Hi Carol.
We were insured through “now I can travel” they have a web site but we deal with them over the phone. Be prepared for a long call because they ask lots of questions.
Web site is http://www.nowicantravel.co.uk the phone number is on there. Good look 😉

Every day is a gift

Andy xx

All Clear is part of AXA.
We have a policy via a bank account with the Coop bank. It costs £12.50 a month, as well as travel we have gadget/ mobile phone insurance and car breakdown. Oh and airport VIP lounge access. The travel policy allows unlimited travel, including USA.
I have kept AXA informed of my health situation and pay no access…[Read more]

Hey Andy
The drink of a Sunday is the norm for me lol.
Pleased you say the bloods are good am hoping my consultant says same when I see him ???
Keep well my friend and enjoy those weekend pints.

Love to you both.

Tom onwards and upwards x

Hi Carol

Before Frank had SCT our travel insurance was through Columbus. They were good. After transplant we got a yearly policy with All Clear. Excellent price although it did not include USA

Jean

Hi Helen.
Fortunately for me my taste buds have got their act together now I’m off the cyclophosphamide and I can taste things again. So as they say I’m making hay whilst the sun shines and eating and drinking well. Not to excess of course 😉
How’re you getting on? Are you still yearning to return to work?

Hi Tom.
Drunk on a Sunday afternoon lol…[Read more]

Hi Julie.
Sorry to hear your mums struggling. The reason they will be trying Velcade again is because it’s kinder to the kidneys. I’m on my 5th line of treatment and I haven’t had a SCT either not because of my age, I’m 55, or fitness but due to the hammering my bone marrow has taken from all the drugs they have tried on me. The only drug I’ve had…[Read more]

Hi Ozzy.
I was on Revlimid CRD for 22 cycles and other treatments before that CDT etc I was on tinzaparin and I injected myself over 700 hundred times. I’m now on a pill as Eve says it called Rivaroxaban and I take one a day so I’m no longer looking like a dart board. I go abroad a couple of times a year and haven’t paid more than a hundred pounds…[Read more]

Dear Dusk.
Unfortunately we don’t know anything about you. Your experience of medical matters, your age, where your being treated, your history leading up to diagnosis etc etc.
So giving advise or support tailored to you is difficult. So I guess some assumptions will be made.
I wouldn’t belittle any point of view you have. I may not agree with…[Read more]

Hi Eve

Glad that Slimis getting treatment. Hope he gets something good out of it. I know more and more treatments are coming on line but let’s hope Nice Get their finger out soon. I play scrabble on my iPad. “Words with friends” I play with Elaine, Toms wife. To be honest it acts as a relief. I look forward to our games. I’m glad to hear that…[Read more]

Hi Jean

You will never get away with Gushiness at Scrabble!!!! Miss playing but did not like the new format and I tend to use an I Pad,also lack concentration these days,so it’s jigsaw puzzles at the moment,it’s something we can do together.

We now go to the Royal Marsden in Surry,bit of a journey,but easier than going to central London.Started…[Read more]

Hi J

Welcome to the site,if I was you I would put your post in general,as people do not look at carers very often,I post here as I am a carer and at the moment my news is not good and I am aware,some people do not want to hear bad news!!

Now to you J,it’s going to be a hard roller coaster ride no matter what your Dad decides,you will not get…[Read more]

Hi Ozzy

Just a quick one about Claxane ,There is a pill I cannot remember the name,Slim used to be on it,and I think Andy is on it,does the same Job,so might be worth asking consultant about it,Eve

Hi Eve

I don’t know how I missed your post. I’m so sorry to hear about Slim, I know you don’t like gushiness (is that a word – must look at a scrabble dictionary). Just want you to know I’m thinking of you both and hope you get second opinion soon. Slim is a lucky man to have you fighting on his side.

Love and prayers to you both
Love Jean x

Hi Stephen

Well I can only tell you about Slim,after SCT and 100 days BMB,he was told he was in full remission and had 0.00 Myeloma cells in his body !!! It came back before 6 months was out!!!

As you know different people different results!!!

So make the most of your life,lock the Myeloma away,get on with living,Eve

Forgot David ,only had…[Read more]

Hi Carol

Sorry I thought I had replied to you,I have been following your SCT,and must admit you have done really well,must be the desire to get back to Australia !!!!
We have taken up the option of a second opinion and would recommend it to any one,even the experts have different opinions and views,I think it’s because Zmyeloma treatments are…[Read more]

Hi Jan

How are things with you??? How is the treatment going,you are another one like Princess Fiona who has gone off the radar a bit!!!!,or is it me not looking into the site as much!!!!

Thank you for the connection recordmenow,I have looked at it,but do not know if it will happen,Slims not one for expressing his feelings about anything,so I…[Read more]

Hi Julie
Your more than welcome as am sure it’s difficult for you as well as you Mom and dad, as for looking back it can’t alter things I/we had made decision that wasn’t right but they were right at the time and that’s all that matters we just dust down and move on it’s not easy being a carer it takes its toll,I was a carer for my wife when she…[Read more]

Hi Stephen

After 4 cycles of CDT and a SCT, my light chains reduced from 2,200 to just below 20. It’s been almost four years next month since I was diagnosed in March 2010 with myeloma and over these years, my light chains have behaved unpredictably sometimes increasing, sometimes staying at a plateau for months, sometimes decreasing, but now…[Read more]

Hi Eve,

When I read your comments, like others have mentioned, I just didn’t know what to say. I am so sorry this has happened. I’m really sad for you both. It must be so difficult for the both of you trying to live relatively normal lives in such an abnormal situation. I hope Slim is able to live each day as well as he can to best fulfil his…[Read more]

Hi Julie

Sorry to read your mum has been through a lot, it’s a hard illness to find the one that will kick it into touch, I have had the CTD and SCT all in 2009 four years remission then it kicks back in again so am now on Velcade getting ready for my second SCT at the end of this year all being well,

Am sure they will find the one that will…[Read more]