Hi David,well I can't take any credit for this one.
It was there before going to bed and gone the next morning.
I'm pretty sure that the Zometa was to blame rather than the Velcade.
I'm due my monthly shot a week next Monday so I only hope it does'nt return after the injection.
When I go to the Hospital on Friday I will mention it to the…[Read more]

Hello hooray it's gone……..

Now I can taste proper,well sort of.

Keith.

Hi David,My PP was at 28 when first diagnosed then was undetectable after SCT and remained so for more than 2yrs until relapse when it was at 7.
Statistics mean little as we all know MM is a very individual disease that effects different people in different ways.
Here's another statistic to baffle you…MM is hardly known in India/Pakistan and…[Read more]

Hello Sylvia,I ended up with a collapsed vertebrae just before being diagnosed in Dec 2007.
I was given RT before my Chemo treatment started Jan 2008 which did improve things after a period of around 6,weeks.
I suffered 2,months of agony after the MM relaspsed late last year and have just finished my first of 8,cycles of Velcade+Dex and did…[Read more]

It's the same with me,everything tastes much of a muchness.
I noticed it within a week of starting Zometa so it looks the likely reason.
My appitite is too good if anything but not really enjoyable.
I totally abstained from Alcohol during my last treatment and have done so this time also so as to give the drugs a chance to work.
I really enjoy…[Read more]

Hi Debs,I take the Velcade with Dex but as I took Dex with my original treatment(VAD)and did'nt notice a Salty taste I put it down to the Velcade.
Of course it could be the Zometa which I now have infused at the Hospital once a month.
One things for sure…I don't like it one bit!

Keith.

Hi Min,I hope Peter's Revlimid does the trick for him.
As for Sciatica…I have that as well as MM and had a really bad time with it 17mths ago.
MRI showed 4 bulging discs with one in particlar just above my hipbone ruptured.
I had an injection and then physio and an organised exercise plan over a period of 6,weeks.
The pain has gone but the…[Read more]

Best of luck Kay with your new treatment.
I relapsed recently and started Velcade+Dex 2, weeks ago and have just completed the first of 8,cycles.
When you start something new it can be daunting not knowing what side effects await but I'm sure you'll be ok with whatever they decide to go ahead with.

Stick in there and all the best!

Keith.

Hello Gaye,I too was moved as others when I read your post.
When I first found this site in Dec 2007 your posts were the ones that stuck out for me in the way they gave me hope,and after just been given the dreaded prognosis of 3-5yrs they were very instrumental in keeping me going.
After the initial shock I took it on the chin knowing that…[Read more]

Hi Kay,sorry to hear you had a painful biopsy,as if we don't have enough to contend with.
I had mine last month when a specimen of the actual bone was also taken.
Two days later I got the phone-call telling me that the MM had relapsed after 2.8yrs.
I can't honestly say I was surprised giving the pain I'd been experiencing over the 2,months…[Read more]

I'm sorry to hear about the pain you are suffering Gaye.
The problem is finding something that rids you of it without scrambling your brain in the process.
I use Tramadol with paracetamol when I'm at the end of my tether but like you I don't like taking anything unless I really have to.
Since starting my latest treatment(Velcade+Dex)most of…[Read more]

Hi Tom…where did you get your toothpaste from,bet it was'nt Tesco's.
Perscription??? surely not!!
I started Zometa last Mon and I have my 3rd shot of Velcade Friday so I'll ask the nurse about it then.
I've heard of this before from a Dental Surgeon that addressed one of our support group meetings.

Thank's Tom…Keith.

Hi Phil and yes we should compare notes as the treatment is the same.
I'd been having terrible pain in my Ribs and back for 2 weeks so went in to have it checked out.
Proteins had risen to 7 from being at zero for 2yrs.
I had a skeletal survey which did show slight changes to the Rib area and a new lesion on my skull.
I then had a Bone Marrow…[Read more]

Hi Min,Now I'm going to confuse you,I have my treatment at North tees Hospital in stockton.
I had RT at James Cook Middlesbrough but my SCT at RVI Newcastle.
Reason being although I'm Sunderland born work and then Marriage drew me to Smoggie Land lol.
Anyway if you think you have a chance of beating us dream on,wont happen.
I had absolutely…[Read more]

Oh Gaye,I can forgive the fact that you called me old but NEVER a Geordie.
I was born 13,miles south of the Tyne and that makes me a Makem and proud of it.
And I will be giving my team Sunderland all the support I can muster for the Derby on Sunday against the Geordies of Newcastle.

But I'll forgive you on this occaision lol.

Anyway had…[Read more]

Hi Min,yes I've had the first one today so the ball is now firmly in play.
When you say second dose don't you mean second cycle.
Also now the fact the Velcade no-longer works(did it ever work)what is next down the line for Peter's next treatment?

Thank-you for your helpful replies.

Keith.

Hi Bridget,I don't mind at all the more replies the better.
I start my treatment 14/01/11 at 13.30.
Constipation was the main problem I had with VAD but sennacot sorted it and I'm well stocked up and prepared this time.

I'll keep you informed on my progress and thank's again.

Keith.

Hi Gaye,I know I've said this before but your attitude to the Myeloma challenge is second to none.
I know I get inspiration from you and no doubt so do many others.
Right that's the patronising bit over lol,and now a question.
When you were on Velcade did your Platelet levels drop and if so did you have any transfusions?
The Consultant told me…[Read more]