Hi Maureen,

Sounds like Ian is on the same dose I was on. I started with Velcade in June and started having pain in my feet around August I think. It wasn’t until October it became really bad but virtually cleared up at Christmas. I finished with the Velcade end of October. As for the Dexy, I never managed a proper nights sleep. From August they…[Read more]

Near half of my post missing ??? HELP lol x

Well done David and your team, and yes you are correct it’s never too late and you more than most know that am sure, you have been dealt a bad deck so far but it was worth the wait hope you don’t do your back in doing a wee jig in celebration

Hi David

Good News is always welcome and specially from you.

I visited the Houses of Parliament on a school trip,and the local MP bought us all orange juices sitting on the terrace. So I hope this was extended to you,with champagne in it!!!!

Hi Keith

You managed to post that’s the main thing,perseverance !!!!,keep going and you will do fine.

I will not offer any advice on SCT,as I am sure things have changed since my husband had his,so this is just a welcome to you. Eve

Hi Molly

I do not know anything about South Yorkshire ,but replying to boost it up,as sometimes post gets passed over. Eve

Hi Woo1967

I take it 1967 is your birth year!!! And I cannot keep calling you Woo,sounds like a dog! But let’s answer your questions first.

There is a free number the top of this page,call it and speak to Ellen or Maggie,they can answer all your questions and send you booklets,this is a must!!!! As you can learn a lot about your condition,so any…[Read more]

Hi Molly

I have just returned from the Royal Marsden were a man named Stuart introduced him self to me,he lives in France and his wife is treated at the Marsden !!!!

He said if you want any information to get in touch with him,he will gladly speak to you!!!!if you put in search the name Stuart,it should throw up postings of his,even put in…[Read more]

Hi Molly

Sorry you had to join us and I’m not sure it’s relevant but Frank and I lived I. South Africa for 10 years 3 of our 4 sons where born there. We came home back to Belfast and it took some time for Frank to get a job. We got all benefits and child allowance etc. as Eve says get advice and hope things go week

Jean x

Hi Jeff,

My wife and I read the article and certainly gives cause for hope. If it does work then it will certainly help a lot of people. However I believe the article said the drug is being tsted on those with Leukemia and Lymphoma. I understand that trials in the US are being done for MM, but BTK is being used in conjunction with other drugs.…[Read more]

Hi Helen.
We’re staying in Bowness. It’s a bit blowy here at the moment and it’s due to rain heavily in the next couple of hours! It’s supposed to be dry tomorrow just in time for our journey home.
Grooms woman? that’s a new one. Hope you have a good day. Didn’t they consult you when they arranged the wedding date lol.

Every day is a gift.

Andy xxx

Hi Molly

I would be very careful and get some expert advice on any form filling you have to do,CAB should be able to talk you through this.

As you have been out of the country for 6 years,I think you will have to prove you are not a health tourist,but saying that I take it your husband has put many years of tax and Stamps,which should entitle…[Read more]

Hi Helen

I was going to keep well away from this thread as I do not think it achieves anything!!! And any one reading it who is new to Myeloma,will wonder what it’s all about.

I do not like the fact that Dusk is not up front,even if her opinion is valid,sorry Dusk,but that’s just my opinion

Helen I have come on here mainly to say,I am so sorry…[Read more]

Hi jeff

There should be no problems asking your consultant for a second opinion, Slims consultant did not hesitate ,I think it is normal procedure when your own hospital feel they can do no more, we had no problems,and were seen by new consultant within 3 weeks. Be prepared to travel as it involves going out of your area.

We still go to see the…[Read more]

Hi Jane
And well done on your length of remission, I had CDT on my first treatment in 2009 leading up to first SCT in December same year and got 4 years out of that, I am now on Velcade (subcutaneous ) every Monday with 10 wee Dex tabs lol. My feet know am getting this treatment I have had nine Velcade injections so that makes me having 90 wee…[Read more]

Hi Charlie
Doing great thanks, I am now on (today) my third cycle of the Velcade and the dex and to be fair it has been a bit strange to me ?? .

The first few weeks after taking my Dex (take that every Monday ) I lost my sleep pattern for four days then Friday hit the preverbal brick wall then normal for the week end to start all over again…[Read more]

Hi Eve.
Not had any feed back yet about Pomalidomide. I suppose my next pp test will give an indication.
I feel ok but the proof will be in the blood tests.

Hi Maureen.
I’m just packing all my drugs for the trip to the lakes tomorrow. We won’t get there till just after lunch tomorrow. So I suppose a drink tomorrow night is possible if that’s ok…[Read more]

Hi Jeff,

My calculation was just a simple dividing the number of affected people into the known figure for the population: 10 / 30,000 and 20,000/61,000,000.

Having grown up and lived in Melton, I know a bit about the large employers in the town and I don’t believe there is any that has a bad reputation for health and safety or would put the…[Read more]

Hi Jeff,

My calculation was just a simple dividing the number of affected people into the known figure for the population: 10 / 30,000 and 20,000/61,000,000.

Having grown up and lived in Melton, I know a bit about the large employers in the town and I don’t believe there is any that has a bad reputation for health and safety or would put the…[Read more]