK, although I am sure you will be waiting to hear back from the Consultant.
It  is such a waiting game this MM isn’t it.

Sorry you are still in pain with sciatica.  Hope all is well when he rings you back.

I have a small heat cushion which I warm in the microwave and put in the small of my back when sciatica k…[Read more]

HiDavid

I can remember a few years ago,you getting everything ready just in case,the garden,with crocuses,and easier boarders,plus the old coffin job!!!! And look what you have done since,family tree,holidays!!!!

Just enjoy this month without treatment!! Make the most of the summer,the lump as you know can be anything!!! As for the…[Read more]

Hi Andy

They say opposites attract !!!!!! I took a instant dislike to Slims views in 1981 !!!!!
Still together all these years,he makes me laugh!!! That’s my excuse.
Slim is a very determined character,in a very quiet way,when he says something like do not let them put DNR on my files,he means it,and expects me to honour his wishers no matter…[Read more]

Hiya
SCT is not a necessity in the treatment of myeloma. Though it is commonly used to good effect. There is a big discussion going on now as to the merits of just having drug therapy.
As your husband has been successfully treated with CDT he could stay in remission for a long time before he needs treating again. For a SCT to go ahead you need to…[Read more]

Hi Eve and Helen.

Helen I hope the strong painkillers didn’t spoil your trip to Cornwall. I know they work killing the pain but I find they space me out and zombiefie, if that’s not a word it should be, me. Back pain? Not feeling up to much? I think that is a complaint a lot of us have unfortunately.
I’m starting my 8th cycle of Pomalidomide and…[Read more]

Hi Maureen.
When I stared out Revlimid I was just on Rev and Dex. Cyclophosphamide was added to the mix a little later. Initially my PPs didn’t move much but, I think I’m quoting Dai here, Rev is known to be a slow starter. Anyway I ended up having 22 cycles of it.
Dex actually fights myeloma in its own way and sometimes is used on its own.…[Read more]

Sarah, so sorry to hear your story, I feel sad for your loss and pray that you will remain strong and live with happy memories.

Eve, my prayers are for you and Slim, stay strong.

My love and thoughts are with you all.

Tony F

Hello Sarah

My heart goes out to you,yet I will find myself in the same position soon although by a different route.

I have not been on this site very much,mainly some one said this site is about hope and it is,but there’s no hope left for you and me,I have a daughter older than Mark,but I could not imagine what it would be like to loose…[Read more]

Dear Sarah
So sorry that mark has passed my thoughts and prayers are with you god bless.
Etta x

HMJ, deepest sympathies to you and to your family for the loss of your beloved dad. From your post it sounds as though he was a true fighter. To survive for 19 years should I hope give encouragement to other readers on this site.
How wonderful for you to express your feelings about your dad.
Wishing you the best.
Regards
Tony F

Hi all, thought I would add my tale, like Jill, I visit my GP surgery 2 weeks before my clinic appointment, the hospital have already supplied me with the envelopes, nurse takes the blood, so 2 weeks later at the hospital appointment the detail is there ready for discussion. My GP receives a letter showing the current results and I recieve a copy…[Read more]

I would certainly mention your pains and aches to your specialist. My myeloma was diagnosed in March 2010. For approximately 9 months prior to the diagnosis, I would experience some strange aches pains in my hip, under my rib cage, around my kidneys and in my back. The pains would come and go. I just thought that I had strained certain parts…[Read more]

Hi Susie,

Definitely wishing you luck for tomorrow. I am sure you are feeling worried about what they have to say. I suppose the “but” is that it is oddly reassuring that behind the scenes the Doctors are working to keep you as well as possible.

I am sorry to hear you have been in pain, sometimes physio seems to make it worse before it gets…[Read more]

Dear Don,

Best of luck for your operation tomorrow. I am sure you are in good hands.

I look forward to hearing how you got on and also how the nurses cope with your irrepressible humour. I expect you will be like a breath of fresh air as you recover from the surgery.

Best wishes to you and your social secretary, financial controller and life…[Read more]