tom replied to the topic Diagnosed this week in the forum Newcomers 13 years, 11 months ago
Hi Ted
Well done that Man another three months doing good, keep it up and hope Xray is just put down to "Middle" Age 😉
Tom "Onwards and Upwards"
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 11 months ago
Hi Ali
Well am pleased your Mum is getting stronger and Hugs all round are OK 😎
Am sure your Mum will feel better with the line out, and less chance of infection:-D .
I came out on the 16th Dec and was driving the following day (not far though) but I had my Line (Femoral) taken out the day before I came home.
I bet those two Kids…[Read more]
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 11 months ago
Hi Dai
So one part is looking Good am sure it will all fall into place whith rest and as for a healthy diet well for me you can throw that out of my window I have never had one? dont wish to play about with one and am sure your Dr is correct eat what you want when ect ect ect as I have done and Take a look at iccle ole me (touching wood) doing…[Read more]
tom replied to the topic Feeling Useless in the forum Newcomers 13 years, 11 months ago
Hi Maxine
Sorry to hear about your sister getting MM and being so young, i dont think you will know what treatment your Sister will be on at the moment?
Let us know where your Sister will be getting her treatment as we might have some one on here that is being treated at same Hospital.
If you need to ask any Q fire away and we will try to…[Read more]
DaiCro replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 11 months ago
Min, Eva and Mavis,
Thank you for your messages of support.
I attended the DayCase Unit this am. for a 'clinical follow up'. They took my vital signs and bloods and then I was visited by the same Doctor who was with me throughout my two DayCase visits last week and my weekend sojourn on the ward. She has been a star… showing concern…[Read more]
DaiCro replied to the topic Thank you after 5 weeks of grieving in the forum End of Life and Grief 13 years, 11 months ago
Hi Theresa,
I agree with Andy, your post is very brave… I too like the idea that Peter can wander through your mind as he chooses… I certainly like the idea of visiting Janet in moments of need and the idea that I can have a choice in those moments is both comforting and inspiring.
I am sure that you will find the right balance between…[Read more]
tom replied to the topic Hello in the forum Newcomers 13 years, 11 months ago
Hi Megan and Phil
A warm welcome to your site, ask away and just remember no Q is too silly or daft we have all been through it Like me as a MM or one that is a carer.
Good Luck in Phils road to remissin.
Love
Tom "Onwards and Upwards" xx
tom replied to the topic New – but no confirmed MM in the forum Newcomers 13 years, 11 months ago
Your Welcome Scott
I also hope that your results turn up and say you are Myeloma free 😀 and that Scott is not selfish its self preservation and that is what you need if confirmed with Myeloma.
If confirmed with Myeloma am sure you will kick its Ass and soon be on the road to remission (am sure we ought to get a songwriter to write a song…[Read more]
tom replied to the topic Thank you after 5 weeks of grieving in the forum End of Life and Grief 13 years, 11 months ago
Hi Teresa
Many Thanks for this post as am sure it must be hard for you, but your strenth has and will carry you on.
I never Met Peter or you am sorry to say but you both have and are in my thoughts.
I also hope and wish A cure is soon found for this dreaded illness.
Thank you for posting.
Love Tom xxxx
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 11 months ago
Hi Ali
Am pleased you had a great Birthday and am Pleased your Mum is getting better (no rush though) your Mum will still need to rest often to help heal.
As and when Mum checks what she can and cant do I hope she is still able to recieve "Cyber Hugs" as I am sending some more
Love and Cyber Hugs ((hugs)) to you both
Love Tom…[Read more]
tom replied to the topic New – but no confirmed MM in the forum Newcomers 13 years, 11 months ago
Hi Scott
Great Intoduction I may say 😀 Sorry you had to join us but you have dropped in to a great place great set of folks MM folk and carers (well those that look after us 😎 )
No need for the WWW now you are here so just ask away and am sure some one will help, nothing is too scary for us lot now 🙂
Good Luck (if it turns out to be…[Read more]
DaiCro replied to the topic Weight Loss in the forum Treatment 13 years, 11 months ago
Hi Keith,
I know where you are at… I am just coming to the last week of Cycle 7 of Rev & Dex and I have had to contend with this series of gut infections which allow little to no quality of life… although the cause has nothing to do with Myeloma. I have been referred to the Gastro-Intestinal Clinic and I am hopeful that there is nothing…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 11 months ago
All the best with GCSF, my pain started on day three I think and lasted just over two days 🙂
Tom "Onwards and Upwards" xx
tom replied to the topic Weight Loss in the forum Treatment 13 years, 11 months ago
Hi Keith
Am sorry to hear your having another rough one 🙁
Am not sure if this will help?? and if it upsets people I am extremely Sorry 🙁
But during Mt Treatment I also had the Eff it av had enough, lets get some proper life and do away with the drugs. I told him upstairs (god) three times over the two and a bit years that I have had…[Read more]
DaiCro replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 11 months ago
Hi Vicki & Colin,
GCSF time is with you I see… good luck and here's to a local ache or two. I was told to take paracetamol if the pain got too bad… but it was never more than a constant dull ache… with constant being the key word.:-)
Wishing you the very best of luck and a smooth journey up and into the SCT process.8-)
Regards…[Read more]
DaiCro replied to the topic Loss of appetite in the forum Side-effects 13 years, 11 months ago
Michele said:
[quote]My taste buds definitely changed too. I preferred savoury things and even gave away my Christmas tin of Quality Street because I went off chocolate!! [/quote]
:-0 :-0 :'-( :-0 :-0 Say it isn't so! Chocolate bars and inferior boxes perhaps… but Quality Street… for a sausage roll? How can this be?:-S
If I were…[Read more]
tom replied to the topic Plasmacytoma – looking for good news in the forum Newcomers 13 years, 11 months ago
Hi Charlotte
I also must say sorry as I also missed your post ????? I dont have anything to say about your plasmacytoma as I am fortunate enough not to have had one? (I tell you MM gets staranger the longer I have it?)
I have to say you done as was aked "I've been instructed to introduce myself" and you have done that well 😎
Dont…[Read more]
tom replied to the topic Revlimid in the forum Treatment 13 years, 11 months ago
Hi Pennie and Andy
Thats a lot of breaks and fractures ?
I am pleased Andy is feeling better but if it was me "I would burn those logs that gave Andy all those problems 😉 )
Thanks for the boost you will have given others going on to that treatment 😎
Tom "Onwards and Upwards" xx
tom replied to the topic Loss of appetite in the forum Side-effects 13 years, 11 months ago
Nor I am afraid to say Tina I could eat all day and half the nite when I was on CDT, still can Lol.
Its not moaning Tina its just an Ask and thats nevet to much trouble for us 🙂
Hope the back pain is soon sorted and you can start that eating lark again 😎
Love and "Gentle" Hugs
Tom "Onwards and Upwards" xxxx
DaiCro replied to the topic Loss of appetite in the forum Side-effects 13 years, 11 months ago
Hi Tina,
Not just CDT… I have often lost my appetite following treatments, infections and other causes. Myeloma doesn't cause appetite loss, that is firmly down to the side-effects of medicines… especially chemo.:-P
It does wear off and one morning you will wake up feeling hungry with your taste buds refreshed and ready for food. Six…[Read more]