Hi Mandy

It is totally understandable you are feeling anxious with panic attacks.
You have been through a lot of complications as a result of your myeloma treatment and you are now facing more major treatment with your SCT and Kyphoplasty. It is such a shock when you are diagnosed with myeloma, but it is also emotionally hard to go through so…[Read more]

Hi Helen

I'm really sorry to hear your myeloma has relapsed. It's no wonder your emotions are all over the place, it's completely understandable.

I think it was very fortunate your consultant recommended a bmb otherwise any abnormalities of cells would not have been identified so early. At least with you quickly changing your treatment…[Read more]

Afternoon Ann

I would phone up your support myeloma nurse at your hospital to discuss your current treatment. Ask when the cyclophosphamide part of your CTD regime will begin, when you are scheduled to take your second bisphosphonate and at the same time you could ask whether there are going to be other drugs introduced into your cycles such…[Read more]

Hi Ann

Good news about your MRI scan results showing damage to only one vertebra. Hopefully you will be able to sleep better when the bones start to heal.

You mention you are on CTD treatment and say you are taking thalidomide and dex steroids, but you do not mention the cyclophosphamide drug which is the initial chemotherapy part of the…[Read more]

Am sure you could cut the feet out and let your legs stick through, and am sure it will keep you warm in Coffin 😀
Don't forget photo (before you need the Coffin ha ha

Tom

Do they make them for 6'+ blokes?

Be good to wear in the coffin, may surprise a few people.

Hi Ann

I hope your appointment with your consultant goes well this week and you learn the results of your MRI as well as asking the many questions which no doubt you have thought about since your last visit. As regards planning lots of family events this year, before you actually book anything in advance, I would see whether you possibly…[Read more]

Hi Helen

So sorry that it is a relapse and not a blip. Weird thata you feel so good. Maybe that's an omen that you will,have lots of energy for the next round 😛 you have such a positive attitude, I have everything crossed for you

Love Jean x

I just might take it to Asda and have a walk round Lol

Tom xxxx

Hi Peter

Bald? me?? well I must have a look in Mirror, am sure I have a good head of hair? al be back in a few mins ?
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WOW am Bloomin Bald :-0 Now I wonder when that happened???

Might have to look at "Wigs" what Colour should I have??
The "Red" will do you the world of good 😀 and may I say nowt wrong wi your eyes…[Read more]

Thanks folks as you can see I love it and am comfy in it 🙂 Dai you Must Post a photo for us all to see.

Tom Onesie'd and Onwards and upwards xx

Aww Helen

Am, sorry you got the confirmation about the relapse 🙁 big hugs to you (hug)

And as for all over the place you are entitled to a bit of that but it will soon be time to take the new challenge on and go down a new route.

Fingers crossed for you Helen 😉

Love Tom Onwards and upwards xxx

Yes good post now all we need is a few Newbie's to start it off 🙂
As Tom says we have deadlines to beat.

Just came across this thread because it had started and lay dormant before I had joined the site. There are elephants around, big ones as well but I think what has helped with MM is that I've always had a bit of a big mouth and prefer to have things in the open. Friends and work colleagues both know that I have suffered two bouts of depression in…[Read more]

Well, you're certainly way ahead of me when it comes to treatment but already you seem to be doing pretty well if you've got this far without any major ailments. I think, like me, you're getting pretty fed up with hospital visits, I am 49, diagnosed at the end of Feb and have already spent a total of 4 weeks in hospital. If diagnosed in Sept 09…[Read more]

Hi Mandy

Welcome,,everyone on here will tell yo the Myelma journey is like a rollecoaster ride,mentally and physically ,everyone is different,plus add the equation of carers ,you get a real mixed bag!!!!,so every thing yu are feeling is normal.

It sounds if you are doing well,had a few blips,but on track,to help your back!!! Plus SCT,it…[Read more]

Thanks Ellen for passing on Sues message. My thoughts are with Keith and Sue I too remember Keith's postings from the old site. He was a great support to many. My love and prayers are with them both

Love Jean

Hi Helen
Well it's a shame you ain't on Face Book, but I have posted the Onesie on the General board as I don't want to shock folk with a chest infection ha ha.

Love Tom xxx