MarionClark

  • Min replied to the topic Laptops in the forum Off topic 12 years, 10 months ago

    Cant comment on that but I I bought a 'tablet' recently if all you do is surf the net they are brilliant. But if you plan to do work on it then not much use with word etc.

    Look at http://www.ebuyer.co.uk I have bought loads of stuff of them and they are really really well priced with good customer service.
    Alternativly suggest you look up FACEBOOK…[Read more]

  • Min replied to the topic Good News Good News in the forum Treatment 12 years, 10 months ago

    Bludy Brilliant,
    Worth all the agrivation to hear those words, and in view of the fact the dex is doing the 'trick' best stick with what you know:-D .
    Just put a gag on Steven so he cant be Monster Man:-S
    Seriously though, I am really pleased for you both you deserve a lucky break and its your turn.
    Love Minx
    PS I recall Peter trying to…[Read more]

  • Ah Ray welcome
    I think you mean autalgouse cant spell it but it means a transplant of your own harvested stem cells.
    Dont worry there are lots of people on here who have been down the route your about to commence and hopefully they will offer you lots of advise should you need it, or just an ear when you feel you have had it all
    Up to here…[Read more]

  • Min replied to the topic Grief in the forum End of Life and Grief 12 years, 10 months ago

    Good Luck with the new puppy Sarah, I dont envy you the running to the door every now and then but as its so much colder here in the frozen north I would want to wait till summer time when the door is permanently open !
    The smell of new puppies is oohh so nice but the cleaning is ugh. My last one we had a cat flap on the back door and she used…[Read more]

  • Min replied to the topic Catching up in the forum General 12 years, 10 months ago

    Hi Helen
    Our last holiday we used a company called insurancewith http://www.insurancewith.com/ they specialise with people with existing conditions and cover all cancers. Katherine refered to Revlamid as maintenanace therapy as oposed to chemotherapy and bearing in mind Peter had kidney damage and bone damage not to mention a double heart…[Read more]

  • Min replied to the topic Grief in the forum End of Life and Grief 12 years, 10 months ago

    Hi sarah,
    I have had a whole day of weeping today and I blame the news. Yesterday evening they said it was Blue Monday
    I thought what a load of tosh.
    Today slept well woke up had breakfast went back to bed, slept for 2 hours and woke up disconsolate Havent stopped since and my nose wont stop running to accompany the tears. So thats another…[Read more]

  • Min replied to the topic NIGHT CRAMPS in the forum General 12 years, 10 months ago

    Hi Val
    My husband was taking quinine too but if he did not drink sufficient liquids the cramps in his legs won.
    I found myself with cramps recently and once I drank more liquid it helped. Also I am told that leg warmers help. Weight lifters suffer cramps apparently and leg warmers increase the blood flow; or something like that!
    Hope it helps
    Min

  • Min replied to the topic Treatment another good in the forum Treatment 12 years, 10 months ago

    Dear Dear Gill,
    Its so hard being a carer and knowing that the time you have with you loved one is under the clock so to speak. I know exactly where you are coming from.
    Peter was on prednisalone steroids for quite a long time before Dreaded Dex. the problems he had with prednisalone were more bone damage due to taking oral bone strength…[Read more]

  • Min replied to the topic Grief in the forum End of Life and Grief 12 years, 10 months ago

    Dear Chrissie
    My deepest condolences to you and your family.

    I can only imagine what you are feeling but it may help to know that, when Peter died I was so relieved he was no longer in pain, no longer worrying what was going to work and wasnt. I no longer had to watch the handsome well built man I loved wallowing in what the damn disease…[Read more]

  • Hi Mandy
    Tell your friend to put them in a carton of yogurt or similar desert. she wont feel them going down.

  • LYRICAL. As in songs? now really liking pop songs for some reason. I can recommend to cheer you up
    Min
    CAL for you

  • dear Dai,
    So sorry to hear your news what a bug***.
    I am sure by now you have both got over the blow you were dealt, but as always pick yourself up dust yourself off and head off for the next adventure.
    the MM journey for some is so unfair, and the hope that the next new drug will work is amazing in the way it makes us bounce back ready for the…[Read more]

  • Min replied to the topic Celebrity????? in the forum Off topic 12 years, 10 months ago

    Hi Dai
    Should add that our Dr at the behest of the Macmillan nurse issued a form for Peter which was normaly given to patients who have only 6 months to live. Cant remember its name but in essence it provided a short cut to benefits without filling in too much paperwork.
    I was upset about this as I worried that as he started to get better they…[Read more]

  • Min replied to the topic REMISSION. in the forum General 12 years, 10 months ago

    I?m really pleased for you both, enjoy the rest of your life
    Min

  • Min replied to the topic Celebrity????? in the forum Off topic 12 years, 10 months ago

    Good MOrning Bridget and Happy and better New Year for you all. Including me!

    Will you still speak you when you are famous? Brilliant idea to take part and good on you.

    I recall when Peter was first diagnosed with mm that the ?cancer ? social worker was in Peters room chatting to him about what he could claim. and when I interrupted them to…[Read more]

  • Dear Michelle
    I am so sorry that you and your children and of course your husband have been struck down by this blu_y awful illness.
    It is a very rough ride you have been on and I sincerely hope that this is not the end of the story or the journey for you both. I have heard that going back to the beginning is helpful, ie if he was on CDT at the…[Read more]

  • Min replied to the topic Wedding in the forum General 12 years, 11 months ago

    Beautiful bride and wedding dress and just right for the winter.
    It sounds like it was all worth the effort and so pleased for you both. Back to some kind of normality now for everyone.
    I came home yesterday and it was not as bad as I thought, must be getting used to being on my own though was exhausted form being with the grand children…[Read more]

  • Min replied to the topic christmas in the forum End of Life and Grief 12 years, 11 months ago

    I survived my first Christmas without peter with many moments of reflection, a small amount of tears,and lots of children's laughter.
    My tears were mostly seeing my grandson playing with one of Peters tanks in the way I know he planned to do with him had he been here.
    But on the whole not as bad as i had imagined, but have yet to go home and…[Read more]

  • Whilst your angry let it simmer under a hot fire of anger then get in there and insist on all the money he signed cheque on being put back in the account. That will make them sit up then go to the financial ombudsman and get them to get you compensation for the additional distress.
    On a lighter and more seasonal note merry Christmas
    Love
    Min

  • Min replied to the topic It's my Birthday… in the forum Off topic 12 years, 11 months ago

    Happy birthday to ya, as the song goes. And many more too.
    With Christmas wishes too to everyone
    Luv
    Min

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