Jet
He had very good blood results, no sickness, no mouth problems, and we only lived 20minutes away from the hospital.
You stay in hospital because, if you have problems they need to ensure that they respond quickly to high temperatures infections etc. But often being in hospital means you can catch hospital acquired infections. Not least of…[Read more]

My husband has myeloma, and his mother had myeloma.
His mother died before he was diagnosed.
I know what I think. and given the fact that this is a rare cancer how rare does it then become for mother/ son to suffer the same.
Both my children have pondered this problem and decided they don't want to find out after talking to their…[Read more]

My husband took curcumin as advised by an asian friend following his stem cell transplant. The same friend recommended a tv channel with yoga to follow. He said that people from his country rarely suffer from MM. He did strong exercises instead to get back his lost muscle tone.
Within 5 months he relapsed.
I have never been sure if this was…[Read more]

Hi Eve at the outset of his diagnosis Peter was on a similar quantity of tablets, due to chronic kidney failure, actually called nephrotic syndrome. In addition to all that he had had a heart bypass when he was 52 due to a congenital defect. The massive doses of morphine too for the crushed vertebrae meant he had to have two pill boxes and I had…[Read more]

Hi Ladies,
I was getting a little worried about you Gaye when you went quiet for a while. I hope your getting on well with your exciting new drug. How is your back pain now?
How is the puppy Gill.
Cant add anything to your bra adventures but I would like to dispose of mine and sure will once I finish work. But I wish I could find a liberty…[Read more]

Wonderful news Nikki
I recall the dark days you had at the outset of this 'journey' and I am so pleased with the positive outcome for you both.
Now, get on with the rest of your lives and enjoy. Good Luck for the future.
MIn

Thanks for that David,
I am going to a Myeloma info day this Saturday, if the opportunity presents itself I will ask why everyone does not get the same follow up treatment after SCT.
Peter got nothing other than Aciclavor if my memory serves me right. It seems like a lifetime ago and it was only last May!
Can I have a straw poll and find out…[Read more]

Hi Gill,
Like Steven my husband looked awful when on velcade, I would describe him as grey in pallor, he was tired but the frequency of the dex kept him going. He is far more tired on Revlamid, has some bad days but generally looks well and healthy.
Peter was so ill and his blood counts so low on velcade that he was allowed to miss one…[Read more]

Hi Chris
The rehydration salts were diarolite or boots own brand of them, Use twice as much water as recommended. Don't use them too frequently or often. But Peter was on 60 mg of frusamide twice daily
I was told by a friend that tins of 7up (lemonade) had all the salts you need for rehydration You can also make your own with 1 ltr…[Read more]

Hi
Pain is something that no one should have to suffer. My husband used to go to see his consultant and never remember to tell them about the pains. there was so much else going on and blood always overtook the conversation. then we would get home and I would have to listen to him complaining about the pain.
He was on 160 mg of slow release…[Read more]

Yes keith he said words to the effect that they had been told not to do so many as often as they are expensive tests;
they used to go away to birmingham but then they got a machine and did them only on Mondays, Presumably the person trained to use it only works on Mondays. I think its difficult to complain given the price of the drugs but…[Read more]

David I love a good news story,
the important thing is as you say you feel in the best of health. No one can ask for more.
Curious about the anti biotics? what ones and have you been on them since your sct? Peter only gets them prescribed when he is suffering from an infection. Probably why his sct did not work. Why is the treatment so…[Read more]

Hi Chris,
they were simple re-hydration salts. I bought them as he was having such awful problems with leg cramps. He was on massive doses of frusomide at the time due to fluid retention.
Min

EXCELENT

Hi Chris,
I care for my husband too, I can identify totaly with the sweats, as my husband had it too, whilst on CDT. He responded well to CDT with little side effects apart from slight periferal neurapathy in his hands; he wa on mssive doses of mst too, as well as other drugs relating to his heart bypass.
We always thought the sweats were…[Read more]

I think I could do that, when I was 6 yrs old!
Min

Hi Chris
A very big welcome and pleased you dipped your foot in the water. You are amongst friends and can rely on us to lend you a listening ear when the coping gets too much.
Like you I have a husband with mm and its been a series of fairground rides in the past 18months with lots of high and low points.
I don't have a lot of people who…[Read more]

Next instalment.
Went to clinic today for new packet of pills, and result of last blood test. One was done on the day he started and another was done last visit 2 weeks ago. To see if he was responding to it.
For the past two days Peter has been on no Meds as it was his week off, but he had sickness and trots, which we have been unable to…[Read more]

And We are glad to have you back, I imagine Poole hospital are pleased they finally prised you out of your bed.
Don't go leaving us in suspense like that what happened next?
Luv Min