Hi Dai.

I've been on Zometa since October 2011 and I have it once every 4 weeks. It has two actions, I'm led to believe, one as a bone strengthener and another that it has been shown to work against Myeloma as well.
I haven't been through SCT so maybe my regime maybe a little different but I haven't been told I will be coming off Zometa though…[Read more]

Hi Andy

I think the reason your not on here often is that you are always out on the Razzle Lol.

Good Luck on Cycle 14 and with "Chemo Brain" soon you wont remember how bad it was Lol.

And listen Folk it isn't Eve's I Pad it is the GT 😉

Tom Onwards and Upwards

Yes I also am hopping Keith is ok and its just a rest he needs from the Forum thing and shove the MM to the back of his mind.

Tom Onwards and Upwards

Gill that is a really lovely photo 🙂 . I'm sure it brought back wonderful memories.

Love Jean xx

Hi Richard

I might be wrong?? but the medical for HGV is to check heart, Eyes and BP ?? as has been said the combination of drugs might put you on a fail?? I drove (car) all through all my treatment CTD and SCT no problems
All the best with it.

Tom Onwards and Upwards

Hi Maureen and Ian

Well the only people that can look after a loved one is a loved one am afraid.

Its so tiring being a carer more so than us that have the MM, please look after yourself as well as Ian, I hope the treatment is soon started

Love Tom Onwards and Upwards

Ann that's great about Pete going back to work I'm sure you are both delighted that he has come so far in such a few weeks. Well done Pete 🙂 . Frank also has no energy, he is eating a little and had a choc ice cream this afternoon. He also had a Guiness last night and is having another one tonight. He had a sip of my wine and he liked it but…[Read more]

Hey well done Jean, Frank and his team Now that an Onwards and Upwards result 🙂

Franks count is good and yes it happens fast 🙂 but he will still need to take it easy and before long Frank will be Spot on.

Now Breath xx

Love to you Both

Tom Onwards and Upwards xx

Hi Sandie
Not a problem am just pleased your Mum is not as sickie that was one of the things I didn't Like.

Give my Love to your Mum.

Love Tom Onwards and upwards xx

Hi Gill now what a great find, Lovely Photo, I bet its now in pride of place (hole or no hole)

Love Tom xxx

Hi Sue
Am sorry but pleased you never scattered the ashes as you knew it was just not right for you, wrong place or just too early only you will know.
I wish you luck on your choice because as and when you choose the girls am sure will be happy.

Love Tom xxx

Hi Gill

It's lovely to hear from you,how are you getting on,??? When do you go to France,the first year is hardest,I hope to hear you have a smile on your face thinking of all the good times you had with Stephen.

Slim looks great curly hair and has put on weight!!!,aching bones bad back,and co ordination a bit off,good job we have plenty of…[Read more]

Thanks Mavis and Babs

I have seen what they offer at Cancer Club plus Hospic,I have all ways thought it was for the patient not carer.
If I tried to get Slim to go he would not want to know,stubborn is his middle name.

Thank you Mavis I know are believes are different,but I do have a lot of respect for people who can hold there faith,…[Read more]

Hi Vicki and Eve.
I also use an iPad, the mini version in my case, and I find it a lot easier to post now 😉 mind you I was using an iPhone previously 😀

Hi Helen.
The sun does lift the spirits and I think the last trip we had to Greece gave me a real boost and I'm sure it gave me a new outlook to life.

Hi Jill.
I take my Revlamid at…[Read more]

Hi Maureen

You are learning fast,keep you eyes open only way to get good care.

Sorry you are so tired have you tried catnapping I use to come home from hospital take phone of hook and go straight to bed, before that the phone rang just as I was dropping off,I cannot repeat what I said to who ever it was.

You do need to recharge your…[Read more]

Hi.
Sorry I can't help with your concerns over doxorubicin in your mothers PAD regime. I can't recall anyone posting a problem with it either. The difference between liposomial Dox and ordinary Dox is that in liposomial Dox it is wrapped in a fatty covering to allow it to stay in the bloodstream longer and hence have more exposure to the myeloma…[Read more]

Hi Richard.
Sorry I can't help with your HGV medical question. Since I've been on treatment for MM I have been reluctant to drive firstly because of my back it made it very uncomfortable and I doubted my ability to brake hard in an emergency. Then when my back improved so I was confident I could drive I found that I couldn't concentrate for very…[Read more]

Hi Rebecca.
I was told when I was diagnosed in Oct 2011 aged 51 that due my age, classed as young 😀 , and due to being fit, I ran marathons, I was lucky because they could attack my MM aggressively and get me to SCT quickly. Well here I am 18 months later after having everything but the kitchen sink thrown at my MM with my PP's still hovering…[Read more]

Hi Dai

The way they work it you begin with Zometer once a month,but it becomes less effect as time progresses,by the time you haveSCT or remission you attend hospital every 2 months so they fit Zometer in with your hospital regime Eve