tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 11 months ago
Hi Vicki and Colin
Your both more than welcome, and I bet neither of you can wait for that "Click" to being and feeling better 😀
As for the Painting well that has been always down to my young bride (Elaine) i do the ceilings and leave the rest to Elaine 😎
You ought to get Colin to Video you painting and put it on your tube ha…[Read more]
DaiCro replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 11 months ago
Hi Gill & Stephen,
I truly hope that the medics do their utmost to alleviate Stephen's discomforts and pain and that the radiotherapy stops the current problems in their tracks. I realise how far Stephen has deteriorated in the past few months but I do hope they can bring some balance and control into his life.:-|
My thoughts are with you…[Read more]
DaiCro replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 11 months ago
Thank you Mavis and you too Tom,:-)
I have decided to write to the ward manager of the ward. Usually I would put my experience down to weekend/bank holiday staffing and let it go but this is a purpose built ward for haematology with, I was assured, normal staffing… so I should expect better.:-(
I was admitted as a 'C-Diff' Isolation'…[Read more]
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 11 months ago
Well Dai And Janet
What a roller coaster you two have been on.
Am sure you can do "Battle" with them Dai and win (mental note nevet to let them know about my stash lol)
I remember being in Castle Hill during SCT days and I had to remind them to throw me the odd Anti Sck pills my way, I asked if they could not put them in my lock up and I…[Read more]
tom replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 11 months ago
Hi Gill and Stephen
Hows things this week end I hope you have both enjoyed it as best you both can 😀
Hope things have been good I just thought i would look in and see how you both are, thinking about you both
Love and Hugs
Tom "Onwards and Upwards" xx
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 11 months ago
Hi Vicki and Colin (see the shattered bit has gone8-) ) or it will soon
Nice to hear Colin has ate a meal (hope it was a stodgy pudding?)
Tell Colin to stick with it I also had all the above and am sure more? but some time down that blomin long line of I just cant be assed I felt it all click into place and just woke up one morning knowing I…[Read more]
tom replied to the topic Diagnosed this week in the forum Newcomers 13 years, 11 months ago
Hi Andrea
Sorry you had to join our merry band of MM'ers.
Its a scarey world at the moment for you am sure but it will all fall into place as the time/treatment kicks in 😀 any thing you need to know just ask if you want to have a rant and or rave please feel free as it will all help to have the bottle top off and let it flow out.
Where…[Read more]
BADGER replied to the topic New to this in the forum Newcomers 13 years, 11 months ago
hello Jacquie
S0 Sorry you have had to join this forum the diagnosis must have been such a shock for you which I dont think anyone truly gets over
the tingling in his hands can happen to a lot of people when having the chemo is he on Dex if so that is what cause the sleeplessness its a very common side effect if it gets too bad he must tell…[Read more]
DaiCro replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 11 months ago
Hi Helen…
We will see on Thursday… I could have gone in on Tuesday or Wednesday but I chose recovery at home… where I am sure all bloods will pick up on their own.:-)
Dai.
DaiCro replied to the topic And the GOOD news is in the forum Off topic 13 years, 11 months ago
David, I am so saddened to read your news. You have been doing so fantastically well with your SCT remission, with your daily walks, holidays and visiting and home chores I have been cheering you on while being more than a little envious… and now this.
I really hope that the treatment, be it primary, secondary or surgery catches hold of it…[Read more]
DaiCro replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 11 months ago
Hello All,
Thank you very much, its so good to see so many supportive messages.:-D
I had a very nasty and messy week and ended up inside on Friday morning. I managed the DayCase on Tuesday but felt terrible all day… I was bled etc., and the Doctor came to see me when the results came back and said it had been decided to refer me to the…[Read more]
tom replied to the topic Revlimid exhaustion in the forum Newcomers 13 years, 11 months ago
Hi Dilini
Am sorry to say but I think all the meds and even just the MM makes you weary tired, and the only advice I can give for your Father is rest when his body tells him to rest and not fight that one, do when he can and it will all take its course in your fathers road to remission.
Good Luck on that road.
Tom "Onwards and Upwards" x
tom replied to the topic And the GOOD news is in the forum Off topic 13 years, 11 months ago
Morning David
Sorry your treatment has had a bad start 🙁 am sure it will all fall into place as it rolls on.
Shame you are past that treatment David as it cleared my work mate up and he is now "Cancer Free" and doing great.
Hope you get the advice you need on tues as am sure its worrying when you get two differant stories on your up and…[Read more]
tom replied to the topic Hello again to all in the forum Treatment 13 years, 11 months ago
Hi Jacqui
As most folk on here will know about me is I dont ask Q I am not sure what type I have am the one that if the Dr is smiling then am Happy 😀 its wrong I kknow but it works for me.
Godd Luck on your trial. and dont worry about how often you log on here its for you to use as and when 😎
Tom "Onwards and Upwards" xx
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 11 months ago
Hi Vicki and Colin
Long Long Day for you both? it just shows how the bloods run amoke at time then settle down.
are they putting the chemo into Colin too fast?? I think if they slow it down a bit its less side effects?? its worth a ask.
Give him My best when you get up at 5.
Love and Hugs
Tom "Onwards and upwards" xxx
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 13 years, 11 months ago
Its been a few days My Friend and I am just popping in here to see if they sorted you out? Take Care and get better soon
Tom "Onwards and upwards" x
tom replied to the topic And the GOOD news is in the forum Off topic 13 years, 11 months ago
Hi David
How is your treatment doing early days I know but just wanted to wish you well at the start of it.
Tom "Onwards/Vasbyte and Upwards" x
tom replied to the topic Next stage in the forum Treatment 13 years, 11 months ago
Hi Tina
Get yesen orf Girl you will love it, have a great time and dont bother with rock for me just bring yourself back all rested and full of beans ready for the SCT
Love and Hugs
Tom "Onwards and Upwards" xxx
tom replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 11 months ago
Hi Gill and Stephen
You know i am so sorry to hear that Stephen is still having problems,I hope the Top man can work some magic and cure the pain that Stephen is suffering.
I love the way you go out and eat at a "Not Posh" one £7 is a lot of money these days Lol and am pleased you can still get out.
I bet you love that Wee room where you…[Read more]
tom replied to the topic My Mums SCT in the forum Treatment 13 years, 11 months ago
Happy Birthday Ali hope the sun shines for you all Today
Love Tom and Elaine xxxx