Hi Paul,

Welcome home (home is where the hospital isn't) and well done.

Evryone will tell you to avoid infections… and so will I. You say you live in a rural area where there is little public interaction if you chose, well choose… and extend it to all but the very closest of famiily and friends for the next few weeks. I am sure that…[Read more]

Dear Lynne,

I am so sorry to hear of such sad news. I know that John was receiving his dialysis and it made me so grateful that despite all my infections and other ills that I never had to endure three visits per week for such a draining procedure… he was a very brave man and endured so much.

I am gladdened that you had the last four…[Read more]

Thanks Helen and Tom and you are both right,

On day 3 of 5 with Flagyl (metronidazole) and 'Voila' it seems to have worked a miracle. I woke this morning and took my temperature (I didn't need to because I felt 'cool' for the first time in nearly 2 weeks) 36.60… perfick. Grumbles and gripes gone, just a smidgen of internal wind, motions…[Read more]

Hi Eva,

The picture of you in an Internet Cafe somewhere in London, on your ownsome while waiting for such important news paints a forlorn portrait. Please keep in touch when you can and let us know the outcome.:-)

Wouldn't it be nice to have a group of volunteer 'safe houses' in major towns and cities where MMers (and other cancer…[Read more]

Hi Keith,

Well with those readings it is certainly mission accomplished… which makes it hard to argue against the dosage, which is a pity… because you may well have gained the same results on a much lower dosage. The Revlimid has been doing the dirty work, shoulders down, grappling with the cancer cells, capping them and watching them…[Read more]

And you I John got you on Face Book now 😀 And Wow it looks like the place will be awash with MM tee shirts Dai.8-)

Hi Keith

Well you have some good answers so all I can say is Good Luck with it all on monday and hope you get something sorted, for me i had no problems re diabetes then or thankfully now.

Keep fit and good luck

Tom "Onwards and Upwards"

Hi Paul

And a welcome home 😀 16 days is good same as mine 😎
Keep germ free and fit (ish) and good Luck in the road to recovery.

Tom "Onwards and Upwards" x

Dear Lynne

I am so sorry to hear that John has Lost the Battle with Myeloma.

Over the years you have been a strong Lady in this Group helping others with strong words of wisdon and kind caring ones at all times, and that Strenth you had will help you get through your sad loss.

I am sure I dont have to say it but feel i want to and that is…[Read more]

[quote][b]Fingers crossed the end is not as near as first thought. Stephen is hoping he will be able to drive again for at least a while.[/quote][/b]

I read and reread your post because something hit me but I wasn't sure what (if I was Janet I'd sneak up on me and have a go with a frozen Hailbut from time to time).

But I found it… not so…[Read more]

Hi John,

I attend the City Hospital in Nottingham and I too am currently on Rev & Dex (about to start Cycle 7 next week). I live in Aslockton, equidistant between Nottingham and Grantham, so not so very far from Mablethorpe. I used to play semi-pro in folk, folk-rock and MOR bands, duos and solo… although MM has slowed me down in many ways…[Read more]

Hi Keith,

I believe that the Dex does cause temporary diabetes… the signs are easier to spot for me because Janet has type 2 diabetes. I asked my lead nurse about it a few months ago and she confirmed the temporary effect… but…

I realise that I am nowhere near qualified to question your medics but the reaction I got from my consultant…[Read more]

🙂 😀 😎 😀 🙂

Carry On Regardless

I hope this extends 'the end' to 'the far end'… growing old disgracefully, huffing and puffing, heave and pull as you get in and out of the Jag… your relief is palpable, I can feel it from here.:-D

Much, much love.8-)

Dai.

Hi Gill

So glad for you both,hope Stephens sight comes back,Very tough place to have lesions,they can do wonders these days,and I can say they would not have done it,if there was chance of more damage,
As for the jag well what can one say,I have looked at those cars and my own personal thoughts are so rude an extension of a personal part8-)…[Read more]

Hi Helen
Who has not introduced her self,my name is Eve and I am a carer,have to say MY GOD,33 and pneumonia in itu leg op,and you thought you had a bad knee,you could laugh if it was not so serious.

One good thing being based in London gives you lots of scope for trials plus the best treatment that is available,
I have just come on to say…[Read more]

Hi Keith

I wish I could help you but I cannot,I know Dex does not help sugar levels,plus I know since Slim has been on chemo his cravings for sugar are unbelievable, never touched sugar before,do I put him on a fad food diet,!!!,my attitude is what ever he will eat,cannot afford to loose any more weight:-S

I know all about green tea,green…[Read more]

Hi Ali

Your Mum is doing great so far (dunt look like it but Mum is dong well) its still up hill for your Mum but will get easier as the days,weeks flow by.

I needed anti sick tabs for weeks after my SCT just couldn't keep anything steady.

Give your Mum a Hug from me as like most here we have been through it.

Love and hugs

Tom…[Read more]

Dai My you do sound (and i know its silly to say) better than you have on the other posts 😎 I also am gonna use the "Mystic Jo" if ever i feel ill 😀

Good Luck with the new Tabs and hope the little beggers are soon Flushed away Lol.
Am sure we would all love to see your "New" Goatee 😎 so will a photo be posted?

Keep Flush and…[Read more]

Hi Pat

A warm welcome to you.
First I must say Moan if you need (we alll do at times, cept Eve that is 😛 )

Its a wait and see am afraid but I was seen fairly fast when Bloods were dodgy so hope yours is soon sorted out.
and as has been said if it is the MM am sure it will soon be sorted out like mine and many more 😎
Enjoy your break…[Read more]

Thanks Tom… and thanks indeed to Jo who put me on the right path. I have had H.Pylori myself in the past but didn't even consider that possibility.8-)

So… 3 separate samples off to the lab and we had our meeting with my GP on Wednesday am. He said that the tests take 48 hours from receipt to process a result… after looking closely at…[Read more]