Hi Helen

Lets hope you find the key
Slims bloods are good,even kappa light chains showing rise,but on the 7 May it will be 3 months from the last BMB he will have another ,then the wait until 24 May for results. 10 percent three months ago.i wonder what it will be in 3months and 3 weeks.??? It is hard to just have BMB as marker,.

They…[Read more]

Hi Helen.
Oh the joys of MM. As you say it's a roller coaster of a ride this journey of ours. There are reasons to be optimistic – plateau, few plasma cells etc. as for the back pain hopefully that's just a consequence of over use. Neutrophils 1.0 that's the norm for me.
You say you feel great at the moment well to me that's a good indicator…[Read more]

Hi Ian
I'm on RCD. Revlamid is taken orally for 21 day then 7 days off. I don't get many side effects from the Revlamid but it can make you tired and depress your neutrophils. My main problem is with the cyclophosphamide side effects which are nausea for 2-3 days after taking it. It can also depress your neutrophils mine hover between 0.8 and 1.1…[Read more]

Hi Vicki

Frank is doing ok – I think :-S He is getting his appetite back. Eating small amounts but few times a day. He has had a G& T, Guiness atnd beer. Hasn't got the taste for wine back and vegetables, he won't touch them. Doesn't appear to be putting on any weigh. Going tomorrow to see consultant

How is Colin now?

Best to you…[Read more]

Hi Terry

You are in the shock stage,Slim only got 6 months between 100 day BMB and the next one,your life turns up side down,we thought he might get 2 years,so yes it,s a bit of a bummer,Helen says it bites you in the bum,when you do not expect it,I call it a shark attack.

Slim worries about me,why???.you cannot change the future ,I want…[Read more]

Hi Helen

More more ups than downs pleaseA :-D. Hey why did they take your spot of you damn cheek !! Hope all comes right
love Jean x

If the CTD mad such an impression on the MM after just one cycle, I too would stick to it.
Getting the virus was just very unfortunate, but shouldn't cause a drastic change of treatment plan.

It took 6 cycles to get me into remission. It was pretty gruelling but well worth it. The drugs did their job and the side effects all turned out to be…[Read more]

Hi Terry

Only you know your own personal financial circumstances and whether you enjoy the job you're currently doing or not.

All I can say is that if I could afford to give up a job I didn't enjoy, I would.
The impression you give is that you don't enjoy the work you do and you'd rather be using your time up restoring your cars. Maybe…[Read more]

Hi Terry

As long as you don't have an extraction, I was told that there's no problem with just a filling, but you must tell your dentist of any drugs you're on, particularly biphosphonates. (eg Zometa).

I'm sure the most painful bit for you will be the cost!

I hope you get it sorted quickly and easily.

Michele.

Hi Mary

No am sure you wouldn't want to "Shove" him in another room ha ha.
It will all work out am sure. give the dogs a good wipe when they come home 😀

Tom Onwards and Upwards xxx

Hi Maureen & Ian

Doing Better now been on Anti B's for 5 days now so think am ready for back to work Tem is Normal now and last nite so its gone 😀 ps its Vodka and lemonade Lol

Hi Jo

Am sure you didn't yours was bad I dint need hospital am pleased to say just a couple of extra days added to our week end and fixed.
My Tem was running…[Read more]

That's what we love to hear David "So far so good nothing out of the ordinary to report"
Lets keep it that way My Friend.Vasbyte

Tom Onwards and Upwards 😎

Hi Joanna

Welcome
Sorry you came off CTD due to being sick, but am sure you will go back on it it, its a good treatment worked for me in 2009 and yes I was sick with it off and on two stints in hospital (Early days) but stuck with it and here I am in 2013 in remission and drug free 😀

Now how's that for "words of encouragement" Good luck…[Read more]

Hi Terry

Yep I remember you 😀

Now work?? Now I enjoy my workplace and work Mates so I made the decision to carry on working (for me no one else) and so far its done me good, had a few dips when I felt should I but soon came back to yes I love it 🙂 .

I am blessed by working for a company that has looked after me and has sorted a job…[Read more]

Hi Terry

We all know about MM,it is how you see it,and how it effects your life.!!!

Take mM out of the equation ,and do what ever Floats your Boat,my husband believes look after number one first,might seem selfish,but it works for him. As a wife and mother,I have different priorities ,??? Or is it just the fact that women are natural…[Read more]

Good luck with the SCT, had mine at the beginning of February, was in hospital for about 3weeks. Had a rough time for a week, but after that wanted to get out of isolation.Very strange getting home, my wife made sure that all surfaces were cleaned, separate towels, separate bedroom etc very little contact with people for a few weeks. Appetite was…[Read more]

Hi Charlie and Mary

SCT already seems like you were new on here not long,you had a few blips and now going forward for SCT.:-)

Well you have has good advice from above,it is hard work once there home,are you having it done in Southampton or Kings,try to get the SCT out of the way first,. My advice is do not bother to buy new clothes…[Read more]

Andy
Am sure you are going to get used to this "Good News" not be long before you know its gonna be good in yourself.

Every Day is Certainly "A Gift"

Stay well Andy and you and Steph have a Great time in Greece.

Tom Onwards and Upwards x

Hi Mary

What Tom says is right. The cleaner the better. Frank came home after SCT 2 weeks ago. He did try to climb stairs as soon as he got in but didn't make it. Couple of hours later he did. Now it is his daily exercise – climbing the stairs. I would add to vet all visitors. Mind you I only allow the family and no one else. They know that if…[Read more]