Hi Keith

Sorry you have had a bad time, its a shame that what makes us better also makes us ill :-S the sooner the side effects can be sorted out the better.

Stay Well and Fit enjoy the days before dex

Tom "Onwards and Upwards"

Hi Kerrie

Your Mum will be Ok when all is sorted out its just a one day at a time 🙂

and seeing how the hugs were good am sending more for you all

Love and Hugs
Tom "Onwards and Upwards" xx

Hi Peter and Welcome to our merry band (Yep we have drinkers here)
keep throwing those pills down yer throat as its working

Tom "Onwards and Upwards"

Hi Chloe And Dad

No problems re you posting thats what this group is for BUT this is one I cant help with but just wanted to welcome you in so to speak, am sure some one will pop in soon and give you the help and advice you need

Tom "Onwards and Upwards" x

Hi Dai

Well I bet your well pleased with the respite you have had 😀
Day Unit is a must for you and a stay in also as you say that liitle problem needs sorting out.

Tom "Onwards and Upwards"

Hi Liz and Kev

Sorry to hear you two have struggled to get rid of the bloomin chest infection:-( I think its something us MM'ers have to suffer dont you think?

Stay strong am sure it will all work out soon

Love
Tom "Onwards and Upwards" x

Hi Peter

Sorry you closed the support group down as i think its a great help.

I believe you dont need many to go to a support group all you need is a few willing folk and hope that (and we are getting them) new members spot the posters at your local hospital.

Whatever way it runs Peter at least you tried 😀

Tom "Onwards and…[Read more]

Hi Scott now I am afraid to say so I cant add any advice just wanted to wish you well in the new treatment and sorry the lats one failed.
Keep strong Scott

Tom "Onwards and Upwards"

Great Read John thanks for the link.

Its bloomin sad that even when you are near deaths door you have to beg to try this or that I swear if and when it comes to me they could use bloomin bleach poured down my throat if they "Thought" it could help and bugger the costs 😎

Tom "Onwards and Upwards"

Well the Flagyl worked very quickly and very effectively. Back to normal by Saturday 11th August and feeling really good.:-D

Consult on Monday 13th and consultant looked at my records and noted that my three independent samples were all negative… that is it wasn't a parasite… but still the medicine worked. I had a consult on Wednesday am…[Read more]

Hi
Found it.Eve

Hi Keith
sorry you are feeling so unwell, When I was first diagnosed i was already a type 11 diabetic but very well controlled only two small tablets a day as soon as dex kicked in it was insulin for me as it shot the sugars though the roof coming of of dex and a sugar high feels like the worst thing going but the insulin did help control it a…[Read more]

hi Ann
thanks for the reply they gave me a demo and it all looked straight forward it seems it can only be delivered to the house i dont know if it is expensive or not i hope it works better for me than keep having transfusions
love jo

John called Dai… Dai called John. All's well and first contact has been made… it's Star Trek all over again.:-D

Keep an eye out for John's all day event folks its sounds like a very diverse and exciting day and evening.:-)

John is pushing the boat out with this day and the support he is receiving is phenomenal.:-D 😎 :-)…[Read more]

Hi Jill

Yes another great story I bet you are all over the moon as your Mum is doing great.

I bet you love the sound of that word 'plateaued' I cant get enough of it give me 'plateaued' any time 😎

Love to you all

Tom "Onwards and Upwards" xxx

Hi Charlie

Well it looks like ur feeling a wee bit rough and scared ?

Well I was on CTD in 2009 leading up to my SCT in December 2009 and I have to say it wasn't a walk in the Park but it is a "Doable" I started in feb 09 with CTD and went on sick May 09 and that was untill may 2010 so just about a year when I was "getting Better" and…[Read more]

Hi Vicki and Colin

Its a shame you have no news on the funding but having a date for the 20th is good then you can ask why?

I was treatment free for about 3 months prior to my transplant starting, and yes i was worried that having No treatment was bad for me but am pleased all went as they told me 🙂 (am just a doubting Thomas 😉 )…[Read more]

Hi Pennie and Andy

Well done on the "Win" and getting the AA am sure you would prefer it wasn't needed but am pleased you have it.

He he and am sure you will be better if Andy took dex in the morning 😀

Have a great week end (my young bride and i are babysitting on sat cant wait)

Love Tom "Onwards and Upwards" xxxx

Hi Kerrie

Welcome am sory to hear your Mum has got MM and had a bad time with CTD I was on that in 2009 it was a struggle to be honest I did 5 sessions that put me into remissin then Stemm Transplant also in 2009 doing good now 😀 I wish your Mum well with the the new treatment but that also might make Mum ill and weary am afraid.

hugs to…[Read more]

Hi Folks
Well all went well, I got through to the 2 nd Audition and that was done the same day(yesterday) now I have to wait and see if the 2 nd one went as well and more importanly better than the others that have and are due to go. Am Going to see if I can add a couple of photo's from the week end.

We had to pay our own hotel and stuff Helen…[Read more]