[Kazzam2Participant]

Thanks all for your best wishes,

Tom, my consultant mentioned going onto 8 weeks Zometa in next 6 months or so, so I imagine that is the norm. Well done you.

best wishes and regards to all

Love
Karen
x
😀

[Kazzam2Participant]

Hi Tom,

Thanks for your best wishes:-D

Well done you on a long remission, gives me hope! do you not even have zometa? My consultant said I will move to 8 weekly instead of 4 weekly infusions soon, which must mean my bones are stronger 🙂 She is also checking if another back op may help with the pain. As she pointed out, they are keeping eye on me, which is reassuring. So into the cupboard you go Myeloma!

Best wishes
Karen
x

[Kazzam2Participant]

Thanks Eve and Tony for best wishes, my consultant says I am in remission so will see me in 3 months (interim bloods in 6 weeks), so apart from pain i am okay:-)

Regards tpo all, sorry for hijacking a thread.

Karen
x

[Kazzam2Participant]

Thanks Eve and Tony for best wishes, my consultant says I am in remission so will see me in 3 months (interim bloods in 6 weeks), so apart from pain i am okay:-)

Regards tpo all, sorry for hijacking a thread.

Karen
x

[Kazzam2Participant]

Hi Tony, (Hi Carol,Dai and Ali)

I have not been on for a while, I have only just seen this post.

I hope you are better soon, and enjoy your holiday! 😉

I am at my first clinic in 3 months tomorrow, though I have been for Zometa, BMT and Radiotherapy in the meantime.

Take care
Karen
x

[Kazzam2Participant]

Hi All

Spoke with Sara this morning, so questionnaire done, as Tony said, it is painless.:-D

Karen x

[Kazzam2Participant]

Hi Scott,

Best of luck for the SCT, hope all goes well and you get a long remission.

Karen x

[Kazzam2Participant]

Hi Tony,

Great news!! 😀

I still go for the 4 weekly Zometta, I have not been told for hold long. We may bump into each other there, who knows!

Take care
Regards
Karen
x

[Kazzam2Participant]

Hi Tony,

Hope you got some sleep. i have just seen this, by my reckoning you will be there now. Hope all is ok, I have fingers crossed for you.
Take care
Best wishes
Karen
xx

[Kazzam2Participant]

Hi Eve,

Have emailed Sara today, she is phoning me next Tuesday.

I agree, it is very important to make doctors more aware.

Come on folks! 🙂

Karen x

[Kazzam2Participant]

Hi San,

Thanks for replying, and for your best wishes too.

I am not back at work, I am signed off until end of October, my consultant said it is a year after SCT, I work in a school, well the kitchen of a school, I will have to be very fit before I go back as it is a heavy job, huge heavy pans, deliveries and tables and chairs.

Hope your mums results are okay x
Best wishes
Karen x

[Kazzam2Participant]

At last a reply!! Hi all x

Marrow Sample was not brilliant but overall it appears to be in remission.
We may need to repeat later this year.
Have you had radiotherapy?? Any improvement?

Take slightly more morphine, take it easy and remain assured.

Above is reply to me regarding pain!

Regards
Karen

[Kazzam2Participant]

Hi Jean and All,

I have had a swollen tummy for some time, my consultant was not concerned, she mentioned my height loss, but no remedy. i don't like it as most of my skirts and trousers do not fit :-/ elasticated nowadays. Apart from pain I feel well, so I probably have to learn to live with it. It is a little flatter first thing if I have slept on my back, I may be imagining that! I will just have to change my name to spacehopper!

Eve, sorry to hear Slim not so good. I hope the chemo helps. xx

Regards to all
Karen
xx

[Kazzam2Participant]

Hi Tom,

So glad to hear you are home, and that is behind you x 😀 here's wishing you a long remission, one day at a time!

Kind regards
love
Karen
xx

[Kazzam2Participant]

Hi Tony,
I recognise myself in all you said then, itch started today! I cannot stay out in it for too long. Does it break your sleep up through the night?

What are we like ! lol 😀

really nice to see the sun though eh? Off for a few days, somewhere other than LRI !
Regards to all
Enjoy 😎

Karen x

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