Hi Jo

yes am sorry about that

Hi eaglesham

sorry to hear about your dizzy spells yes I had them when I had CDT in 2009, and to be fair I had to go on sick leave halfway through my third cycle, I was then off for a full year that took me through my SCT and recovery of that.

it put me into remission for four years so I feel it was worth it that so I am doing it again but this…[Read more]

Hi Ali

As Helen says ,it’s good that life has been normal for sometime and the Myeloma locked away!!

They usually pick up the Myeloma in the bloods,so the cat scan could be old damage,did mum have damage in the same area last time!!
If it is a new Plasmacytoma it can be dealt with on Chemo,Slims old damage and new damage showed on a MRI Scan,so…[Read more]

Hi Andy

We have been having whoops!!!!,so I thought I would tell you about it! So you have some idea about Whoops,s!! Lol

As you know Slim was in hospital discharged yesterday at 1 pm, home tired and looking forward to bed!! I was reading his discharge letter,because I had asked early about blood results,only to find his HB read 75,eventually I…[Read more]

Hi Andy

Yes I am very tired,you would think with Slim being in hospital,that I would have some peace of mind???.
Any way he is coming home today,and will feel far more comfortable with that.

He has to go into A&E,you go through the whole routine,3 hours on A&E moved to back room,no beds,he was moved to a ward eventually, not specialised,they…[Read more]

Hi Eve
Hope Slim is doing ok now. You must be worn out.

Andy xx

Hi Vicki
The collapsed vertebrae was written in my discharge notes. When I reread the notes the doc was comparing my new X-ray to one taken in 2011! So I don’t think that was new or the cause of my pain. It was more likely a side effect of my radiotherapy. Oh welcome back 😉 glad you had a good holiday.

Hi Helen
Welcome back from your holiday…[Read more]

Hi Andy

You are at the stage of the game were it’s important that every thing is under control,and you are making the right decision ,so all good,try to think back when you were a novice at this!!!!,now you go in and know more about your condition than most of the people you are dealing with!!!! Or do you go straight to unit and by pass…[Read more]

Great news Jean. Hope Michael goes from strength to strength. Take care
Jean x

Hi Sindy

Sorry you had to join us but welcome to the site. They are. Great bunch of people here who will be there for you to help in any way. Have you a tarted treatment yet? My husband had SCT March 2013 and is in remission. Thank God. See you along the road

Jean

Hi Carol,

I have 5 drugs to take – Contrim forte – anti biotic 3 x week, Aciclec 400 – anti viral daily, Pantoprozol – I believe to prevent gastro problems, daily, Folverlan 5mg a follic acid supplement daily. I take Nuvoinsulfon pain killers but that is 1 tablet, 500mg before bed. I have very little bone pain during the day but it is a bit of a…[Read more]

Ps part post missing lol.

Good luck with yours
Love Tom onwards and upwards. Xxx

Lord knows why it leaves some out ?? Think I might be using the wrong ink lol ha ha xxxx

Hi Carol

Well post SCT I done a few months taking anti virals and anti sick, and Zometa ant ye Zometa was for just two years, apart from that I was drug free

Aww you have my positive attitude am sending a little bit to you today,
Hope ur doing ok ?? We are off to Chester tomorrow for a few days seeing as we can’t get in a plane decided to go in a posh hotel instead ha ha.

Velcade today but think am gonna save those little Dex tabs till tomorrow do I can party all night in Chester he he

Love to you…[Read more]

Hi Polly

I read Pat,s and Arnie,s opinions as well,interesting reading??.?

I like the way you substitute fat for curvy lady,and as I am fat,I won,t be singing,!!! Lol

Seriously Mandy,start fighting,I hate the word fight!!! But your attitude,your will to live will carry you a long way
I would urge any doctor not to have a set agenda!!!,they are…[Read more]

Make sure you keep in touch!!! One day you just might see me there,never say never is my motto!! Life is on hold!!!!but Myeloma makes you realise,dreams have to be lived. Love Eve

Hi David

No surprises there then!!!

Saga was originally a family organisation,a couple of years ago the man who owned it sold it to the AA.They have since sold it on to an American company,it is now far removed from the original company.

I live 15 miles away from Folkstone which is the main head quarters ,I use to have all my insurances with…[Read more]

Hi Carol

No hair!!! Scar on chest!!!,you make me laugh some times,but in a good way,were,s your ozzy spirit.
Tell them to get this thing out,you want to look good on a Ozzy beach!!!!.Eve

Hi Mandy

Why not ask him what he would do if he was in your position,????? But still get another opinion?????,they all have different school of thoughts.

I can only tell you,Slim was basically told,no treatment,would support him so go home and die,he is now being treated by another hospital after a second opinion,and yes we realise he still…[Read more]

Hi Carol

Slim had the opposite of you,when they put it in it took over 4 hours,lot of pain,and because of this when it was removed it was day surgery,it just slipped out,after being in for a very long time!!!

If it’s painful get it removed!!!!,did they realise they left it behind????
It should be a day job surgery.

Don’t,forget to say hello to…[Read more]