Hi David
Hope your doing well with the treatment and this "Sun Thing" isn't too much of a bother for you.

I recall now that you had your SCT about 11 months after me.
Stay well and Fit

Vasbyte and Onwards and upwards
Tom

Hi Mohammad

My husbands Amitriptyine was increased from 5 m to 25 m.by consultant in Kings Hospital London for PN,see consultant!!!!

Also I used a coco based buttermilk cream which I massaged his feet and legs,I still do this as it helps circulation plus helps with dry skin.
Eve

Hi Vikki and Colin

Frank got home on Tuesday – 2 and a half stone lighter with no energy and very tired. I told him this was what he had to expect. We were at consultant and she said with the exceptions od the neutrophils his bloods were good. He has started to eat small bits of food – and I mean minute but at least it is come thing. And guess…[Read more]

Hi Gill

Two steps forward ,one step back, you are taking little steps!:-)

I cannot help you with the grief of Stephen.but grief of anyone takes time and it has to be done individually .
My daughter and I talk about Matty her son,my first grandchild all the time,some times laughing,some times tears. 16 is no age to die.

I hope you find…[Read more]

Thanks again for everyone's good wishers,

We go to see consultant next Friday,for more results,that they have known the results of for over. 2 weeks,never mind about Slim he,s just the patient!!!

At first we jumped from positive to negative ,now just preparing for more treatment ,Slim more positive,one because he has the mentality of a…[Read more]

Billy

A number of people on here,had problems with private insurance,one I can think of is Gill,her husband was at deaths door,and insurance still would not pay,I do not know if they ever recieved the insurance. Before he died.

The insurance make it hard to claim,there is only one way to go, Name and Shame to a national paper.Eve

Hi David

Just want to add my good wishes to you on your journey with Velcade. I hope it's good to you

Love Jean x

Hi Jane

Only 31 not to bad lol, some one on here use to put Dex tablets in yoghurt might be worth a try..

Hope things go well for you Eve

Hey Peter I had a femoral line in don't do Hickman's as the get infected easy, and I am on glasses now femoral line has been removed Ha ha.

Eve now don't you go blaming the Ipad as it has a spell check with it Lol, and I know you could never run out of nerves Lol.

Love to you Both

Tom Onwards and Upwards xx

Hi Mohammad

The Consultant I mean is the one that is dealing with your Mum's Myeloma and or the nurse in his department.

I am sorry I cant add anything else Mohammad as am sure this should be left to your Mothers consultant.

Good Luck and give my regards to your Mother

Tom Onwards and Upwards

Hi Jacquie and Geoff

Well Done, I got enough for nearly two but they put them into three bags instead of two 🙁 so they used them all 😎 av none in reserve 🙁

Good Luck with it in June and go and enjoy your holidays

Tom Onwards and Upwards x

Hi David
Sorry to hear about your relapse 🙁 just remind me how long was it since you had SCT (me brain has gone??)

Good Luck with the Journey with the "Velcade" and I hope its gentle with you.

Vasbite, Onwards and Upwards Tom

So far, here every one has been really good, If an error is made they admit it, usually it's me that makes the error. Couple of weeks back in hospital I was asked by one of the nurses to provide a urine sample over 24 hours, unfortunately I asked for him to speak only German so I could learn, by the time I worked out when the sample was to start,…[Read more]

Hi Richard

Things like that happen here in Norther Ireland. Frank went in on A Thursday and the chemo was to start then and stem transplant on Friday. We were told lies (contradictory explanations) but said chemo would be late and that would mean the transplant would be late on Friday and they couldn't do it as there would be no consultant or…[Read more]

Cheers Megan, here weekends are treated as sacrosanct. Shops close on Sundays, over Easter everything was closed on Friday, Sunday and Monday. It was great, proper quality time with the family, no chasing your tail in ever decreasing circles, proper time doing what we wanted, not what we had to. Right, rant over, orange box away… We at least got…[Read more]

Hi San, the Occupational health people here believe that the link between Benzol in Diesel and MM is indesputable, the say it can be absorbed 3 ways, ingestion, inhalation and through the skin. They also say that the active agent in Diesel is also apparent in fumes as well as in the Diesel itself.

We have found a copy of the outline report by…[Read more]

Thank you all for your responses

Unfortunately frank has little energy so for the moment I won't suggest he makes me some cheese on toast but I will when his energy improves 🙂 .He is still eating very little but he is eating!!

David I have Dettol all over the house and hand sanitizer sits by the front door. No one gets into the room till…[Read more]

Hi Peter

I was ging to say that about Tom bu ran out of nerves,he keeps an eye on my post in case I take the mick.lol
Sorry about spelling this I pad has a mind of its own, Eve

Ho Jean

I am so happy for you,they are good bloods,and I am so happy you have a first class consultant who knows there is no way a man who has had a SCT should be waiting three hours in clinic

Tell Frank if you cheese on toast is not good enough,he can make it all the time and give you a rest. love Eve