Hi Stuart
Sorry to say the new look website still isn’t a great experience on an iPad. I very rarely use my PC or laptop now as all of my internet browsing is done via my iPad. The scrolling issue has improved since my last post. I managed to sign in today but when I went to the newcomers posts I was signed out! so could not contribute.
I’m not…[Read more]

Hi Dave
And thanks am sure we will.
That sun on the back of my fat neck is gonna be real good.

Tom onwards and upwards x

Hi Izzie
Well what can I say ??

I had my SCT in December 2009 and up until 2013 was in remission and drug free, so the first transplant gave me a long and drug free four years and for that am pleased.
But did I have off days ?? Yes I was weepy and yes my head was low, lower than I wanted it to be.
How did I do I cope ??? Well I fight the myeloma…[Read more]

Hi Christine

Glad that you are in full remission. Frank had SCT in March and is also (thank God) in full remission. Had a PET scan as well and no signs of cancer. Mind you ha has had a cold now XOR about 4 weeks but no temp. I asked his consultant why he was not offered maintenance and she said that it is only offered to,people on trials. We are…[Read more]

Hi Izzie,

I can’t add much more about how usefull this site is and how to deal with the illness. My wife worries far more about it than I do, she watches my PP levels, checks my blood results, insists the medics look at every alternative before settling on a course of action. As for me, I do have a little bone pain sometimes but I try and lead a…[Read more]

Hi Carol, I only managed 10M /kg so you did very well, I am having tests this week, so far I’ve had heart – no problem, lungs – a bit of a shadow on the right lung but the medic doing the test wasn’t worried as I had cycled up a steep hill to get to him. ENT on Tuesday and hand in the urine, stool samples on Friday. It’s all go. Oh yes, get the…[Read more]

Hi Michele
Dont worry about it being in “Stereo” as i can only hear from one ear ha ha.

Thank you and we will, you do right working your holls that way its best you can book well in advance enjoy.

Love Tom Onwards and Upwards x

Oh Dear more gremlins……..comments in stereo!!!!!!!!!!!

Hi Tom
I hope you have a lovely relaxing week.
I’ve been booking a few holidays myself for the new year. Any hospital appointments will have to be fitted in around my holidays and not the other way around!
Take Care
Michele x

Hi Tom
I hope you have a lovely relaxing week.
I’ve been booking a few holidays myself for the new year. Any hospital appointments will have to be fitted in around my holidays and not the other way around!
Take Care
Michele x

Morning San
Am sure you know Fun is my Middle name so am sure its gonna be great Thanks.
I just need you all to behave while am away,I know most of you will but am sue we have some nawty ones that will misbehave while am away ha ha.

Catcha soon

Love Tom Onwards and Upwards xxx

It’s not a problem Chris and am sure it will work out well and I wish you luck I. Your decision whatever it is.

As for the myeloma we knew it would come back it’s just a when and how, am blessed with having no bone damage (that we know of) so that’s a blessing and as always it’s onwards and upwards.

Love Tom xx

Hi Dick and Carol

Well it was few weeks I was offline packing moving then unpacking, hated not getting on here as I missed you all 🙂

The young bride and I can’t wait as we are really ready for it bit of sun on me bald head will do us both the worked of good and get us ready for the next run of drugs.

Take care and stay well you all.

Tom…[Read more]

Hi Carol

Hey a well done you and your stem cells that’s the best I have heard of 😉
I collected enough for two in 3/4 hours but they put them in three bags so they gave me them all back so have none in reserve :-/ .

Am sure whatever you wear they will ask q good luck and hope your cells are not in the freezer for long.

Love Tom onwards and…[Read more]

HiTtom, had the same problem logging on a couple of weeks ago, I made sure I had completely looged out, closed the window and then was able to log on again. Have a good break, there’s a lot coming up for you I’m sure.

Hi Chris

Well done on the remission am pleased for you.
As for the Maintanance regime I was never asked if I wanted to go on it so am not sure what I would have done to be fair.

But I gad my SCT in December 2009 and I gave had four years remission drug free which was great for us all sorry to say the myeloma has become active again, but four…[Read more]

Hi Chris

I had my SCT in February 2012 and opted to go drug-free afterwards. I personally couldn’t see the point of going through 6 cycles of CTD and having a SCT, only to immediately go on more drugs afterwards that would not let me be side-effect free for my unknown length of remission.
I’ve almost reached my 2 year point now and have never…[Read more]

Hi Chris, firstly happy new year. I had my SCT beginning February 2013, took a while to get back to ‘normal’ but almost a year down the line and I feel great, I have had one stay in hospital for three days back in August with an unknown infection and currently have a nasty cold, but that’s it. I opted for no maintainance although I am still…[Read more]

Ditto, we live in hope but we must stay positive about our own situations. All the best for the future.

Richard