Hi Harmony
First off you could smoulder for years yet so try not and jump the gun. It’s easy to say but hard to do but you’ve got to live in the present not the future. As Eve says worrying about tomorrow spoils today.
I have no experience of counselling though my wife went and found it very helpful.
I was diagnosed in oct 2011 told MM was very…[Read more]

Hi Sarah
I was told to avoid certain foods too. I even think there’s a list on the MyelomaUK site of foods to avoid. As you say it’s pretty much the same advice given to pregnant women. Ie no live foods no unwashed or unpeeled fruit and veg and sea food is best avoided. The advice is given because we MMers have low immunities and a stomach bug is…[Read more]

Hi Harmony

I do not know much about counselling as I chose not to take that root,I am a firm believer that unless you have had the same experience how an earth can you help some one,there are very good books on dealing with people who suffer a trauma.

As for telling people or not to tell is a hard one,try not to have regrets about it,people will…[Read more]

I don’t know about the legal side of not declaring such an illness, but I do know that if I ever felt the need to work again, there’s no way I’d not be totally honest with a potential new employer, especially if it were a small business.

I’d be thinking of all the probable days off ahead for treatment and how that would affect my colleagues, as…[Read more]

Stuart tried to edit above post right away and it through me out. Don’t know what I’m doing wrong

Hi Stuart

Went into a post that I submitted and pressed edit button it brought me into my post but when I clicked to add something the complete post was selected and disappeared. When I closed down and reopened it post was there but couldn’t edit. I posted it yesterday, maybe to much time passed to allow editing

Regards Jean

Stuart closed iPad down and restarted again and there it was. Thanks

Jean

Hi Tina

Sorry to hear that you had such a rough time especially over Christmas and hope that 2014 is a good year for you.
Take care
Love Jean x

Stuart immediately tried to edit above post and no Edit button
Jean

Hi Stuart

My version is same as Liz and Andy and still can’t find edit button

Jean

Hi Stuart.
Mine is the same operating system as Liz’s.

Andy.

Hi Deb

Have they released any information concerning the padimac trials,because the few people who I know who were on it,it did not work for them!!!!

There is no harm in trying for the new trials if you do not get carfilzomib ,you can pull out of trials,you can also find the price of drugs by going into NHS pricing for drugs.!!

I do think you…[Read more]

111? that’s high, I was told that anything over 120 is dangerous because the blood thickens. The most I had was 104. Now time to calm down, weight loss is normal, I lost 15kg and am now back up to almost my original weight. PP of 50/60 is a big drop, while others talk of having pp’s of below 20 or ideally 1 or 2, it is only one type of indicator…[Read more]

Hi Sal

Welcome,I think at the beginning it is a big learning curve,your husband will just want to get on with the treatment and I think you would be a help to him if you learn,t all you could about Myeloma plus side effects of the drugs,although it’s your husband who has Myeloma it will effect the whole family,and you will have to be the strong…[Read more]

Hi Jean
The edit button is to the left of the reply button – oh it’s not there now!
Hmmm maybe you only have a limited time to edit posts on a iPad.
Time to dust down the laptop again?

Andy x

Thanks Ang,

The support group we attend here in Germany is fantastic, they know how bad my German is but they are always positive and willing to help. The big thing is that someone there has gone through what we are going through and no matter how vague or weird a side effect may be, there is always someone that has had it and knows how to deal…[Read more]

Hi Andy

I use my iPad and for the life of me I can’t find the Edit button. I’m forever making mistakes. It may be looking me straight in the eye but ………

Hope new treatment goes well

Jean

Hi Stuart.
Me again 😉
I’ve just done a post posted it and when I reread it I spotted a mistake and when I tried to edit it I found the whole post disappeared in the edit box when I tried to edit it!

Andy