Dear Gill and Tom – I'm glad I helped. My John was also very laid back but the last year in particular he did get the grumps sometimes. I'm sure it was the medication but also frustration, tiredness and the uncertainty of it all. Near the end he told me he wasn't afraid of dying but was not ready to leave me and others in the family that he…[Read more]
Oh thank you so much Eve, Eliz and Sarah, your kind messages are so helpful.
I do have two caring sons, their wives, two beautiful granddaughters (another on the way) and some good friends …. but, of course, I can't expect them to be here all the time, after all they have their own lives.
I went for an extremely long walk today. I have…[Read more]
Dear Tom, Jean and Dai
Thank you all so much for your kind and wise words of comfort. I shall bear them in mind during the coming weeks.
Even though John had been ill for such a long time, it was still a shock when he passed away – strange really.
All I can say to anybody caring for someone with this terrible disease is ….. cherish each…[Read more]
I'm so sorry I haven't been on here for some time but have been so wrapped up in caring for my husband John who sadly passed away 4 weeks ago today. Many of you have helped me over the last couple of years so it's only fair that I now share this with you.
Myeloma ruined John's kidneys and he had been having dialysis 3 times a week for nearly 2…[Read more]
I was very sorry to read your last post. It's not fair that you, who has given so much time, help and comfort to others, should be told this news. Just to say that I very much hope that they find something else for you to try and to send my best wishes and love.
I just wanted to say how very lovely it was of you to answer each one of us. I don't often write on here but do read everyone's threads regularly and your smiley face and bright outlook on life always brings a smile to my face. That's just what we all need. Thank you.
Best wishes, Lynne
My name is Lynne, I'm 57 and I'm a carer for my husband John who is 64 and has Kappa Light Chain Myeloma (originally thought to be non secretory). We live in Whitstable, Kent and John is treated in Kent & Canterbury Hospital by Dr Lindsey. John's myeloma destroyed his kidneys last November and he's been on dialysis 3 times a week…[Read more]
Just read your very sad news today and wanted to let you know that even though I don't often 'talk' on this forum – I do read and take an interest. You are all wonderful, caring people. My thoughts are with you Sarah, at this sad time.
Oh that sounds wonderful and why shouldn't you do some things for yourself for a change. I'll certainly be looking to do the same thing when our mortgage is paid. So good luck with that and I hope you get accepted.
I've just logged in for the first time since before Christmas and was so so sad to see that you have lost your darling Michael. You have been so brave and I'm sending you my love and thinking of you at this sad time.
I'm not entirely sure about donations but I think the funeral directors will also offer to arrange donations to be…[Read more]
Thank you so much Bridget and Gill – John phoned earlier today to say that they are taking a biopsy via his sternum next Monday. It's not viable through his hip as he's recently had a hip replacement. I think he's a bit worried about it. I must admit it does sound gruesome – do you know of anyone whose had this done?
I haven't seen John…[Read more]
I'm sorry you are feeling so lonely. Is there anyone you can phone for a chat? I'm also sorry to hear that Michael's arm is still very bad. What antibiotic is he on? My John was on Teikoplanin intraveniously for a couple of years on and off but mostly on, for osteomyelitis in his leg which was terribly infected. They finally got…[Read more]
Thank you so much for your kind words and thoughts.
It is very hard. Today John was told that his kidneys are unlikely to repair themselves. He took this news badly, of course and phoned me at work, very down. I managed to leave early to visit him, give him a big hug and a good talking to. I told him that plenty of people go on…[Read more]
I'm so sorry I haven't been in touch lately but as you can see, John has been very ill since I last emailed you. I'm so sorry to see that Michael is still very poorly.
Thank you so much for taking the time to reply to my plea for help. You are quite right about taking one day at a time – you should know all about that.
You are sooo kind. I've always read your posts and you are always there when people need you.
John had a kidney biopsy yesterday to see how much damage the Myeloma has done. Some results will come back fairly quickly but others will take some time,I'm told. John was a bit down yesterday after the doctors did their rounds – I…[Read more]