Hi Maureen

Glad that Ian is feeling well enough to go out tonight. Hope you both have a fantastic night. I am nipping repund to one of our sons of a couple of hours. Frank is loaded with the cold and insists I go. Hacpve a happy and healthy 2014

Love Jean x

Happy New Year to all, may 2014 be a good year for us all.
Regards
Tony F

Hi Carol
Well my hair definitely started to thin when I was taking the CTD drugs and came out very quickly once I’d been prepared for stem-cell harvest.
Like yours, my scalp was very sore.
When I had the final “toxic” dose of chemo in SCT week, that sealed my hairs fate and it literally fell out completely one night.
My pillow looked as though a…[Read more]

Hi Ang
Well, at least we will both be able to communicate with the outside world, all the best for the next few weeks, Thumbs up!

Richard

Well, at least we will both be able to communicate with the outside world, all the best for the next few weeks, Thumbs up!

Richard

Hi Ang, all moving along nicely with graham then. I’m sure the SCT won’t be longer after the consent. I’m dreading coming back home after because my wife has already got plans to put me in quarentine. Our daughter will also bring back various forms of mutant strains of bacteria and viruses from school that I will have to be wary of but I’m sure…[Read more]

Carol, firstly Merry Christmas. Re SCT it’s your decision but let me say that I had a SCT in February, not the most pleasant of experiences, but you can do it. It took a while to get back to normal, but now I feel great my PPs are down to 2. We have travelled abroad and spent time around this country. I now have 3 monthly appointments at the…[Read more]

Hi Carol,

Good news about the stemcellharvest, lets hope you have enough. Just the SCT to go now and then the long road to recovery for all of us. I have my date for going in, that’s 10 Jan. The week before it’s a trip to the dentist, an ENT specialist, lung and heart checks. Already received the container for urine test and a stool test as well…[Read more]

I’m a carer and I know how you are feeling. Frank smouldered for 7 years. I always had this scared feeling in my stomach. I went to a counsellor and it really helped me. I don’t know why it’s taking so long to see one. I went to the Macmillan centre attached to our hospital and talked to someone there and told them exactly how I was feeling. I got…[Read more]

Hi Maureen

I echo your sentiment. Hope all have a great Christmas and healthy new year and pray that some major break through happens in 2014

,au teen hope you are good and that Ian is improving

Love Jean x

HI Jean and Frank

Sorry for delay but am now back on line 🙂
Also sorry to hear Frank is not well, I hopw he is soon sorted out and back to “Fine Fettle”
Love Tom onwards and upwards xx

Hi everyone
Sorry I have not been on for some time but I have been busy packing and moving home, nw settled in a nice two bed bungalow, renting it and have shoved the money from the sale of our old house in the bank, now no money worries ha ha.

Yes am sad I only got four years but happy that I have another treatment to move onto, Elaine (the…[Read more]

Morning Carol

Well as I recall it the more pain the better mine lasted three days, as for childbirth lol I know nothing he he.

I got enough stems out in one day took three or four hours

Good luck with yours.

Love Tom onwards and upwards xx

Hi Ang.

Good news that Graham has got his tests out of the way, I still have to arrange mine, they want lung function, a check by an ENT doctor and dentist as well. I jave been told to expect to go in 2nd week in January, Visit to the hospital on Monday so hopefully they will confirm. have a good xmas and enjoy it.

Richard

Well Grega, glad you could join us. As for timescale, everyone is different but there is a form of timeline. I had my last chemo session end of October. started prep for Stemcell harvest on 1 Dec. with the injections to stimulate Stemcell production. Harvest was done 9 Dec and took about 3.5 hours. I have been told that the SCT will begin 4 weeks…[Read more]

Hi Frances

My husband had STC IN March this year and turnd 70 in April. Consultant told us that they don’t usually do SCT at 70 but she said that Frank was fit and healthy (!!!!!). He had heart and lung tests and all was ok. I think it depends on your fitness. There are quiet a few people on the forum who decided against SCT and are doing ok. I…[Read more]

Hi Vicki

Frank is a bit like Colin. Last week he was up and down. Every day was different. One day he cleaned all the windows inside with no problem. Next day he was knackered. This week he’s been great. Two nights in a row we have been out for dinner with friends and tonight with family and on both nights we went to the theatre !!!! He’s…[Read more]

Hi, almost the same as jeans husband I was 68+ when I had my stem cell transplant! last February. The only treatment I have now is a monthly penidronate infusion, visit the specialist every three months. So it can be done.
Hope your dad stays strong.
Regards
Tony F