Roz
You are very much in all our thoughts at this time, I am sure we will all be thinking of you tomorrow.
God give you strength to get through this evening, and to deal with tomorrow too. If it snows it will be like a blanket, making the world look clean and fresh. Its not an omen its nature. At its best and worst. Hugs are sent in abundance…[Read more]

Hi Jenny
Your poor dad is going through the mill. Im sorry he is having so many problems but hopefully they will get his kidneys responding to treatment and the fear for your step mum will go when she realises he is responding to there care.
I would say don't let him go home until he is responding well or he will be back again before you know…[Read more]

Dai
My oldest dog Ben had got to the point that he could not get up off his bed to go for a walk he was so stiff, he dragged his feet on all our walks and the two younger dogs were not at all pleased that we went everywhere with him bringing up the rear so to speak. I got to believe he was not long for this life. That was about 4-5 moths ago.…[Read more]

Hi Lyndsey,
You describe exactly what my husband suffers from as a result of 4 crushed vertebra. His problems of pain are mostly to do with the ribs sitting on the pelvis or hip bone due to the new short torso. Big tummy and bent back looking like a hump. Smaller appetite… frequent toilet visits as all his organs are crammed into a smaller…[Read more]

You can forgive him for this dexatude Gill, we have three labradors, and they are what gets Peter out of bed in the mornings and at his worst and lowest point in the past the dogs have always been there to lend an ear.
For both of us. What better way to get out in worst of weathers, and the best of weathers.
I moan like mad when its raining as…[Read more]

Hi Jonny,
I can empathise with you, as I always felt Peters consultant had no bedside manner from the day he told him what he had and how long he had!
Its now over 16month since we first met and I know now he does his very best for Peter, and gets the results we want to hear. Not always delivered with warmth or feeling, but we have gotten to…[Read more]

The breathlessness may just be part of the anxiety. I tried to give up smoking ( am now a non smoker) and in doing so used an alternative to nicotine which gave me palpitations and made me breathless) The anxiety of being breathless made me more anxious and more breathless. As the fear got worse I gave up smoking without any further help!!!!!!!!!…[Read more]

Hi Ron
Like you I am married to a MM sufferer. At diagnosis I found it very difficult to to bring Peter out of his withdrawn state. For quite some time he became rather insular and difficult to talk to about his illness. Eventualy he had a long chat with our Macmillan nurse and the myeloma nurse specialist. But it was not until he could see from…[Read more]

Hi Gill
Peter was having velcade on Christmas Eve which meant, Dex then and on Christmas Day too. so I know exactly where your coming from. We now have a sort of understanding where I say' Peter that is not you talking its Dex"
He usually replies "I did not ask for Dex" but for a short while we can agree that Dex is here uninvited.
Dex…[Read more]

Whatever is ahead of you, may you find strength, calm and love to help you through. And may the New Year bring you hope.
Warm wishes to all
Min

Hi Keith,
I think that you suspect what the problem is but cant wait for the bmb and blood tests to prove it. Peter was similar in that he had lots of pains in lots of places just before his relapse.
I think the thing for you now is not to suffer with the pain but to get some pain relief until you get to your next appointment. No one should…[Read more]

Well done on finishing the novel Dai, and on making it to your 57th Birthday. I know some time ago you were so ill your Welsh consultant didn't see this milestone happening so its a double celebration. Peter had his 58th going on 8yrs earlier this month. That Dex has a lot to answer for but I have to say after 3cycles of Velcade he is starting…[Read more]

Hi David
glad to hear your progressing nicely, Peter had really sensitive teeth following his sct, He still cant drink coke from the fridge. Sensodyne do a variety of toothpastes and mouth washes, I don't remember the name of the toothpaste but its top of there range and it worked for Peter along with the mouth wash. The secret of Sensodyne is…[Read more]

Dear Roz,
So sorry that Michael lost his battle, my thoughts are with you at this sad time.
Min

HEAR HEAR GAYE
AND A MERRY CHRISTMAS TO YOU
MIN

Amelie
I spoke to Peters myloma nurse specialist and she said that Revlamid when given is taken continuously after it has worked its magic as a maintenance it is not give as simply maintenance but is a continuous treatment. A lower dose being given as maintenance after it has been used to fight the return of disease. She went on to say it has a…[Read more]

Bridget,
I am so sorry I caught your post as I was about to leave the office and meet peter at the hospital for his clinic appointment.
I was worried about what we were going to hear, but your post was in my mind whist there, I was discussing Revlamid with his nurse specialist and she was saying that it was a much better than velcade, it is…[Read more]

http://www.opera.com/download/get.pl?id=33338&thanks=true&sub=true

I could not open this either in windows and my Apple came up and told me to download Opera and it plays fine on it. don't know if opera works in windows or not as I am not that clever but give it a go. It is a web browser a little bit like Internet Explorer but according to the…[Read more]

Dear Bridget
So sorry to hear you have been laid low. (A pox to myeloma)
Im on my way to hear how Peter is responding to Velcade so fingers crossed
I know how difficult it is to get bad news but ………tomorrows a fresh day with new challenges once you have digested the bad news. We are thinking of you and hoping for the best.
Min