[MJC1970Participant]

Hi Debs and everyone

I hope you don't mind me writing to you but I was wondering how your PN was doing? My mum, who was diagnosed with MM in Dec 2011 has now been hospitalized due to PN because she can't stand or walk and she can barely hold anything. She is in constant pain. (She had two weeks of Velcade and this is the result).

The hospital started her on Gabapentin yesterday but I understand it takes a while to build a level up in your system.

Did you ever try the TENS machine and did it have any effect?

I hope you are doing OK.

Mandy x

[MJC1970Participant]

Thanks for your response, Kay. I am hoping that the hospital will diagnose something for my mum when she has her appointment tomorrow.

I hope you are doing well, despite your PN.

Mandy x

[MJC1970Participant]

Hi Eve and Tom

Thank you for your replies – it is hard to believe that 3 months ago, before my mum knew that she had MM, before she started chemo, she was living a normal, active life. At the the moment, she is is confined to an armchair and can't even walk to the toilet. She has an appointment with her consultant on Monday to discuss her next round of chemo and I'm hoping that she can be given something to minimize the PN pain that she is in.

Her mantra today is "this is a small bump in the road, its not permanent" and I told her that we will keep repeating it until she starts to believe it. She is the lowest I have ever seen her – if she she could just get some relief from the PN, I think she could tackle the rest with more determination and fight.

I want to thank you for taking the time to reply to me – I know that everyone has their own story and their own fight to fight, and I am very grateful for your support.

Mandy x

[MJC1970Participant]

Hi Dai

Thank you so much for your quick response – I've emailed my mum with the name of Gabapentin and suggested she discuss this with the hospital and doctor. She really needs some relief from this as she has been positive up to this point, but this is debilitating and she sees no end in sight.

Hopefully she will join the forum – right now she feels very alone – I am hoping that by me taking the first step to introduce myself (and therefore my mum, through me) that she will follow suit.

I hope you are keeping well.

Mandy

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