Andy I Hot Nite last Nite (aint my young bride the lucky one lol) no but had a bit of a temp last nite pillow and covers wet :-/ so decided to stay at home today and think about work for Tuesday.

So had a good lay in till 9.30 up and showered breakfast then dog for his walk, so far so good 😉 phoned work and told them I cant tell them if I…[Read more]

Hi Mary and Charlie

Well we all differ in our outcome and strength Mary but am sure eggs are eggs Charlie will be able to walk upstairs 😀 they will be no rush mind but he will be able to do it 😎

it will bode well if its clean and germ free, door handles pull cords toilet flushers, drawers and cupboard handles all given that Extra wipe…[Read more]

Hi Vicki & Colin.
Sorry to read that Colin was back at the hospital yesterday. I do hope his fatigue is down to him doing too much too soon. I can't believe he went back to work so soon after his SCT. I can't imagine my returning to work at all at this moment. Everyone's needs and journey are different I know but I think one constant is the…[Read more]

Hi David
Just want to wish you good luck for your journey with velcade.

Every day is a gift

Andy

Hi Jean.
I was told when I was diagnosed that although the delay in starting my treatment wasn't ideal it shouldn't effect my treatment or outcome. I had 18 months of back pain before I was diagnosed so how long I'd had MM before that is anyone's guess.
It's a good idea to take your list of questions with you and write down the answers given to…[Read more]

Hi Eve.
Slim does seem to be having a rollercoaster of a ride with his rotten mm. Hopefully he won't need to start treatment again soon. Though I can understand the thought – it's back let's get treatment started again straight away. The trouble is with limited drug options the longer you can put off treatment the longer those limited drugs have…[Read more]

Hi Tom
It's good to know your temp is under control and the antibiotics are doing their job. It won't be long before your raising a glass or two of vodka in celebration. I'm sure Eve and I will join you with a little tipple of our own 😛

Every day is a gift

Andy – cheers

Hi all.
First of all can I thank you everyone for their support and good wishes. It's new terrority for me to have some good news 😀 not sure how to handle it lol. Though weirdly it has put more pressure on the next blood tests. Usually I can forget about them till nearer the time but this time I'm more conscious of them and hoping the last…[Read more]

Hi Sue and Helen

Thank you for information Sue,my daughter tells me the lesions on the shoulder blades will be very hard to define new lesions as it does not show up very well, he is having difficult taking clothiers off because of pain,the lesions on the skull are easier to spot,he has told us no more lesions on skull,this is when I approached…[Read more]

Hi Dai

Just a quick one have you seen the home page on drugs available !!!!!!!!

Hi Tom

Coach trip seems a good idea,as you say no driving,I drive now for long journeys.

We like the freedom a Motorhome gives you,but must admit will want to know we're the hospital is. I am determined this Myeloma is not going to take everything away from us. We will still take trips to France but only within a 24hr distance..
This is…[Read more]

Hi Gill

Yes Gill it must be unbelievable to grasp, but as you say you have great and wonderful memories you had planning the transformation not only the house but the garden also.

You have them forever, enjoy them.

Love and Hugs

Tom.
Ps you stopped using face book? x

Hey Vicki

Well am sure no one knows what is normal Vicki I as sure don't as you know I read many, many a post on here and we don't have so many the same we are all different in our well being and our strengths and weakness.
As you say Colin had sct 3 November coming out of hospital 25 November?
Colin has had "Major Surgery" I know it doesn't…[Read more]

Hi Jane
Lord knows what I have been up to, and my memory is that bad av forgot it Lol, getting along just nice now still got a little bit of pain but the temp has near all gone.

Vicki and Colin
Well am sorry but the mainstay was broken for a little while, but the mainstay is near up and runn erm walking Lol, and honest I have to admit my…[Read more]

Hi Andy and you to Vicky

Vicky we are all a bit paranoid ,that's why everyone says its like a roller coarser lots of highs and lows,you are both expecting to much,if you look at SCT as major surgery,then you would not expect to be fit. Andy Tom everyone else will say listen to your body.

Andy I am so pleased for you,it is an awful…[Read more]

Hi Eve

Am same to be honest but am still in remission, but the thought of me going abroad and getting ill scares the hell out of me, all that Money to pay that I aint got house gone up to our ears in unwanted debt (that's if some one would give me a loan to pay Medical Bills)

So this year The Young Bride has Booked us a 5 day Coach trip ??…[Read more]

Hi ladies

With Slim being deemed to be out of remission and will have to have BMB every time they need to know how is myeloma is doing,plus more blood .it has made us rethink are plans.

We thought France safe to go only to find your European Health card will only cover 79. Percent of emergence treatment, so getting caught out could be…[Read more]

Hi Jane

There is no point SE is all the same medical team,I know this team well after 2. 1/2. Years I might have my moments with the consultant,but most are the same,when they get that high up, I did think may be general treatment at another hospital might be quicker but I think overall the unit has improved I will let you know if I am…[Read more]

Hi Eve and Slim

Yes I think the takings should be down as I haven't been down since last Sunday. That said I don't that often these days have you seen the cost of drink its a scandal Lol.

Thank Slim for his Best wishes 😀 now am gonna blush lol xxx

Hi Tom

Your local club must have had there takings hit. Lol you know I sympathise with you,not having to go to work,you poor thing!!!its a hard life. I hope it clears up and you are soon back on your feet,missed you on Facebook. Love Eve

Slim sends you his best wishers.