Welcome Norman
Good to have you on board,and sorry that you find yourself here, no one who posts here wants to be part of it, but I can assure you, you will find the answers to your questions on here. If not on the help screens, dont know if the are here yet off the old site. Most definatly from the myeloma infoline which is manned by a very able…[Read more]

Im very pleased we have all arrived safely, now put your thinking caps on for others who we may have left behind. I thinks its time for a party, red wine cucumbers etc. Or as its nearly Christmas, crackers? Seven weeks to go folks.
This time last year was our lowest point, and therefore I for one am looking forward to Christmas this year, even…[Read more]

The Silent Treatment
A man and his wife were having some problems at home and were giving each
Other the silent treatment. Suddenly, the man realized that the next day,
He would need his wife to wake him at 5:00 AM for an early morning business flight..
Not wanting to be the first to break the silence (and LOSE), he wrote on a piece of…[Read more]

Roz
I think I would want to know if he has done anything of this nature before;
I would also want to know if he was the one who did the first operation, why it went so badly wrong, and if he is the one who is going to attempt to do it again what assurances he can give that the second op will be more successful than the one before. Is he for…[Read more]

As a bystander I don't get to know what dexitude feels like , But I do know Peter had just gone back on it, His 1st day the velcade did not turn up until 4pm and the dex had to be taken with food when we got home at 5.30pm. As you all know it should be taken early morning to wear off by bed time. Imagine what he was like the next morning having…[Read more]

Maybe a catch all title that is not mm related but which binds us all together wether we are accompanying a loved one through there journey with mm, suffering in silence alone without loved ones or just needing the support of others who understand where we are in life. Maybe it could be a just the ability to knock on the door of the new site…[Read more]

HI DAVID
Peter gets this rash and thinks its off the elastic in his socks, or the nylon content of his socks or the washing powder used to wash his sock! Whatever it is he has a cream from the Dr for it and it works. I Even bought him socks with comfort tops (no elastic) to see if it stops.. It didn't. Changed the washing powder bought 100%cotton…[Read more]

Nice to see you to see you nice.
Go get Gill now web team

Nice to see that they will be feeling uncomfortable.. If they are to be made redundant it will be Nice to see them wrigglng uncomfortably at decisions made by some faceless beaurocrat! Give them a taste of what its like to have life changing decisions over which they will have no control. Mmm what goes around comes around!
Min

Hi David
Peter had all of them on the same day except for urine collection. He never had one of those even though he had light chain mm.
What a shame you have to drag yourself there for several days in a row. But best of luck with them all.
Min

Hi Jim
Peter starts on velcade on Tuesday next week. His consultant warned him about PN and said to let them know if he has any tingling at all and they will lower the dose and or stop the treatment. How long ago were you on it? What is Acetyl L-Carnitine and Alpha Lipoic acid. do you take it when you have pn or to prevent it?
Anyone got any…[Read more]

Hi David,
the way it was explained to me was that the tissue in the lining of the mouth is renewing itself more frequently and faster than the other cells in the body, and that the ice was a way of protecting those cells. but you have certainly given me something to think about… Having said that Peter had his harvest at a time when he was off…[Read more]

Lee that pic makes me all soppy cos Iived in Lincoln mostly Swinderby for about 10 years when my husband was in the RAF. Often wish we had stayed there. Because its two cardigans colder her in the North East!

Bridget, the Doc discussed a sibling donor sct, but sort of played it down with the 20% failure rate, but in truth, the siblings Peter has access to live 'down south' and both have their own health problems. His youngest brother lives abroad and and not communicative!!! if you know what I mean. Youngest sister has fallen off the face of the…[Read more]

Very Good Just hope I can get the hang of it. Love the opportunity to delete as sometimes have second thoughts after a post so thats a brilliant idea. Using an apple mac and will try windows later. Tried windows all morning and could not get on to post Well done team on the improved layout. Attached photo is taken in August when we went to the…[Read more]