MarionClark

  • Having walked round in a daze for over a week now, life has to get back to normal.
    Son is off to Dubai tomorrow and daughter and grandchildren back home in Warwickshire.
    I was terrified of arranging his funeral as he had become very insular and not wanting to talk to anyone or go out. He had, I thought lost all his friends, along with his…[Read more]

  • Min replied to the topic Neatropaenic Sepsis in the forum Side-effects 13 years, 2 months ago

    Hi Gill and everyone.
    I had viewed this video some weeks ago before Peter had his chemo, and for that reason I was aware of the problems re temperatures etc.
    His circumstances were a little different as he went to hospital for 2 bags of blood on Saturday morning. I had always gone with him before but he had had a temperature all night and…[Read more]

  • Min replied to the topic My father in the forum Carers 13 years, 2 months ago

    Sarah
    Im so sorry to hear your going through all this when you could well do without it.
    I hope you cope with these problems, in doing so it may take you mind temporarily off the tragedy you have just had.
    In other circumstances you would have no doubt dealt with the issues very profesionaly, but Your patients is being sorely tied at the…[Read more]

  • Min replied to the topic Peter in the forum General 13 years, 2 months ago

    Dear Dai,
    I was upstairs preparing Peters uniform for his funeral and you came into my mind. I was a little upset that we had not heard from you and worried that you were still an inpatient.
    You must have read my mind, as I came downstairs to turn of the 'Apple' which was playing Peters favourite Louis Armstrong . We have all the time in the…[Read more]

  • Min started the topic Peter. in the forum General 13 years, 2 months ago

    No matter how hard I try I cannot post a new discussion I have tried many times to let you know that my husband lost his battle yesterday in the ITU department.Suffering Neutropaenic Sepsis and an overwhelming burdon of MM.
    He was taken so suddenly and unexpectedly with no time to prepare although I knew this could happen I can barely believe…[Read more]

  • Today, I had a phone call from Peter to rush in with some clean PJs he has dreadfull diarrhoea and is permanently atteached to a drip of some kind. He has a temperature which fluctuates between 39.6 and 38.1.
    Poor little pixie is on oxeygen and going to the loo is such a performance dragging that bleeding drip behind him after unplugging it and…[Read more]

  • Min replied to the topic Appointments in Dairy in the forum General 13 years, 2 months ago

    FIZZ FIZZ FIZZ
    Are these people absolutely stupid. don't they realise the reason slim is attending hospital is because he is unwell
    Time to throw in the hand grenade methinks.
    couldnt organise a Pee up in a Brewery comes to mind.
    I think you need to take the camper van and park on double yellows for 3 hours in protest eve
    Cant you persuade…[Read more]

  • Min replied to the topic Who the heck are you. in the forum Off topic 13 years, 3 months ago

    Time for an update everyone it is nice to read items that are not depressing so a little light relief and please feel free to edit your self if it is out of date

  • Aaaww Gill.
    Lifes a bi tch dont we know it. There is nothing that I can say that will improve your situation but I very clearly understand how you feel, believe me.
    Like you I find it difficult to sleep but the blue pills are wonderful at giving me 6 hrs which will do.
    Love MIn

  • Min replied to the topic Trip Down Memory Lane in the forum Off topic 13 years, 3 months ago

    I remember the cheque number that you had to remember 15527. They wrote in in a book and doled out the divvi every quarter and everyone with a number was a member of the coop.
    I remember cos I worked there for a few months when I left school. And as I was a dunce and could not add up I used to loose some of my wages to make up for loses in my…[Read more]

  • Min replied to the topic Levels back up… 🙁 in the forum Treatment 13 years, 3 months ago

    Hi Chelle
    I know exactly how you are feeling. My husband had had a stem cell transplant that failed then velcade then Revlamid.
    We were devastated. But dont give up just yet.
    What they did to start with was to put him back on Thalidomade which was a drug that he had responded to very well before.
    Next they gave him a big dose of melphalan…[Read more]

  • Yes Dai
    and that being so I told him that if he had still been in the military he would be on a charge for letting his health fail.!
    😛

  • Min replied to the topic Niggle, Niggle in the forum Side-effects 13 years, 3 months ago

    The lack of an update leads me to suspect (Inspector Cleausau type) that you are now an In Patient Dai.
    That being so Get well soon. If they sent you home with tablets Get well Soon.
    Im sure you will make the holiday as planned keep taking the tablets. Janet must be looking forward to your holiday too and fearing you wont get well in time…[Read more]

  • Min replied to the topic A Right 2s/6d… in the forum Side-effects 13 years, 3 months ago

    In Wallsend where I come from we used to call the Saturday flicks, the tanner rush.
    Interpretation a tanner was Geordie for sixpence.
    The place is still there but its a Bingo hall!

  • Picking up on an earlier thread I thought we could all have a go or multiple goes at this one in fact this could become the longest thread if we try really hard folks.
    Besides which it takes our mind of the mundane MM matters.(purely temporarily you understand)
    So here goesMemory lane aahh

    I will see you and raise one ( is that the…[Read more]

  • Dear Bridget,
    Im so sorry to hear this news. But I know you have a wonderful team looking after you and they will do everything in there power to keep you well.
    If they are suggesting a few days in hospice to sort our your meds for pain it cant be so bad. My friend went in for just 3days and they sorted her out quite quickly as they are on site…[Read more]

  • I am afraid Peter is now proper poorly.
    They moved him into a single room as he had had a high temperature all last night and when I went in tonight he was not in the bed but in the loo. Where he seems to spend most of his time!
    There was a wonderful new machine in the room and I could see that his last temperature reading was 40.1
    I went into…[Read more]

  • Min replied to the topic Niggle, Niggle in the forum Side-effects 13 years, 3 months ago

    Ah Dai
    Why cant all mm men be like you.
    Know your ill and do something about it, not sit and wait for tea and sympathy and more problems that come about as a result of ignoring a temperature.
    It is so much harder to treat an illness that has been ignored than nipping it in the bud, as peter has found out to his cost.
    I think you need to have…[Read more]

  • Gill
    Its quite a relief to find I am not the only one who has to get a wayward hubby in check.
    I thought I was alone in being married to a martyr who would rather be ill than admit he needs help.
    I dont take any pleasure in 'grassing' him up but at least they know not to look at me when they ask him a question!
    He is very sorry pixie now for…[Read more]

  • Hi Susanah,
    Bendamustine is a drug that is 40years old and out of license so should be cheap. Bout $500 per complete series.
    here is a little bit of background american unfortunatly but interesting nontheless by its content.
    I think there is a reluctance to use it because it isnt 'cool' and 'novel'
    Who cares what if it works and does the…[Read more]

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