Hi Dick

I am sorry to hear your SCT did not work, Helen R and you have both slipped it into someone else,s post!!!!!,I did the same when it happened to Slim,why do we do that??????

I think it,s because we do not want a lot of post saying ( I am sorry ) it’s bad enough going through SCT with nothing to show oft it !!!!,Slim looked on it as 6…[Read more]

Hello John

Just popping in to say hello!!,I hope your are doing ok,or at least as well as can be expected,as you had a rough deal,and no time to adjust.Eve

Hi Jean

That’s all good news,Slim came out in a wheelchair ,I bought a light weight one in the end,which is easier to fold,took months to get him completely on his feet,but he did it, it was the best buy I made as it has been used on and off for the last couple of years.

If you can afford to retire I would go for it,you might miss work but you…[Read more]

Hi Maureen

This time last year,I bet you thought you would never get,were you are now????

How is the Velcade going??? Keep his feet warm,and give his legs and feet a good massage,there legs get very stiff and you can actually feel the tension relaxing in the calfs,so worth it.

Glad you had a nice break in the lakes and also met Andy and Steph,Love Eve

Hi Jo

Slim,s not to bad in the circumstances . He finishes his second Cycle of Velcade on Thursday this week,hid bloods are taking a battering,has had to have platelets every week,but not blood yet,he has managed to fight off an infection,so that has not helped, three years of Myeloma is the best lesson you can have to become an expert on your…[Read more]

hi David

great news news your journey has been the same as mine I believe we joined this forum 5 years ago at the same time as you say never give up keep well
Love Jo

Hi Mandy

you have had a time of it lets hope now you can get better treatment at the new centre you are lucky to have a good one near
keep well love Jo
Hi eve how are you and slim is slim keeping ok my kidneys are rotten they have now fitted a fistula just in cse not what I wanted but hey ho
Love Jo x

Hi Mandy

When you go through all you have and survive it,it should give you a boost knowing that you can fight it,let’s hope the kidneys regenerate and slowly get you back on track.the whole thing is so emotional,once you realise how close things were.
I would not bother trying to remember about ITU,locally they will do a dairy if we asked,but I…[Read more]

Hi Jean

I know it’s a worrying time for you!!! But if Michael has the will to fight it he will,it’s when they put him out and on a Ventilator,the chances diminish,it will take a lot of time to get over this,and they will make decision of his Chemo treatment secondary. But he will get there.

Slim had his Stint in ITU for nine days then the ward…[Read more]

Near half of my post missing ??? HELP lol x

Well done David and your team, and yes you are correct it’s never too late and you more than most know that am sure, you have been dealt a bad deck so far but it was worth the wait hope you don’t do your back in doing a wee jig in celebration

Hi David

Good News is always welcome and specially from you.

I visited the Houses of Parliament on a school trip,and the local MP bought us all orange juices sitting on the terrace. So I hope this was extended to you,with champagne in it!!!!

Hi Keith

You managed to post that’s the main thing,perseverance !!!!,keep going and you will do fine.

I will not offer any advice on SCT,as I am sure things have changed since my husband had his,so this is just a welcome to you. Eve

Hi Molly

I do not know anything about South Yorkshire ,but replying to boost it up,as sometimes post gets passed over. Eve

Hi Woo1967

I take it 1967 is your birth year!!! And I cannot keep calling you Woo,sounds like a dog! But let’s answer your questions first.

There is a free number the top of this page,call it and speak to Ellen or Maggie,they can answer all your questions and send you booklets,this is a must!!!! As you can learn a lot about your condition,so any…[Read more]

Hi Molly

I have just returned from the Royal Marsden were a man named Stuart introduced him self to me,he lives in France and his wife is treated at the Marsden !!!!

He said if you want any information to get in touch with him,he will gladly speak to you!!!!if you put in search the name Stuart,it should throw up postings of his,even put in…[Read more]

Hi Molly

I would be very careful and get some expert advice on any form filling you have to do,CAB should be able to talk you through this.

As you have been out of the country for 6 years,I think you will have to prove you are not a health tourist,but saying that I take it your husband has put many years of tax and Stamps,which should entitle…[Read more]

Hi Helen

I was going to keep well away from this thread as I do not think it achieves anything!!! And any one reading it who is new to Myeloma,will wonder what it’s all about.

I do not like the fact that Dusk is not up front,even if her opinion is valid,sorry Dusk,but that’s just my opinion

Helen I have come on here mainly to say,I am so sorry…[Read more]

Hi jeff

There should be no problems asking your consultant for a second opinion, Slims consultant did not hesitate ,I think it is normal procedure when your own hospital feel they can do no more, we had no problems,and were seen by new consultant within 3 weeks. Be prepared to travel as it involves going out of your area.

We still go to see the…[Read more]

Hi Jane
And well done on your length of remission, I had CDT on my first treatment in 2009 leading up to first SCT in December same year and got 4 years out of that, I am now on Velcade (subcutaneous ) every Monday with 10 wee Dex tabs lol. My feet know am getting this treatment I have had nine Velcade injections so that makes me having 90 wee…[Read more]