Hi Vicki and Colin

Sorry Colin that you have the dreaded lurgy. Gastroenteritis is such a painful and dibilating thing. I hope you get over it soon.

Frank and I have just did three laps of the Unit. Consultant in and he asked her if he could come off the drip to have a shower and a bit of exercise. He has been let off til 4.30. He was…[Read more]

Hi Jane

You will be fine just don't try and do too much during your Off days.

And I now have you on my Face Book, please be gentle with me Lol

Love Tom Onwards and Upwards xx

Hi Lesley

Never been one to shy away from "Scary Headings" ha ha.

Yes Dodgy Bones works for us but to be fair Kids hear more than we think they do to be honest, mine have seen me in a few bad days and a few times when I got "Not too well" while we had them and had to send them home, but hey ho we all cope 😎

Good Luck with your Hair,…[Read more]

Hi Richard

Well am sure you will not be wanting to do Lorry driving through your treatment, and your Insurance sounds Top Notch

I also Like you saying "Pick yourself up, dust yourself down, move on."
Am sure that works well.

Good Luck to you Both in the road to remission.

Tom Onwards and upwards

Hi Trish and Peter

Well its going to be hard keeping away from folk I remember having them in my late 30's and I had to go to Dr's and he used to check on them I asked why I could come into waiting room and sit with Pregnant woman, kids and old Folk but not go to work (he put me on sick) he just said I need to keep an eye on you?? Doh.

Hope…[Read more]

Hi Dai

Sometimes these experts forget what it is like for the person with Myeloma,and we can make up all the excuses for them,we know they have to be practical,but I do think they need to go back to school and take lessons in compassion and politeness .

I would not wish this disease on anyone,but they should show some understanding how we…[Read more]

Well, being one of those just stating on this journey, it's nice to know that there is success, albeit maybe partial at the end. Happy Birthday to them, I'm sure you'll make the most of things.

Thank you for your kind replies, I'm afraid it has sunk in simply because my daughter is so young and everything we do now will be towards giving her as much as we can in the way of love and memories for as long as we can.

Thank you Nerys for your kind thoughts, I was very touched when I read your Newby thread and the plight of your mother.…[Read more]

Hi Lesley

During my chemo, I stopped colouring my hair basically because like you I was so tired and had back pain from my collapsed vertebra. I wish someone had told me to get a haircut asap during cycle 1 or 2 before any possible side effects from the drugs kicked in. I had so many hot flushes and night sweats during treatment that my hair…[Read more]

Well done Babs. Happy birthday cells 🙂 and may you have many many more. Franks were born on 5 march. Still in hospital. Some hic cough but hope to get him home soon

Take care have a ball and enjoy your holidays
Love Jean x

Hi Dai

As I do I hate (though we have to) have my bloods taken every four months now I think?, then wait four days before I get confirmation that all is well, its not a good feeling.

I hope you can continue with your treatment and all picks up.

Stay Well and Fit

Tom Onwards and Upwards

Hi Nicki and Sam

Well done you two and your team, that's great news and long may it continue, hope the peripheral neuropathy stays mild.

Great news
Love Tom Onwards and Upwards xxx

Hi Sandie

Am sorry to hear about your Mum having to cope with Breast Cancer as well as MM and hope it shrinks with the treatment that she is having for MM.

My Young Bride (Elaine) was diagnosed with Breast Cancer in 2008 (Grade 3, estrogene receptive) and this summer she will be 5 years clear :-D, Elaine had a Lumpectomy and 5 lymph nods…[Read more]

Hi Lesley

I wondered why you made this ::: A question for the ladies ?? Then I looked at my photo and looked in the mirror and realized why you didn't ask me Ha ha.

Good Luck with it, our Grandkids don't know about my MM they just know Granddads got "Dodgy Bones" 😛 .

Take care and stay well

Love Tom Onwards and Upwards xx

Hi Jean and Frank

Aww Bless you two, its an uphill struggle for most of us and a bit harder than that for some, and you two are a pair of those.
Stick with it Jean you know he is getting looked after and I know its hard for you also so you must take time out to rest.

Did you get a reply from the other Dr about treatment carrying on ?.
Am…[Read more]

Hi Richard

Welcome but am sorry you had to be here.

What treatment regime are you or will you be going on?? I see you put its an Insurance that will be paying for your treatment? how will that work.
How/why did you lose your licence for HGV due to your Myeloma? how will you fail it for what reason.

Its going to be a rollercoaster of a…[Read more]

Hi Sandie

So sorry to hear of your mums news. Life can be so unfair and some get dealt really bad hands i don't really understand about "grades" but your post indicates that it's not the worse kind, but any sort is bad news. My thoughts and prayers are with your mum and your family. Take care and God bless
Love Jean xx

Hi Megan

It's good to read that other people have the same problem that was rectified. (Boy that sounds weird but hope you know what I mean 🙂 . They were supposed to take the Hickman out yesterday – didn't happen and then they said today. Frank just phoned to day that it would not be happening. The dr told us yesterday that the longer the…[Read more]

Hi Helen

How was the holiday? Hope you had a ball! 🙂 Lovely hot weather. We were snowed in for days. Fortunately one of the boys has a 4×4 so he could get in to take me to hospital. Then they all came and dug my car out and made a path for me to drive.

On sunday night Frank was feeling weird and they put him on the ECG. They asked if he…[Read more]