Hi Vikki and Colin

Don't apologise Vikki I know exactly how you are feeling. :-S congratulations on your promotion well done you. I don't want to sound selfish but three years ago I had the chance of taking early retirement and after talking it over with Frank I did. Don't get me wrong I wouldn't change it but I sometimes wish that I had…[Read more]

Hi sue

Only do it when your ready!!

Matty's ashers have not been scatted yet and it,s coming up to a year.
They have been remon
Ved from the thing from the undertakers,my daughter bought a beutiful globe,I told her if she gets burgled that's the first thing they would take,the family are. not ready and have not found a resting place for…[Read more]

Hi Helen

Mind running riot. As Franks PPs were dropping long before CDT consultant suspected non secretory. Nothing was done to find out but Ellen had said it would be very unusual to change after 6 years. As far as I know a BMB is the way to find out if there is any progression of the MM. seeing her on Thursday so will ask then

I have…[Read more]

Hi Wendy

Loved your blog on your trip to India. You really had a blast 🙂 You are very determined lady and long may your adventures continue

Jean

Rebecca

I think the person who told you that was talking about all cancers,
For example myeloma if caught early there is less damage to bones nothing to do with age,but a younger person is fitter and healthy than a 70. Year old.

My husband is 69 this year used to be very fit ,so was able to have SCT but at his age will not be offered…[Read more]

Chemo cancelled again, this time because of liver. My Aspartate Aminotransferase (AST) level apparently should 0-50 and is at nearly 300, my Alanin Aminotransferase was 20, now its 400. The Onkologist thinks it's caused by the red drug in the Chemo, he's done a ultra scan of the liver and that is ok.

Back on Thursday for another check. I don't…[Read more]

Hi Wendy

Loved your blog;-) 😀 🙂 😎

Keep going ,I admire the way you keep going.Love Eve

Hi Andy

The surgery should help with pain so bring it on.
Thanks for news on Keith,funny we never met,but you do find yourself wondering are people alright 🙂

You have been through an awfull lot of treatment s,I have alittle in sight to how you feel,I hope a Donna comes forward soon better than a doña as in one of my post to you:-P…[Read more]

Hi Dai

That is sound advice8-) 🙂

We have just had a problem and rang up Mac Millan . We were both amazed how much they helped us,and you know me,it takes a lot to please me. Lol

Slim rang because mu daughter and friends asked why we were not claiming VAT off are new vehicle ,truthfully I did not know we could.!!

Any way we rang…[Read more]

Hi Dai.
Keith is married to a lovely woman. They're always together when I see them at the hospital for treatment or at the support group. I don't know if they have children.
Regarding his posts we've all been there when we are feeling a bit under the weather and can't be bothered posting. I myself don't post much now not because I'm not well it…[Read more]

Hi Tina.
I was at the day case unit Friday, Keith and I go to North Tees, and I asked about him. Of course they couldn't tell me anything about his condition but they let me know he was on the ward. As you may know he has been in and out of hospital since new year and regularly at the day case unt. I've recently gone from weekly visits to monthly…[Read more]

Hi Gill

I lost my mom almost a year ago to acute myeloid leukaemia (AML). She was unexpectedly admitted to hospital with a high white cell count and diagnosed immediately with AML. Unfortunately, she died ten days later due to a fungal and viral infection in her lungs. She was treated on the same ward/same hospital as my myeloma treatment…[Read more]

Hi Ozzy

Would like to know more,as when I approached the subject of Velcade again it was. not recieved very well. I just think Slim did well on Velcade,and he is starting to use options up quickly without much remission or in the case of CDT,it was in affective.

At the moment my feelings are that I am angry the way our questions were…[Read more]

Hi San,
Can't be nice for you or your mother. I am certain that if we'd stayed in the UK my MM wouldn't have been picked up until a lot later, like your mother. There is a difference in attitude here, it's about spotting things early so that costs are kept down later, the UK seems to be about saving cash upfront which then leads to excessive…[Read more]

Hey Peter
Well done you 😀 ( oh is it wrong to advice folk to drink??) Life as you say is Great and am sure you will soon be on the red :-).

Vickie
I think my Vodka goes ahead of me I think Lol, am pleased Colin has got his white back (don't do white) 3 glasses then sleep sound darn good to me ha ha.

Take Care you all

Tom Onwards and…[Read more]

Hi Nikki

Sorry Nikki I seem to have missed this post 🙁 and am sorry for the late reply.

Good Luck to your dad in his road to remission, I assume you looked through other post on here re do's and dont's through SCT for advice?

love Tom Onwards and upwards xx

Hi Gill

Well you are doing good and 7 months is still a very short time yet.

I have over the years lost many a friend/family, and I talk to one of those often, Ian was an old workmate of mine for many many years, he was also a drinking mate of mine for many a many a year, as was his Family.
Some time I well up when we talk about him with…[Read more]