jmsmyth replied to the topic Are we new ?? in the forum General 11 years, 10 months ago
Hey Tom vodka on you. No make that gin
Xx
eve replied to the topic Newly diagnosed with smouldering myeloma in the forum Newcomers 11 years, 10 months ago
Hi Chris
You are lucky in many ways,because of routine blood test they have caught you early plus SMM,so that’s all good news.
There is no reason why you cannot live a reasonable normal life,I would advice you to ask to join the under 50 as you will find people of your own age!!
What I will recommend is you educate yourself concerning…[Read more]
tom replied to the topic Are we new ?? in the forum General 11 years, 10 months ago
Hi Liz
No dont know what treatment will be as yet just guessing at the moment but am sure he will tell me what on Thursday as thats when I go and get my BMB results.
And Jean Elaine and I just might do Belfast this year 🙂
Catcha all Lata (now lets see if ths post goes lol)
Tom Onwards and Upwards xx
Ps photo of the young bride and I on our Holls xx
Michele replied to the topic edit test in the forum Off topic 11 years, 10 months ago
Thanks Stuart.
You learn something every day!
jmsmyth replied to the topic Are we new ?? in the forum General 11 years, 10 months ago
Hi Liz
I am not advocating going to Spain WITHOUT insurance BUT we have been to Costa del Sol many times and we did not have insurance. I remember Gills husband Stephen, when they went to France, saying that he was not going to break out in a severe case of Myeloma. Kev, like Frank knows his own body. We had been looking into going to Tenerife,…[Read more]
Michele replied to the topic edit test in the forum Off topic 11 years, 10 months ago
I tried to correct a spelling mistake a couple of weeks ago and gave up trying in the end. My whole message kept disappearing!
I still don’t like being a “Participant”!!!!
andyg replied to the topic general update in the forum General 11 years, 10 months ago
Hi David.
The new site is having a lot of teething troubles. Stuart the web master is looking into them. He has a discussion page on the off topic forum and I know he is looking into the editing issue.
I get a cough and hiccups when I take my Dex I always have. I have to be careful when I drink as it sets me off hiccuping. I sometimes seem to…[Read more]
andyg replied to the topic New treatment starts today. in the forum Treatment 11 years, 10 months ago
Hiya David.
I hope your doing well with your treatments. I’m trying to catch up on everyone because it’s been difficult to get onto the forums lately.
The regime I’m on now is Pomalidomide for 21 days then 7 days off. With Dex taken on days 1,8,15&22. I have to go in for blood tests every week for 8 weeks to make sure I’m coping with the Pom and…[Read more]
andyg replied to the topic New treatment starts today. in the forum Treatment 11 years, 10 months ago
Hi All.
Thanks for all your good wishes.
I’ve finished my first week of Pomalidomide and yet have no complaints – well except for the usual Dex effect! My bloods were ok Friday but it’s too early to start counting my chickens yet.
It’s strange even though Revlimid had run it’s course I have been feeling the best I have these past 8 months since…[Read more]
jmsmyth replied to the topic Are we new ?? in the forum General 11 years, 10 months ago
Liz that should be Kev. New site at the moment doesn’t alllow you to correct mistakes
Jean
jmsmyth replied to the topic Are we new ?? in the forum General 11 years, 10 months ago
Hi Liz
Before Frank starts treatment we insured with Columbus and after treatment we took out a yearly policy with All Clear. I hope you can get sorted as we feel Bret when we get away
Best to you and Kecia
Love Jean x
tom replied to the topic New treatment starts today. in the forum Treatment 11 years, 10 months ago
Hi Andy and Steph
Well you both know how i feel for you two but am sure it wont be long before you are coasting alone and waving to me as you pass Sunny Scunny on many of your jaunts away, I also know you both will stay strong and fight this reroute that has been thrown your way.
Love to you both
Tom Onwards and Upwards xx
tom replied to the topic Are we new ?? in the forum General 11 years, 10 months ago
Hi Liz and Kev
Its a bugger this ins thing but am sure their is loads on here that use it but for me I only go on normal ins to be honest but i dont go far, I am not saying others should but I only go when am fine, had a great time for the last week and I hope i can get another couple in this year.
And Harmony the moment has been seized with both…[Read more]
jmsmyth replied to the topic New look website in the forum Off topic 11 years, 10 months ago
Stuart
I’m sure you are tired hearing from me but the spammers have hit new comers section
Jean
jmsmyth replied to the topic New look website in the forum Off topic 11 years, 10 months ago
Stuart same with this post. Last line missing
jmsmyth replied to the topic New look website in the forum Off topic 11 years, 10 months ago
Sorry Stuart but site mis-behaving again. I posted to Sarah on newcomers. When I posted I went into post to fix errors. Only half post was there and when I clicked on it – it highlighted itself and disappeared. When I reopened it half the post was back. Tried a few times with the same result
jmsmyth replied to the topic New member in the forum Newcomers 11 years, 10 months ago
Sorry Sarah site playing up again or my IPad is. Part of the post was missing and wouldn’t let me correct my mistakes. But anyway I wish you and M the very best
Love Jean x
jmsmyth replied to the topic New member in the forum Newcomers 11 years, 10 months ago
Hi Sarah
Frank had his SRCT in Belfast City Hospital in March. He was also told of all the same things not to eat. Just like a pregnant woman’s diet. I was not allowed to bring him packaged sandwich from the hospital shop. The thing he missed the most was farmhouse pate. Like Megan I used bacterial wipes on every surface. I drove my grand…[Read more]
eve replied to the topic New member in the forum Newcomers 11 years, 10 months ago
Hi Andy
Well do you feel,you have had your hand slapped!! Lol
Andy after all these years on this site and your countless experiences of so many,many different chemo,and people with different opinions and approaches!!!
Hope you intend to go out for Sunday lunch and enjoy a pint of real ale,treat it the same way as the BT .lol.
As for…[Read more]
andyg replied to the topic Pneumonia – but better now! in the forum General 11 years, 10 months ago
Hi Tina
Sorry read you were unwell over the holiday period. Good to know it was only a short stay in hospital.
I hope you have a good 2014
Every day is a gift
Live it to the full
Andy xx