Whew Sarah,
I would be beside myself with worry now, I hope they are ok and keeping in touch with you to allay your fears. Kids who'd have them!
Min

Thanks Bridget, he is taking his lansaprazole for no other reason than he has been getting dreadful heartburn and indigestion since starting the Revlamid, he should not need it as he came off the aspirin when he went onto daily heparin injections. But I will get him back on the Aciclavir. He also has started an itchy head, anyone know if itching…[Read more]

Happy Birthday to you Bridget,
Im sure you had a lovely day with the grandchildren, and never mind if your knackered you can have a lie in tomorrow.
I have had a lie in all this week and its a wonderful thing I could get used to. Once I get my bus pass I will be lying in more often. OOps wishing my life away.
I hope you get on with the dex…[Read more]

Dear Gaye
Now you know why you had all the pain. Im surprised that you did not have raised calcium levels prior to the scan.
Im sure they will get to grips with it soon and hopefully you have the correct pain killers to make you comfortable without being comatose!
Its interesting from the point of view that you must be on Zometa or some…[Read more]

Hi Gill,
I know exactly how you feel, Peter's revlamid and dex is causing some problems. Fortunatly the dex bit is over with now, but the Revlamid is causing a lot of fatigue and very swollen legs ankles and feet.So much so he had given up work again. We were told that the 1st course will be difficult but it is so dissapointing when he was so…[Read more]

You were right. He is back to 'normal' whatever that is. Sleeping better and dexing as normal. >:-( last day tomorrow. Eating me out of house and home. (Never put any weight on while on velcade and dex) but never had any munchies with it either.
The sciatica is getting better having used a Tens machine… Could get addicted to that.>:-)…[Read more]

Thanks Sarah,
My son came round today and did something sort of remarkable. 1st of all he made me lie on the floor, then he taught me a Pilates exercise for my back and leg pain. and it worked. so far so good. All of a sudden I was transported to that moment when your children start to give you advise. Not that he is a child at 34yr old. But the…[Read more]

Hi Bridget,
Now that the RT is over you can either relax and recharge your batteries or have a party. If it were me I would be relaxing.
Hope its not too long before the effects of all your travels and traumas take effect and your pain free.
Peter RT was effective after about 4-5 weeks but everyone is different so may be sooner for you.…[Read more]

Well first things first, peter slept well until 4-30am when he woke up with violent diar—-trots. cant spell it! Then he got up to go to work, only does 3 hours but has not been feeling up to up for 5 days now . At 8am he crawled back into bed having just taken a sicky tablet as he wanted to throw up. Altogether not a good start. He is sleeping…[Read more]

Gaye
That was very moving, and in a way helps me to understand how my husband has been dealing with his mm.
he is very private and at the outset did not want me to tell anyone what was wrong with him.
I on the other hand am an open book. If its out its not festering inside me.
I remember when he was diagnosed. I went home in distress more…[Read more]

NIce to see you Joe, I am pleased you did it, the moon face is familiar to me as Peter has it at the moment.
According to the Dr Peters kidneys are ok, or at least the figures show that, in truth he has puffy eyes on almost a daily basis,(great big bags under them) its like pulling a pint with regards to froth. And the oil slick left after…[Read more]

Hi Laura,
Im so sorry you find yourself joining our little group. But I am glad you found your way here. You sound like an amazing young person who has your Mum at heart. For that reason I hope that she reaches the end of her treatment with your help, and you can both get on with living your lives again.
Laura do you have any support from a…[Read more]

JOe
You need to go to the newcommers button and press the link for how to change your picture you must be signed in to the site to be able to do it.
Print it off to make it easy on yourself. Or get a clever relative or neighbour to do it for you.
Min

Gaye
Not on the same scale as you but my sciatica pain was not responding to anything you can buy across the counter, the Dr gave me 30mg of codeine. to be taken with 2across the counter paracetamol and 2 cross the counter ibuprofen. The pain relief of all these things together is wonderful. Taking all them is not so good but whatever it takes…[Read more]

OK Jo
lets see if I can help you here. Sign in Press your name which will take you to an edit profile page. Press the profie picture, drag it in to the centre square and press the scale arrows on bottom left of your photo, until it fits into that square. Finaly press the save button bottom right hand side of your picture. Fingers crossed that…[Read more]

Hi Jean
Well that sounds interesting, dont know if I can do that. The closing date was 10Jan for applications, and of the 450 they wanted they got 395.
The package is enhanced in as much as I will get 3times the normal redundancy payout, and my pension, (like you 20yrs) would have been penalised for going before I am 65yrs will not now be. I…[Read more]

TOM
You know I thought I was going loopy the other day when I posted and it got lost in the ether. Im kinda pleased to hear its not me going gaga and its happening to others too. My Mum used to do her false knashers in bleach too.
With regards to zometa, Peters been having for a year past August. But only every 6weeks. His Dr has had 2 patients…[Read more]

Found a bar of proper soap in the holiday bag, (Pears do you remember the pears advert) and can confirm it did NOT work. Picture this. Me with acute sciatica, and Peter with leg cramps. Up and down all night In fact he got worse if anything. so rang up and got a prescription for quinine off his GP. Will let you know if it works.
Min

Sorry to hear of your Dexastrous up chucking! I cant imagine having to take that many pills at once. Why cant they make it into a strawberry syrup?
I cant believe those NIMBYS. But I would be inclined to say that they should be blacklisted. They may not need a hospice today, and only time will tell if they will. But in view of there…[Read more]